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Grow out of seizures???

Sun, 05/21/2006 - 21:52
Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We are running one more metabolic test, but that's just to be safe (we thought he had MSUD). Has anyone else heard this? Has anyone else had an experience where someone "grew out of it?" Just looking for the positive!

Comments

Re: Hello, My daughter is in

Submitted by chitownmom on Tue, 2008-10-07 - 17:43

I am always amazed at how little information you can get from a doctor.  My daughter, 8 in a few weeks, was "diagnosed" with generalized seizures in 2006.  I just found this out last week.  I never knew what type of seizures the doctor thought she had.  We've heard that she may or may not outgrow this.  They just don't know.  Oh, well.  We never gave her meds but now are considering starting her on Keppra.  From what I was told, after being seizure free and on a med for 2 years, the doctor will start the weaning process.  We'll see what happens.

ChiTownMom Just A Mom Doing Her Best For Her Child

I am always amazed at how little information you can get from a doctor.  My daughter, 8 in a few weeks, was "diagnosed" with generalized seizures in 2006.  I just found this out last week.  I never knew what type of seizures the doctor thought she had.  We've heard that she may or may not outgrow this.  They just don't know.  Oh, well.  We never gave her meds but now are considering starting her on Keppra.  From what I was told, after being seizure free and on a med for 2 years, the doctor will start the weaning process.  We'll see what happens.

ChiTownMom Just A Mom Doing Her Best For Her Child

Re: Hello,I have idiopathic Generalised Epilepsy

Submitted by Razzle Dazzle on Sat, 2009-06-27 - 15:04

Hello my name is Lynnette Davidson from Scotland,(16 yrs old)

 I started taking seizures in January of 2008 and i think your right about the doctors after i had three fits they decided to test me for epilepsy and i was 15 at the time. I was diagnosed with Idiopathic Generalised Epilepsy in November 2008 and i was started on Epilim straight away and it worked great but then i took a turn for the worst i began to stop breathing during seizures and my dad was very scared i was pregnant when i began to stop breathing during a fit and saddly i miscarried.(a little boy) i was then soon started on keppra as my fits were so out of control and happning up to 3 times a day and still are.Although! my dad said that since i was started on keppra my body stopped jerking about so much at the lower part of my body of course. I would strongly suggest you start your little girl on keppra it is well worth it so far of what i have been told. I go into the Southern General Hospital in a week for a EEG for 4-5days so i wont be able to move much lol but i am going to ask if i can have a VNS done you should look that up it may interest you in the future.

 

Hope all goes Well

 

Lynnette Davidson

Scotland x x xx

Hello my name is Lynnette Davidson from Scotland,(16 yrs old)

 I started taking seizures in January of 2008 and i think your right about the doctors after i had three fits they decided to test me for epilepsy and i was 15 at the time. I was diagnosed with Idiopathic Generalised Epilepsy in November 2008 and i was started on Epilim straight away and it worked great but then i took a turn for the worst i began to stop breathing during seizures and my dad was very scared i was pregnant when i began to stop breathing during a fit and saddly i miscarried.(a little boy) i was then soon started on keppra as my fits were so out of control and happning up to 3 times a day and still are.Although! my dad said that since i was started on keppra my body stopped jerking about so much at the lower part of my body of course. I would strongly suggest you start your little girl on keppra it is well worth it so far of what i have been told. I go into the Southern General Hospital in a week for a EEG for 4-5days so i wont be able to move much lol but i am going to ask if i can have a VNS done you should look that up it may interest you in the future.

 

Hope all goes Well

 

Lynnette Davidson

Scotland x x xx

Re: Hello,I have idiopathic Generalised Epilepsy

Submitted by pacificheights on Fri, 2009-08-21 - 10:02
hi i noticed in your blog your from scotland, i am also. to see if we could chat my user name is pacificheights, do you go on to main chat

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