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adult onset epilepsy

Sun, 05/20/2007 - 23:19
Looking to see if there are any other women out there with adult onset epilepsy with the complication of migraines and breakthrough complex partial seizures. My tonic clonic seizures have been controlled for one year now with keppra but my complex partials are breaking through the topiramate. They have not found a cause.

Comments

Re: adult onset epilepsy

Submitted by skdflf on Thu, 2008-06-12 - 18:33

Hi everyone, new to this site.

 My first grand mal was a "19th birthday present." I guess I was an adult. I have suffered from fairly severe migraines since I was a young teenager. Topamax has recently helped with this - I have been migraine free for about a year and a half! I still do have mild headaches occasionally. It also helps with some of the petit mal seizures, although my left pinky is tingling pretty bad right now making it hard to type... Topamax doesn't control my grand mals - my neurologist tried that. I have been taking carbamazapine since I was diagnosed. Still having grand mals more frequently - about once a month - and am going for a video EEG and they have increased my meds, yea I feel great. 

 I don't really think anyone is alone out there when it comes to epilepsy. It's really hard to believe there's so many of us... each with our own but somehow similar story...

 Lindsay

Hi everyone, new to this site.

 My first grand mal was a "19th birthday present." I guess I was an adult. I have suffered from fairly severe migraines since I was a young teenager. Topamax has recently helped with this - I have been migraine free for about a year and a half! I still do have mild headaches occasionally. It also helps with some of the petit mal seizures, although my left pinky is tingling pretty bad right now making it hard to type... Topamax doesn't control my grand mals - my neurologist tried that. I have been taking carbamazapine since I was diagnosed. Still having grand mals more frequently - about once a month - and am going for a video EEG and they have increased my meds, yea I feel great. 

 I don't really think anyone is alone out there when it comes to epilepsy. It's really hard to believe there's so many of us... each with our own but somehow similar story...

 Lindsay

Re: adult onset epilepsy

Submitted by angels4jm on Thu, 2008-06-12 - 21:40

Hi Ladies I'm new here first time on any site so glad to be here and see you all started crying being so close to people like me soooo many times I feel alone. I was diagnososed in 1998 with temporal lobe and complex parial both hard to control with me at the time taken off work put back on off on off on bla bla bla you know the story family watching and coworkers and oh how about the drivers license when you go the E.R. no more license anyhow so glad to be alive today. Lindsay my doctor put me on Tegratol (carbamazapine) ugly side effects and then I heard about Lamictal 2 years later similar to Tegratol with out some of the stuff in it that makes it ugly that's what a doctor I work with said. and in combination with Topamax they were antiepileptic meds. If interested bring this to your doctor I felt much better and the swelling went away with them.

Ba bye 

JeanMarie

Hi Ladies I'm new here first time on any site so glad to be here and see you all started crying being so close to people like me soooo many times I feel alone. I was diagnososed in 1998 with temporal lobe and complex parial both hard to control with me at the time taken off work put back on off on off on bla bla bla you know the story family watching and coworkers and oh how about the drivers license when you go the E.R. no more license anyhow so glad to be alive today. Lindsay my doctor put me on Tegratol (carbamazapine) ugly side effects and then I heard about Lamictal 2 years later similar to Tegratol with out some of the stuff in it that makes it ugly that's what a doctor I work with said. and in combination with Topamax they were antiepileptic meds. If interested bring this to your doctor I felt much better and the swelling went away with them.

Ba bye 

JeanMarie

Re: adult onset epilepsy

Submitted by rbrotsky on Sat, 2008-10-25 - 18:41
I am 53 and was just diagnosed with TLE a week ago although I realize now that I have been having partial seizures for at least 15 years -- I just didn't now what they were. I also have migraines. My mri was okay but my eeg did show abnormalities. Makes me wonder how many people are walking around with epilepsy who are explaining their symptoms away like I did. Roxie

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