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First seizure yesterday at 31 (in my sleep)

Thu, 05/22/2008 - 16:51

I am new to this site and not sure where to post this so I hope this is a good area, where people read this and can offer some advice.

Yesterday morning around 5am my husband was woken by the sound of me apparently choking.  He turned on the light and my body was in a seizure (muscles all stretched out in arms and legs, head back, eyes rolled back in my head) and turning blue, also foaming at the mouth.  He called 911.  By the time they arrived (about 7 minutes by his estimate) I was out of the seizure and in a heavy sleep.

When I woke up, I freaked out because there were 2 EMT's in the room trying to talk to me and I had no idea what was going on.  I was in a very confused/scared state and passed back out within 30 seconds.  I'm told that they got me out of bed and walked me down the stairs to a stretcher waiting, then transported me by ambulance to the local hospital, none of which I remember.

They ran a few tests at the hospital and decided to transport me to the city an hour away for further testing.  I had a CAT scan and EEG done.  The good (?) news is that both came back clear, no tumors and no signs of epilepsy on the EEG. 

So now what?

I am going back in about 2 weeks (waiting for the appointment) to have a second EEG done, this one where I have to stay awake the whole night before so that I am extremely tired for the test.  If that one doesn't show any epileptic signs I'm not sure what's next.  It's "only" one seizure but one too many for me!

I have an aunt, uncle (brother and sister), and cousin who had epilepsy in their younger years that they outgrew so I guess that is why the dr's are doing further testing, because of the possible genetic link.

Anyone have any thoughts for me, advice?

Comments

Re: First seizure yesterday at 31 (in my sleep)

Submitted by adentonhead on Sun, 2008-07-27 - 20:20

I have had seizures for 12 yrs now & coming close to the BIG 30...lol ...  I would have my seizures at night when sleeping, no other time. About 5 yrs ago I started having aura’s. I promised that when I had a child that "NO MATTER WHAT" I would take the meds so that it would not have to see them...  5 yrs with a wild child & tired mom w/ no memory, i did find one of the people that saved my life....I am sorry for what you are going through. You are in my thoughts. i am here if you need it.

 

"good or bad - things will never stay the same"

I have had seizures for 12 yrs now & coming close to the BIG 30...lol ...  I would have my seizures at night when sleeping, no other time. About 5 yrs ago I started having aura’s. I promised that when I had a child that "NO MATTER WHAT" I would take the meds so that it would not have to see them...  5 yrs with a wild child & tired mom w/ no memory, i did find one of the people that saved my life....I am sorry for what you are going through. You are in my thoughts. i am here if you need it.

 

"good or bad - things will never stay the same"

Re: First seizure yesterday at 31 (in my sleep)

Submitted by josiah08 on Fri, 2011-07-29 - 14:48

Hello. I realize you left this comment a while back but I am interested in your specific story. You talk about having aura's. What do you mean by that? And how have you been doing since you psoted your comment? I am a tired mother of 5 and have no memory. Mixing up names and forgetting things all the time! I just had my 5th seizure in 4 years always in my sleep in the wee hours of the morning. I have asked to be tested and unfortunatley can't get in till November! I would so appreciate any other info. you have about yourself and what you've found as I am still in the lonely "searching for any answers" stage! I've been tested twice and they can't find anything wrong.

thanks,

Jenn

Hello. I realize you left this comment a while back but I am interested in your specific story. You talk about having aura's. What do you mean by that? And how have you been doing since you psoted your comment? I am a tired mother of 5 and have no memory. Mixing up names and forgetting things all the time! I just had my 5th seizure in 4 years always in my sleep in the wee hours of the morning. I have asked to be tested and unfortunatley can't get in till November! I would so appreciate any other info. you have about yourself and what you've found as I am still in the lonely "searching for any answers" stage! I've been tested twice and they can't find anything wrong.

thanks,

Jenn

Re: First seizure yesterday at 31 (in my sleep)

Submitted by mtg_gc_08 on Sun, 2008-07-27 - 21:39
UNREAL.  I just logged on to this site as I'm two weeks post-1st seizure.  EXACT same story as yours down to the 2 EMTs and 1 cop standing over me and my confusion.  MRI was clear but my EEG showd irregular brain activity.  In the ER I experienced what could've been 2 seizures: numbness in my arm and wave of nausea.  On Keppra now and fine....just wanting to know why.  No family history.

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