Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

vns therapy side effects

Wed, 02/15/2006 - 10:10
I joined this site yesterday and I'm interesting in touching base with anyone who has a vns. In particular I would like to find out if anyone has experienced any unusual side effects not mentioned by Cyberonics. I occasionally experience 'tingling' in my neck and shoulder - this is actually quite unpleasant and it has been severe enough to warrant having my vns temporarily turned off. At one point last summer it felt like I was being repeatedly stung by a bee or something like that (I'm not sure exactly how to describe it). Cyberonics claims that no one has ever mentioned anything similar to this. I have been quite happy with my vns - it has helped stop many seizures once they have started, which has meant fewer trips to the ER but if this problem became really severe again I wouldn't be able to keep my vns turned on. Please let me know if you have experienced anything like this - I would like to know - Cyberonics makes it sound like I'm crazy or something. Thanks!!!

Comments

Re: vns therapy side effects

Submitted by suebear on Sat, 2013-04-13 - 05:48
I am going to be leaving this particular post because as of two weeks ago a decision has been made to remove the VNS. Not because of the bad reaction I have been getting from it but due to the fact, I no longer need it. We are still in preliminary discussion on shut down and removal time but it has already been decided that this will take place. Suebear

Re: vns therapy side effects

Submitted by lor on Sat, 2013-04-13 - 20:36

I have a VNS but it was turned off because it didn't help. However, I had no unusual side effects when it was on.

I have a VNS but it was turned off because it didn't help. However, I had no unusual side effects when it was on.

I just got my vns 3 weeks ago

Submitted by Cloudedabyss21 on Tue, 2019-09-17 - 12:14
I just got my vns 3 weeks ago and honestly I feel a shocking pain in my head idk if that’s just the vns stopping one of the seizures or if that’s one of the side effects idk I need more information on this thing please someone help me with this 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.