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toxic dilantin level
Mon, 11/03/2008 - 18:57Hi to everyone, I had a dilantin level surge up to 60.4, has anyone had a level that just surged this high before? I felt i was insane and no one could tell around me that i was out of this world, felt like i was living a bad dream. I can not think straight and it's been over a month since this happened. I take 400mg a night.
david
Comments
Re: toxic dilantin level
Submitted by shaff on Mon, 2008-11-10 - 10:49
I always had very good control of level except the last year, I do have new dilantin now for the past few months but previous to that it could have been new and old dilantin being filled back and fourth or just the new, got to find out. I knew something was different about the way the pills looked but just blew it off because the pharmacist said nothing or the neuroligist.
So far no other causes, my internist is going to look at all the tests they did in the hospital(mri, blood,lumpar punture,eeg) which came back negative from the hospital. I guess it's his suspision the pills could be the problem being everything came back negative but he is going to look at it all and i will let you know what he concludes, several times he has figured out problems that a specialist has missed.
60 feels bad, the best way i know to describle it is being in the bad dream state while awake and have no understanding what is going on, completely detached from reality and trapped yet know one really knows until they talk to and then they know you are totally gone.
I will find out today what just the dilantin levels is.
david
I always had very good control of level except the last year, I do have new dilantin now for the past few months but previous to that it could have been new and old dilantin being filled back and fourth or just the new, got to find out. I knew something was different about the way the pills looked but just blew it off because the pharmacist said nothing or the neuroligist.
So far no other causes, my internist is going to look at all the tests they did in the hospital(mri, blood,lumpar punture,eeg) which came back negative from the hospital. I guess it's his suspision the pills could be the problem being everything came back negative but he is going to look at it all and i will let you know what he concludes, several times he has figured out problems that a specialist has missed.
60 feels bad, the best way i know to describle it is being in the bad dream state while awake and have no understanding what is going on, completely detached from reality and trapped yet know one really knows until they talk to and then they know you are totally gone.
I will find out today what just the dilantin levels is.
david
Re: toxic dilantin level
Submitted by Nerak95 on Tue, 2008-11-18 - 01:49
David,
The generic version of Dilantin has caused a lot of problems for people. That's because the way it metabolizes can vary from one manufacturer to another. If you're going to go generic, I'd suggest to stick with the same manufacturer. Your neuro can write you a script asking for you to stay with a specific manufacturer. I did this for my daughter when our insurance company made us go to the generic form of Zonegran. If your pharmacy says they don't carry it, ask them to order it. They should be able to...especially with one of the bigger companies like Walgreens, CVS, etc.
Second, when my daughter was on Dilantin and even though it was the brand name, her levels fluctuated a great deal. We always had ours done at a trough level. It was the craziest thing.
~Karen
David,
The generic version of Dilantin has caused a lot of problems for people. That's because the way it metabolizes can vary from one manufacturer to another. If you're going to go generic, I'd suggest to stick with the same manufacturer. Your neuro can write you a script asking for you to stay with a specific manufacturer. I did this for my daughter when our insurance company made us go to the generic form of Zonegran. If your pharmacy says they don't carry it, ask them to order it. They should be able to...especially with one of the bigger companies like Walgreens, CVS, etc.
Second, when my daughter was on Dilantin and even though it was the brand name, her levels fluctuated a great deal. We always had ours done at a trough level. It was the craziest thing.
~Karen
Re: toxic dilantin level
Submitted by loveslight57 on Fri, 2008-11-07 - 20:59
Did you have a good therapeutic level before you changed to the new half orange/ half white pills.
Were they the only variable causing your toxic level?
I was told that I was the only patient experiencing problems with the new pills.
My level at the time of the reaction was only 24.5. I cant imagine what a level of 60 would have done.
Are you having your level adjusted now and is it lower and stable?
Did you have a good therapeutic level before you changed to the new half orange/ half white pills.
Were they the only variable causing your toxic level?
I was told that I was the only patient experiencing problems with the new pills.
My level at the time of the reaction was only 24.5. I cant imagine what a level of 60 would have done.
Are you having your level adjusted now and is it lower and stable?