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Does ANYONE like being on Keppra?

Thu, 09/14/2006 - 16:02
Okay, so I know no one really likes being on any medication, but I am just wondering, does anyone LIKE Keppra? I hate Keppra. I hate the way it makes me feel. I'm always tired and grouchy and fidgety. I can't see straight most of the time and my already short-fuse is way way shorter. Has anyone been on Keppra and NOT had bad side effects? Because for the number of people, it seems like most people I've talked to DON'T like it.

Comments

Re: Does ANYONE like being on Keppra?

Submitted by buckeyedude on Sat, 2008-11-29 - 12:57

The Keppra seems to control the seizures but the side effects are the killers. Seems like

everyday I wake up with a headache or I'll have one at work or when I get home and in

the past 3 years I've had 4 bouts with kidney stones. The first 3 I passed by myself but

this last one, just last month I had to be hospitalized for. My doctor told me that Keppra

caused kidney stones when I started on them and to drink alot of water which I do but

that doesn't seem to help any.    

buckeyedude

The Keppra seems to control the seizures but the side effects are the killers. Seems like

everyday I wake up with a headache or I'll have one at work or when I get home and in

the past 3 years I've had 4 bouts with kidney stones. The first 3 I passed by myself but

this last one, just last month I had to be hospitalized for. My doctor told me that Keppra

caused kidney stones when I started on them and to drink alot of water which I do but

that doesn't seem to help any.    

buckeyedude

Re: Does ANYONE like being on Keppra?

Submitted by caregivers_need_hugs2 on Sat, 2008-11-29 - 13:16

Hey there!

Maybe this will offer a spark of Hope...

My hubby has been on Keppra for over a year now and hes doing actually very well on it (maybe even longer cant remember when we had to do last med change). I CRINGED when the Doc changed him from Trileptal to the Keppra after he was having break thru seizures on the highest doeses of Trileptal. I was petrified of Keppra becuase its deemed the EVIL DRUG.

Anyway, not for him...hes doing excellent on it and hes fine mood wise too. It was only when they added Zonagran to the Keppra he was EVIL and NASTY and it was horrible. He was the most miserable person to ever live with. We took him off Zonagran and up'ed the Keppra to prevent the sieuzre he was having (break thrus) and poof back to normal in a week or so after the Zonagran was taken away. Hes also on Lexapro which is an anti-depressant. So far, hes happy all the time, never really in a bad mood and doing extremely well on the Keppra. Alot of the other meds he was tired all the time. He doesnt seem to be so bad on the Keppra. I know Doc wants to keep him on the Lexapro becuase it is a mood stabilizer so maybe thast why hes doing so well. Hes on a pretty high dose of Keppra too (I think 1750mg a day plus 10mg lexapro).

I hope that sheds some light on your question and brings a little hope.

Take care!

-Diane

Hey there!

Maybe this will offer a spark of Hope...

My hubby has been on Keppra for over a year now and hes doing actually very well on it (maybe even longer cant remember when we had to do last med change). I CRINGED when the Doc changed him from Trileptal to the Keppra after he was having break thru seizures on the highest doeses of Trileptal. I was petrified of Keppra becuase its deemed the EVIL DRUG.

Anyway, not for him...hes doing excellent on it and hes fine mood wise too. It was only when they added Zonagran to the Keppra he was EVIL and NASTY and it was horrible. He was the most miserable person to ever live with. We took him off Zonagran and up'ed the Keppra to prevent the sieuzre he was having (break thrus) and poof back to normal in a week or so after the Zonagran was taken away. Hes also on Lexapro which is an anti-depressant. So far, hes happy all the time, never really in a bad mood and doing extremely well on the Keppra. Alot of the other meds he was tired all the time. He doesnt seem to be so bad on the Keppra. I know Doc wants to keep him on the Lexapro becuase it is a mood stabilizer so maybe thast why hes doing so well. Hes on a pretty high dose of Keppra too (I think 1750mg a day plus 10mg lexapro).

I hope that sheds some light on your question and brings a little hope.

Take care!

-Diane

Re: Does ANYONE like being on Keppra?

Submitted by CarolinaBrittany on Sat, 2008-11-29 - 18:51
I was put on keppra and had major side effects.After a few days I felt a seizure coming on.During that seizure I was partly concious,my arms and legs were like a ragdoll,I rocked back and forth hitting the floor and when trying to get to my bed hit a dresser and broke part off,slurred speach then I Couldnt speakthen I became stiff and couldnt move at all no matter how hard I tried basically paralyzed from my neck down.couldn't see straight,had no sense of balance,couldnt eat solid foods or even feed myself.My parents did not let me do anything for myself or get out of bed without one of them until they were sure I was fine again and had me stop taking it right away.That happened 9-15-01 I remember all I could watch was wtc coverage.Ever since then I'm weary of trying new meds.My parents thought I had a stroke and seizure at the same time.

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