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Does anyone else feel like you know when your seizure is coming?

Fri, 01/25/2008 - 16:03

Hey, I'm new...I've had epilepsy since I was about 11...I'm almost 18 now. Anyways, sometimes, most days when I'm about to have a seizure, throughout the day, I have these weird "feelings". I can't really describe it, but I think there is a word for it, like a warning signal I guess. I don't know if anyone knows what I'm talking about. But the feeling is really weird, like all of a sudden, I get the chills, and my body feels cold, and I get this weird feeling, almost like a da sha vuu, like I remember "thinking" this thought before, but then I forget it. I don't know...it's very weird, and I know I'm probably not making any sense. Anyways, I know I'm not having a seizure then because I am fully conscious and don't make any movements. But I might have a few of those moments through out the day leading up to my seziure.

Anyways, I was just wondering if anyone else got thos feelings, since I suspect it's related to my epilepsy. Or maybe you want to share any other ways you know you're seziure is coming on.

I have complex partial seizures by the way.

Comments

Re: Does anyone else feel like you know when your seizure is com

Submitted by diana-gaidheal on Mon, 2011-07-11 - 02:40

I've epilepsy for 30 years and finally figured out how to describe my seizures a few years ago. The seizures have changed throughout my life, but one thing has stayed the same - The numbing feeling in my stomach! As you can tell with everyone's responses, we all know exactly what you mean! Good luck, Diana

I've epilepsy for 30 years and finally figured out how to describe my seizures a few years ago. The seizures have changed throughout my life, but one thing has stayed the same - The numbing feeling in my stomach! As you can tell with everyone's responses, we all know exactly what you mean! Good luck, Diana

I sure do!

Submitted by Colina on Sun, 2008-09-14 - 19:43

Hi music. Welcome to the community, you will find lots of great info and support here.

I also experience the deja vu as part of my seizures. An warning is usualy called an aura which is also considered a simple partial seizure. Not all seizures cause a loss of conscious or convulsions. You need to tell your doctor about these if you haven't already.

It isn't always easy to describe theses things but I found it very helpful when I first joined here to read other peoples descriptions. It realy helped me explain to my doctors what I was experiencing.

"it's very weird, and I know I'm probably not making any sense" You'll find here that you do make sense because we all "get it".

Take care and enjoy exploring the site, Colina

Hi music. Welcome to the community, you will find lots of great info and support here.

I also experience the deja vu as part of my seizures. An warning is usualy called an aura which is also considered a simple partial seizure. Not all seizures cause a loss of conscious or convulsions. You need to tell your doctor about these if you haven't already.

It isn't always easy to describe theses things but I found it very helpful when I first joined here to read other peoples descriptions. It realy helped me explain to my doctors what I was experiencing.

"it's very weird, and I know I'm probably not making any sense" You'll find here that you do make sense because we all "get it".

Take care and enjoy exploring the site, Colina

Re: I sure do!

Submitted by RcCola on Sun, 2011-06-19 - 20:32
Hi, I have recently been having seizures upon waking up from a nights sleep. I actually remember how I felt right before going into a seizure(gasping for air before blacking out) and will often have the same feelings randomly during the day but never a seizure following them. I get a numb type of feeling and a sense of deja vu, a tightness in my chest and jaw like I'm gasping for air and an almost light headed or euphoric feeling(I also get a blank stare like I'm zoning out). I also have sleep apnea and wonder if these feelings are a result of a poor night or multiple nights sleep because I also feel extremely exhausted all day while having these feelings. It is so hard to describe but it scares me every time and it's comforting to read some of these posts and see that I'm not alone.

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