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adult onset epilepsy

Sun, 05/20/2007 - 23:19
Looking to see if there are any other women out there with adult onset epilepsy with the complication of migraines and breakthrough complex partial seizures. My tonic clonic seizures have been controlled for one year now with keppra but my complex partials are breaking through the topiramate. They have not found a cause.

Comments

Hi,

Submitted by Anonymous on Sun, 2014-03-23 - 15:34
Hi, I know how everone feels. I had Myoclonic seizures for over 3 1/2 years. My primary doctor and a neurologist thought I was just stressed! I was hospitalized for four weeks two weeks at a time three years ago. I had an MRI of the brain three times with no abnormalities. I was put on. s seizure meds as a precaution for over three years. I was often told I had puedoseizures! My primary doctor decided to do a third EEG recently at a different hospital. Two previous EEG 's showed nothing. They even called in psychiatrist while I was hospitalized over two years ago. I was so angry. Now the results of two recent EEG's show Myoclonic epilepsy! My primary even tried to hide the diagnosis.A different neuro interpreted the results! Now he has mentioned that I should not be driving with seizures! I just received my master's degree in education with a high gpa. I am also a very effective elementary teacher. I have never had an accident or any points on my driving record. I am a very nice, docile person I am single and live alone. I just bought a new car too. I will not let anyone take my right to drive! I am the product of negligence! My seizures always happen at night, and nobody at work knows I have them except one person I told, because I trust her completely.

Re: adult onset epilepsy

Submitted by jstepv on Sun, 2010-02-28 - 19:27

Hi everyone,

I am 58 just diag last july I had 2 tonic clonic seizures and lost 2 weeks of my memory.  The seizures did not stop with Keppra . As with many the cause is unknown.  Tonight it is hard for my to type that happens.  Right now I am on 1500 mg per day and they are watching to see if I need to add  vampat. I just started to see a Neuro who specializes in E. I work or did in a Peds office and was told if I contnue to have seizeures they would have to move me to a diff job. I did ask what and was asked what would I like to do.  Things went down hill from there and I am on sick leave now and very greatful to not have to work with such wonderful people in the medical field.  HR was more understanding and my new Neuro.  He gave me three months off and added to my Keppra.

My memory is the worst I forget names and what I want to do and the aurras are scarry.  I do have a wonderful husband who drives me around and is great but I do want my life back and a new job. I still want to work. 

Nita

Hi everyone,

I am 58 just diag last july I had 2 tonic clonic seizures and lost 2 weeks of my memory.  The seizures did not stop with Keppra . As with many the cause is unknown.  Tonight it is hard for my to type that happens.  Right now I am on 1500 mg per day and they are watching to see if I need to add  vampat. I just started to see a Neuro who specializes in E. I work or did in a Peds office and was told if I contnue to have seizeures they would have to move me to a diff job. I did ask what and was asked what would I like to do.  Things went down hill from there and I am on sick leave now and very greatful to not have to work with such wonderful people in the medical field.  HR was more understanding and my new Neuro.  He gave me three months off and added to my Keppra.

My memory is the worst I forget names and what I want to do and the aurras are scarry.  I do have a wonderful husband who drives me around and is great but I do want my life back and a new job. I still want to work. 

Nita

Re: adult onset epilepsy

Submitted by pgarden3 on Fri, 2008-06-13 - 00:48

I am also new to this site. I am 39 and developed partial complex seizures from the Left Temporal Lobe about three years ago. I also didn't go to the doctor initially, thinking I was either losing my mind (de ja vu experiences were strange) or having strange anxiety/panic attacks.  After seeing a local Neurologist and being prescribed TriLeptal I decided to seek out an Epilepsy Specialist and now travel 3 hours to Philadelphia to see her.  This was a great decision...she spends an hour or more with me, is aggressive in her diagnosis and testing, and specializes only in Epilepsy as opposed to the variety of neurological conditions. 

I am now on Lamictal which has very few side effects...as far as epilepsy meds are concerned. I have not had any seizures over the past year, however, have concerns now about night time seizures, as I often wake up covered in sweat followed by a full day of a headache and exhaustion. This occurs during the four days before my menstruation. My neurologist has decided to run bloodwork, conduct a 48 hour ambulatory EEG, and do a full Neuro-psych Evaluation.  This will be done this coming week and I'll let everyone know the results.  The bloodwork did come up with significantly low Vitamin D levels, with prescription strength D I have begun to feel less tired...something they do not routinely test for, but my doctor wanted to test for, thank god! who would have known!

I am experiencing memory problems and word retrieval issues. I feel very anxious lately and am completely disorganized (worse than ever since diagnosis).  I'm not sure if these are all connected, but I suspect so. I have always been a quick information processor and very skilled at both writing and speaking orally...as of late, I feel that i struggle in all of these areas and have begun to worry about my future career and just functioning in life.  I would be interested to hear from others with adult onset and temporal lobe epilepsy.  symptoms, problems since beginning meds, etc.  ADD???  My attention stinks...i can be talking to someone and then a thought will fly through my head not related and I can't continue what I was saying or remember what I was going to say. It's horrible and embarrassing and people don't understand. My family is frustrated with my disorganization and inability to retain information or remember specific things.

I am also new to this site. I am 39 and developed partial complex seizures from the Left Temporal Lobe about three years ago. I also didn't go to the doctor initially, thinking I was either losing my mind (de ja vu experiences were strange) or having strange anxiety/panic attacks.  After seeing a local Neurologist and being prescribed TriLeptal I decided to seek out an Epilepsy Specialist and now travel 3 hours to Philadelphia to see her.  This was a great decision...she spends an hour or more with me, is aggressive in her diagnosis and testing, and specializes only in Epilepsy as opposed to the variety of neurological conditions. 

I am now on Lamictal which has very few side effects...as far as epilepsy meds are concerned. I have not had any seizures over the past year, however, have concerns now about night time seizures, as I often wake up covered in sweat followed by a full day of a headache and exhaustion. This occurs during the four days before my menstruation. My neurologist has decided to run bloodwork, conduct a 48 hour ambulatory EEG, and do a full Neuro-psych Evaluation.  This will be done this coming week and I'll let everyone know the results.  The bloodwork did come up with significantly low Vitamin D levels, with prescription strength D I have begun to feel less tired...something they do not routinely test for, but my doctor wanted to test for, thank god! who would have known!

I am experiencing memory problems and word retrieval issues. I feel very anxious lately and am completely disorganized (worse than ever since diagnosis).  I'm not sure if these are all connected, but I suspect so. I have always been a quick information processor and very skilled at both writing and speaking orally...as of late, I feel that i struggle in all of these areas and have begun to worry about my future career and just functioning in life.  I would be interested to hear from others with adult onset and temporal lobe epilepsy.  symptoms, problems since beginning meds, etc.  ADD???  My attention stinks...i can be talking to someone and then a thought will fly through my head not related and I can't continue what I was saying or remember what I was going to say. It's horrible and embarrassing and people don't understand. My family is frustrated with my disorganization and inability to retain information or remember specific things.

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