Does a seizure disorder = epilepsy?

Re: Does a seizure disorder = epilepsy?

Submitted by patriciamia on Wed, 2008-04-09 - 21:46

I totally understand this. I had my first seizure when I was 26 in 2002 and I have had MRIs, EEGs, CT scans and no one has found anything and until 2005 I had I think maybe 8 tonic clonic seizures, but the neuro never said epilepsy. I used to talk during some of these episodes and really freak my ex-boyfriend out. But I would also convulse and say I was dying and these never lasted never longs and sometimes I even remember shaking before I would blackout. She did put me on 2500 mgs of Depakote. I gained a lot of weight and nothing worked. Until I got out of a super stressful relationship. I have not had another seizure since and I thought it was done. Now it seems they have changed. In the past 2 weeks. I have had two episodes -- not tonic clonic. I don't know what these are. I have a new neuro. I haven't seen him since August. He changed me to Topamax which I am on 400 mgs. He thinks I should come off all seizure med. He doesn't seem to believe I need it. I'm terrified of having another seizure. And in the past two weeks. I have had episodes where I remember feeling sort of strange -- my friends say they are talking to me and then I sort of space out. I remember talking to them. I remember feeling strange and they say I look I am going to faint. And I'm totally unresponsive and staring for a few minutes. That part I don't remember at all. And then I come back and I remember everything okay. I don't know what this is. And I'm scared everything is coming back. I am super stressed out because now I'm close to another break-up and I am supposed to defend my dissertation soon. And I don't even want to admit I have a seizure disorder because I never had them before 2002.