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kepra

Mon, 01/23/2006 - 08:45
does anyone know anything about kepra?

Comments

Re: kepra

Submitted by aluck12 on Wed, 2012-01-11 - 10:46

I have been on keppra since may, and I have crazy moodswings, depression, I gained a lot of weight rapidly, memory loss, it basically was like I went through puberty again. It's been stressful, but I have been seizure free since. Going from having seizures everyday to none at all was a great feeling.

ASHLEY

I have been on keppra since may, and I have crazy moodswings, depression, I gained a lot of weight rapidly, memory loss, it basically was like I went through puberty again. It's been stressful, but I have been seizure free since. Going from having seizures everyday to none at all was a great feeling.

ASHLEY

Re: kepra

Submitted by kbell19 on Fri, 2008-12-12 - 00:51
wow there seems to be a lot of different things goin on with keppra I was on it for about a year and my seizures became more frequent I guess it's different for everyone I'm on lamictal now and it's great the only thing for myself though is instead of being drowsy I have insomnia, but at least I'm not a zombie anymore like I was on keppra and dilantin. Everyone noticed a huge difference in my mood they said I seemed like I was back to my old self and that I was more talkative and aware of things since being on lamictal. My doc was constantly increasing my dosage of keppra because I was still having seizures, but I guess meds are different for everyone some might not work for you and some will you'll know when u get the right one

Re: kepra

Submitted by vickiec51 on Fri, 2008-12-12 - 01:54

gratefulmouse---when I read these comments....I get anxiety attacks....but I go in to see what is happening to you guys.....when I read that people are on 1500mgs in the morning and 2000mgs at night..of keppra...I cant even imagine that....Im 57 yr old woman now...weight ...too much actually....195.....at 5 ft 3.....ok with that in mind...this is what I take....500mgs in the morning....and 500mgs at night.....that is it......for seiezures....now when i had my last seizure..in january of this year.....it as my 3rd ever.....I had one in 1997....at 46 yrs old...and then....one in 2006 at 55 yrs and then one recently in jan like i said...at 57 yrs old...well, the only reason I think i ever had seizures...or had one seizure is because i was trying to get off of an antidepressant called desipramine....I had been on it for 10 yrs before I decided to get off...I should have never been put on it...because  it was actually given to me because I was allergic to...PREMARIN.. an estrogen....I had a hysterectomy and back in those days every woman who had one had to take estrogen and the newest one out was PREMARIN.... well, its made from horses and Im allergic to horses....no one knew and they were convinced I was depressed...so after nearly killing me by making me take premarin...I was put on the antidpressant...and told to stay on forever...well,then I found a female specialist and she took a blood test from me and said I was allergic to PREMARIN...and to get off......well, that should have been all there was to it....I should have been put on an estrogen...not an antidepressant that would  cause me to have seizures later on in life.....I see law suit there...but who do you sue..the government....for not doing their job..that was wilford hall med center on lackland afb....I was put off for 5 months..they would take me into a shrink when I came to tell them i couldnt take what was happening to me....i didnt know I was allergic to the PREMARIN....but they could have if they had tested me and gave a ........!....now after all these years later...I am stuck with this dissability because of the airforce....they try to say I had the precondition...for having seizures...wow...i believe that like a hole in the head......I never had a seizure or any incling of one until iwas 47 and was getting off desipramine.....each time I was treated ....the meds caused me allergic reactions...as far as dilantin....it was a nice drug...but dang it...I broke out in this rash...and I was hot all over with this rash...so I called the hosp and told them and they said ok ..get off now...so they tried me on nuerontin...well, then i really had stomach problems.....so I gave up and took nothing and didnt have a seizure at all...period....but my stomach was a mess so I got back on the antidepressant because I figured that is what caused the stomach problem and I was right ..it was..I was taken off the last bit of it too fast....

so...the second time....I was ...guess what....getting offf desipramine again..wow....that was hard to figure...so my second seizure is when i figured it out..that it was getting off desipramine....so i was put on keppra ..I took the 500mgs in the morning and in the evening....I had stomach problems..blowing up like crazy and sometimes diahrea exploding gas...but ..I didnt have any mood probems at all...I was at the second seizure on half the desiprmaine dosage....so after awhile I figured..shoot why not get off the desipramine while on the keppra ..that would protect me....so....I slowly very slowly did ...and also off the estrogen they could finally put me on....and then slowly after that I got off keppra...I felt kind of dragged out as the keppra kind of pumps me up a little....and then I was ..ok ...wonderful...back to my old self..with no meds...i never took any meds ever...at all until I had my hysterectomy at 37 and was put on the antidepressant....desipramine....well, after getting off all themeds...after about 4-6 weeks I had my last t hird seizure.....well, i didnt take anything righ taway...and didnt see a dr until 4 days later...and didnt have another seizure...who knows....I may have never had another seizure.....

instead I was put back on keppra ...well, this time while getting on keppra by itself I had mood swings like crazy...it was awful but I stuck with it because I remembered when those side affects tappered off and went away.....well, my dr wasnt happy with me just taking 500mgs in the morning and at night..he wanted me on 1000mgs in the morning and at night...so 2000mgs a day....I tried to get up there..adn the side affects were unbelievable.....I mean......I had things happening to my body that was unbelievable....its weird...but..I had severe diahrea..it came out whether I wanted it to or not and my bowel movement ..or water movement was yellow and smelled like baby poop...weird....and then I lost weight...lets see ...25 lbs in abt 3 wks....then i began to not be able to get out of bed....I had muscle wasting and then bone wasting....well, I kept calling the dr and he didnt answer my calls ...so finally my husband took me there and  he put me on lamictal....needless to say...I didnt sleep for 3 weeks....I was ready to kill myself...so I went in and was put on trilepytal....that only worked for 6 hrs then I started having stomach cramps so bad..I was put on xanax...so putting someone on another addicting drug to cover up the side affects of one....

needless to say...what was left of me...after 4 months being bed ridden....I put my foot down and said I want to get back on keppra.....and then i will start my antidepressant again and then maybe get off the keppra...so he said ok fine...well, we moved from there and I saw another nuerologist who said she wouldnt see me if I didnt take the keppra....and...that she never ever makes anyone take more drugs then necessary....and that 1000mgs a day of keppra is fine...she doesnt do that kind of dosing as one size fits all kind of thing..or its not going to work unless  you take this much..or its not theraputic if yo dont take this....so....with all that  happening...getting on and off drugs and then taking keppra again at 500mgs in the morning and 500mgs in the evening...I havent had another seizure...I feel if I were it would have happened....well, nothing is set in stone..my dr here said there is a test they can do..instead of an MRI....THERE IS AN MRS....where they can see where the seizure is coming from or anything at all in the brain that is different even chemicals...wow that is something.....I am on the keppra like i said with the 500mgs twice a day and also going down on my desipramine..I found that taking the so called theraputic dosage of the desipramine made me feel weird...sometimes different medicines enhance each other...so I will I t hink slowly work my way off desipramine...I have done th at before and was on the keppra and felt fine on the keppra by itself...

but know this...some people as myself...getting on or off keppra ..raising the dosage or changing the dosage..does and can cause you to have problems with moods....but...when the body acclimates to it...or gets use to it...that does clear up....Im on it now and dont ahve any problems.....Im not sure w hat Im going to do ...but I may even stay on the 150mgs of desiprmaine.....or get off it depends....but I would like to know how an antidpressant ...getting off it can cause this.......also....I did discover something else...and that is keppra binds to other medicines....so when I got off the desipramine....it had bound to keppra ...which means it was still in my system via the keppra so when i got off keppra it was like still getting off desipramine...as of now I take the two meds 2 hrs apart....I use to take them together ...I didnt know any better....but we shouldnt ahve to be guinea pigs...and we should all be offered the MRS...INSTEAD OF just playing with our lives and sticking us on just any kind of medicine for lengths of time like myself and nearly killing me with the side affects of it...when you get on something you have to take it awhile before the side affects wear off.....but by then its too late and you are sick as a dog.....something is got to give.....i want that MRS OFFERED TO ALL OF US FOR FREE...WE ARE NOT RESPONSIBLE FOR OUR CONDTION AND IN MY CASE THE MILITARY IS RESPONSIBLE FOR MY CONDITION ...BUT I NEVER KNEW THAT UNTIL THIS PAST TWO YRS........I am praying often about this....for me and for you....God bless you all 

 

gratefulmouse---when I read these comments....I get anxiety attacks....but I go in to see what is happening to you guys.....when I read that people are on 1500mgs in the morning and 2000mgs at night..of keppra...I cant even imagine that....Im 57 yr old woman now...weight ...too much actually....195.....at 5 ft 3.....ok with that in mind...this is what I take....500mgs in the morning....and 500mgs at night.....that is it......for seiezures....now when i had my last seizure..in january of this year.....it as my 3rd ever.....I had one in 1997....at 46 yrs old...and then....one in 2006 at 55 yrs and then one recently in jan like i said...at 57 yrs old...well, the only reason I think i ever had seizures...or had one seizure is because i was trying to get off of an antidepressant called desipramine....I had been on it for 10 yrs before I decided to get off...I should have never been put on it...because  it was actually given to me because I was allergic to...PREMARIN.. an estrogen....I had a hysterectomy and back in those days every woman who had one had to take estrogen and the newest one out was PREMARIN.... well, its made from horses and Im allergic to horses....no one knew and they were convinced I was depressed...so after nearly killing me by making me take premarin...I was put on the antidpressant...and told to stay on forever...well,then I found a female specialist and she took a blood test from me and said I was allergic to PREMARIN...and to get off......well, that should have been all there was to it....I should have been put on an estrogen...not an antidepressant that would  cause me to have seizures later on in life.....I see law suit there...but who do you sue..the government....for not doing their job..that was wilford hall med center on lackland afb....I was put off for 5 months..they would take me into a shrink when I came to tell them i couldnt take what was happening to me....i didnt know I was allergic to the PREMARIN....but they could have if they had tested me and gave a ........!....now after all these years later...I am stuck with this dissability because of the airforce....they try to say I had the precondition...for having seizures...wow...i believe that like a hole in the head......I never had a seizure or any incling of one until iwas 47 and was getting off desipramine.....each time I was treated ....the meds caused me allergic reactions...as far as dilantin....it was a nice drug...but dang it...I broke out in this rash...and I was hot all over with this rash...so I called the hosp and told them and they said ok ..get off now...so they tried me on nuerontin...well, then i really had stomach problems.....so I gave up and took nothing and didnt have a seizure at all...period....but my stomach was a mess so I got back on the antidepressant because I figured that is what caused the stomach problem and I was right ..it was..I was taken off the last bit of it too fast....

so...the second time....I was ...guess what....getting offf desipramine again..wow....that was hard to figure...so my second seizure is when i figured it out..that it was getting off desipramine....so i was put on keppra ..I took the 500mgs in the morning and in the evening....I had stomach problems..blowing up like crazy and sometimes diahrea exploding gas...but ..I didnt have any mood probems at all...I was at the second seizure on half the desiprmaine dosage....so after awhile I figured..shoot why not get off the desipramine while on the keppra ..that would protect me....so....I slowly very slowly did ...and also off the estrogen they could finally put me on....and then slowly after that I got off keppra...I felt kind of dragged out as the keppra kind of pumps me up a little....and then I was ..ok ...wonderful...back to my old self..with no meds...i never took any meds ever...at all until I had my hysterectomy at 37 and was put on the antidepressant....desipramine....well, after getting off all themeds...after about 4-6 weeks I had my last t hird seizure.....well, i didnt take anything righ taway...and didnt see a dr until 4 days later...and didnt have another seizure...who knows....I may have never had another seizure.....

instead I was put back on keppra ...well, this time while getting on keppra by itself I had mood swings like crazy...it was awful but I stuck with it because I remembered when those side affects tappered off and went away.....well, my dr wasnt happy with me just taking 500mgs in the morning and at night..he wanted me on 1000mgs in the morning and at night...so 2000mgs a day....I tried to get up there..adn the side affects were unbelievable.....I mean......I had things happening to my body that was unbelievable....its weird...but..I had severe diahrea..it came out whether I wanted it to or not and my bowel movement ..or water movement was yellow and smelled like baby poop...weird....and then I lost weight...lets see ...25 lbs in abt 3 wks....then i began to not be able to get out of bed....I had muscle wasting and then bone wasting....well, I kept calling the dr and he didnt answer my calls ...so finally my husband took me there and  he put me on lamictal....needless to say...I didnt sleep for 3 weeks....I was ready to kill myself...so I went in and was put on trilepytal....that only worked for 6 hrs then I started having stomach cramps so bad..I was put on xanax...so putting someone on another addicting drug to cover up the side affects of one....

needless to say...what was left of me...after 4 months being bed ridden....I put my foot down and said I want to get back on keppra.....and then i will start my antidepressant again and then maybe get off the keppra...so he said ok fine...well, we moved from there and I saw another nuerologist who said she wouldnt see me if I didnt take the keppra....and...that she never ever makes anyone take more drugs then necessary....and that 1000mgs a day of keppra is fine...she doesnt do that kind of dosing as one size fits all kind of thing..or its not going to work unless  you take this much..or its not theraputic if yo dont take this....so....with all that  happening...getting on and off drugs and then taking keppra again at 500mgs in the morning and 500mgs in the evening...I havent had another seizure...I feel if I were it would have happened....well, nothing is set in stone..my dr here said there is a test they can do..instead of an MRI....THERE IS AN MRS....where they can see where the seizure is coming from or anything at all in the brain that is different even chemicals...wow that is something.....I am on the keppra like i said with the 500mgs twice a day and also going down on my desipramine..I found that taking the so called theraputic dosage of the desipramine made me feel weird...sometimes different medicines enhance each other...so I will I t hink slowly work my way off desipramine...I have done th at before and was on the keppra and felt fine on the keppra by itself...

but know this...some people as myself...getting on or off keppra ..raising the dosage or changing the dosage..does and can cause you to have problems with moods....but...when the body acclimates to it...or gets use to it...that does clear up....Im on it now and dont ahve any problems.....Im not sure w hat Im going to do ...but I may even stay on the 150mgs of desiprmaine.....or get off it depends....but I would like to know how an antidpressant ...getting off it can cause this.......also....I did discover something else...and that is keppra binds to other medicines....so when I got off the desipramine....it had bound to keppra ...which means it was still in my system via the keppra so when i got off keppra it was like still getting off desipramine...as of now I take the two meds 2 hrs apart....I use to take them together ...I didnt know any better....but we shouldnt ahve to be guinea pigs...and we should all be offered the MRS...INSTEAD OF just playing with our lives and sticking us on just any kind of medicine for lengths of time like myself and nearly killing me with the side affects of it...when you get on something you have to take it awhile before the side affects wear off.....but by then its too late and you are sick as a dog.....something is got to give.....i want that MRS OFFERED TO ALL OF US FOR FREE...WE ARE NOT RESPONSIBLE FOR OUR CONDTION AND IN MY CASE THE MILITARY IS RESPONSIBLE FOR MY CONDITION ...BUT I NEVER KNEW THAT UNTIL THIS PAST TWO YRS........I am praying often about this....for me and for you....God bless you all 

 

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