The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Deja vu and Epilepsy

Sat, 09/06/2008 - 19:09

Ok I'm going to give a short version and a long version, as the long one might be too long for many...

SHORT:

-I'm 23, have had 5-6 deja vu episodes in 3-4 weeks. Daydream alot and have fleeting thoughts of normal things seeming weird or funny (but not necessarily unfamiliar). No family history, no grand mal, no head trauma. What's the likelihood of TLE? What else might it be?

LONG:

I'm 23 and have experienced five or six very strong feelings of deja vu in the last 3-4 weeks or so, which was enough to tip me off to possible temporal lobe epilepsy after searching around a bit. They generally last about 10-20 seconds and are not accompanied by the same dread, or stomach discomfort, or fear, or happiness that seems to be common with many TLE patients, but they're also momentarily quite strong (and frustrating!) for me.

I also have been having these thoughts every once in a while that ordinary things, objects, words, concepts, etc. (could be anything depending on the concept) seem somewhat silly or different than they normally would feel. In a way, I feel like I'm processing the world differently, almost a bit, yet not entirely, detached from it for just a few seconds or so. I'm not quite sure it's jamais vu since it's never had any sort of emotion or gut-type "feeling" that deja vu has, and I know what I'm looking at/touching/hearing/etc fine and not actually forgetting anything about it. As an example, it could be as trivial as say looking at a phone or hearing the word phone (or whatever else) and thinking "hm, what a funny thing with a funny name. never thought of a phone that way, i know it's a phone, but it seems kinda silly. kind of weird we use them" and then snap back into it and realize a phone is a phone and i've been using it and familiar with it my whole life. It feels like I'm a permanent stoner or something. Sorry if that sounds a bit nuts, just a quirky thing that I'm wondering if it's related to possible TLE or something else.

I also tend to have some issues fairly regularly with daydreaming or forgetting for a second what it was I was doing or wanted to do (momentary memory, basically), but I've always attributed that to lack of sleep, being a space cadet, or whatever else might cause it, and I'm not too sure if it's symptomatic of TLE.

In any case, I have never had head trauma, have no family history of epilepsy, and obviously never had a grand mal or anything like it. I saw a neuro who took history and notes before referring me to a specialist who's going to take a month to schedule an appointment and for an MRI in the meantime. He mentioned that there are psychological theories but no other neurological explanations aside from TLE to explain having 6 deja vus along with the other quirkiness. Obviously then, it would be frustrating if the MRIs and EEGs, etc all come back fine with no diagnosis made as I could be stuck with these spells (which are affecting my work right now).

That said, I'm wondering a few things:

1) What is the likelihood of TLE (given age, no family history or trauma, symptoms)? Also, what is the likelihood that someone non-TLE has 6 dejavu episodes in a 3-4 weeks timeframe?

2) What are potential alternative explanations if not TLE?

3) What can/will be done if everything comes back okay but I'm still having symptoms?

4) Would stress/lack of sleep cause the symptoms, or do they actually trigger the epilepsy which in turn triggers the symptoms?

Obviously any answers to any of the questions are much appreicated. Thanks and look forward to the discussion!

-Mikey

Comments

Deja Vu: Art Project

Submitted by dhawgood on Wed, 2013-04-03 - 07:03
Hi, I'm a London based artist doing a photography MA at the Royal College of Art. I'm interested in states of consciousness and ways of revealing internal psychological space. I am looking for written responses that detail specifically the phenomena of déjà vu and focus on the experience itself, how it feels physically and mentally. My sister has had acute epilepsy since she was 12, so I have a clear understanding of the condition and the daily problems that arise. Please just contact if you have any questions, Dominic Hawgood www.dominichawgood.com info@dominichawgood.com

Re: Deja vu and Epilepsy

Submitted by PeaceSnail on Fri, 2008-10-03 - 14:25

a lot of what you described sounds like tle. a lot of it, besides the tle stuff, sounds like ADHD, which could be a psychological thing that the dr. was thinking of. depression, too, can look like ADHD. It's possible that you have a nice mix, too. You have an interesting brain :)

 

peace :)

a lot of what you described sounds like tle. a lot of it, besides the tle stuff, sounds like ADHD, which could be a psychological thing that the dr. was thinking of. depression, too, can look like ADHD. It's possible that you have a nice mix, too. You have an interesting brain :)

 

peace :)

Re: Deja vu and Epilepsy

Submitted by 3Hours2Live on Sat, 2008-10-04 - 06:39
Have you read PROUST? His autobiographical novel illustrates deja vu with and with out the actual memories; deja vu like conditioned visceral sensations from environmental (and internal) stimuli without the associated memory(presently forgotten) gives mystical feelings seemingly beyond logic, as does TLE, and they both can work together to give quite strong cascading sensations reaching illusory divine levels. Sometimes this can be artificially induced during slight seizures with Pavlovian and/or operant conditioning. Disruptions of rote associations of objects can be caused by TLE, though not as frequent for me, leading to thinking about things in a different or totally new manner, giving useful insights at times or just a sense of the silliness of the arbitrary nature of daily things. Such symptoms can also be the results of minor strokes, poisons, etc. Trying to objectively and validly label feelings in TLE may well be impossible, and, for me, has caused much trouble with popcorn psychologist, to where now I frequently label my minor ictal sensations as adverse visceral sensations to try to preclude their careless invasive assumptions (I also studied the MMPI in college (avoid the MMPI like the plague in case you do have TLE; the MMPI sticky labels many TLEs as paranoid schizophrenia), and TLE strengthened my following Skinnerian Behaviourism). One of my psych professors who told me that I aways amazed him by getting my fat head head through the doorway and complained of my verbosity (and gave me an A Plus for the course) led me to research the Geschwind Syndrome, and other usually rejected concepts as Forced Normalization, Kindling, TLE Personality, etc.; TLE Personality phenomena have generally been replaced with separate psychological diagnostics that only multiply problems with DSM cookbooks. The books I am studying now are The Epilepsies by Panayiotopoulos, Imitators Of Epilepsy by Kaplan/Fisher, Limbic Seizures In Children by Avanzini/Mira Chapter 19; I think they are listed on Amazon.com; and, I am reading a critical study of and with The Idiot by Dostoevsky. These books answer many usual and unusual questions about epilepsy, especially TLE, and are fairly recent; Dostoevsky is from the 19th century, but his works are classics, especially with epilepsy. Good Luck!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.