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MINI Sudden Blackouts - Has anyone had something similar??

Thu, 08/14/2008 - 21:49

The reason I ask is because it's something that only started over the last few months. I have complex partial epilepsy with primarily left seizures & secondary generalisation sometime.

 I've lately developed this 'thing' where whilst having a seizure, I'll suddenly have a mini blackout. It literally last for like a seond or two - and I'm fully consious, but my eyes will just drop closed and then a second later I'llcome to with a massive jolt. It scares the absolute crap out of me... It's like when you've just dosed off, and you wake up instantly feeling your about to be smacked in the head... or like dosing of behind the steering wheel! (I dont drive, it's jsut what it feels like) That terror & fear all in one second.

And then I'm fine....     I'm bound to see my specialist in November, where they will do the final MRI, Video EEG(2 weeks) SPECT scan and Pet scan. But till then it's getting to be a more and more regular occurance with my fits.

 Has ANYONE else had this?

Comments

Re: MINI Sudden Blackouts - Has anyone had something similar??

Submitted by just sam on Fri, 2008-08-15 - 07:26
I could have written your post. I too, have complex partial - with left temporal lobe seizures, that sometimes secondarily generalize. You are describing something extremely similar to something I was having. I described these incidents similar to a "record skipping" whereby you lose a few seconds of time. The scary part for me is that mine happened while I was driving and these incidents were starting to happen more often. This was right before I started seizure meds, as I didn't recognize them as seizures at first. I had no clue what what going on, I thought I was just tired, as I wasn't sleeping well at night. My other seizures started soon after and then my driver's license was taken away. Once all of my seizures were fully under control, my license was given back. My advice to you is to call your doctor and just let him/her know what's been going on. November is a long way off and the scans will probably show nothing at all. Sounds like you just may need an adjustment or change in your medication. I'd hate to see your seizures start cycling again.

Re: MINI Sudden Blackouts - Has anyone had something similar??

Submitted by tan_the_fan on Fri, 2008-08-15 - 09:14

sam, my seizures hasnt stop cycling... :( My meds dont do anything to control my seizures, so I dont adjustments would do me any good.. The earliest appointment I can get with my personal specialist is the 10 November, which is only 9 days before I go to the surgery specialist.... So annoying! And whenever I talk to her about my seizures she's like "wow that's really interesting" and gets 4-5 medical students as I'm such an interesting case... Grrr....

Just out of interest - Do any of you get auras with complex partial? Apparentely it's  uncommon and not assoc with comp partial, yet I tend to get them..?

 

sam, my seizures hasnt stop cycling... :( My meds dont do anything to control my seizures, so I dont adjustments would do me any good.. The earliest appointment I can get with my personal specialist is the 10 November, which is only 9 days before I go to the surgery specialist.... So annoying! And whenever I talk to her about my seizures she's like "wow that's really interesting" and gets 4-5 medical students as I'm such an interesting case... Grrr....

Just out of interest - Do any of you get auras with complex partial? Apparentely it's  uncommon and not assoc with comp partial, yet I tend to get them..?

 

Re: MINI Sudden Blackouts - Has anyone had something similar??

Submitted by just sam on Fri, 2008-08-15 - 13:43
I'm sorry you're having such a hard time getting your seizures under control. Correct me if I'm wrong, but I believe I read on these boards that auras are really simple partial seizures. I was having SPS and I was so completely aware of my surroundings, just unable to come out of it and had to wait them out. They are so surreal - almost an altered state of consciousness. Just curious, what meds are you on? They have me on Topamax, and so far, so good.

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