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24 hr eeg what is this like?

Wed, 11/28/2007 - 16:03
what is this 24 hr eeg thing where you walk around with it attached to your head? can someone explain what it was like to wear one. how would it work since the other eeg they always told me to stay still and not move my hands or things like that. how can this get an accurate reading. what if you touch something and it sends an electric shock. would that mess up the test? sometimes that happens to me when I touch a doornob and I get a shock on my hand.

Comments

Re: 24 hr eeg what is this like?

Submitted by jpfulton on Tue, 2008-04-08 - 13:51

I am a 25 year old male. I was diagnosed 10 months ago, 1 week after my first seizure. I did a 36hr eeg (if I remember correctly about the length of time) in early June. I wore mine to work (small business), which is how all of my coworkers found out I have epilepsy. They eeg-tech fashioned a "hat" out of white tape after gluing all of the leads to my head. My "hat" looked like a cone. I wore a hoodie all weekend even though it was summer and the hoodie didn't hide it. It was funny. I had a sense of humor about it. Cuz what the * else was I going to do? A girl I used to hang out with came over before she moved and made out with me while I had it on my head. I mention that for anyone who thinks it is completely going to suck. It can't be that bad if a girl made out with me while I had it on my head. My neoro told me that I have "slow brain waves" on the left side of my brain.

 

 

I am a 25 year old male. I was diagnosed 10 months ago, 1 week after my first seizure. I did a 36hr eeg (if I remember correctly about the length of time) in early June. I wore mine to work (small business), which is how all of my coworkers found out I have epilepsy. They eeg-tech fashioned a "hat" out of white tape after gluing all of the leads to my head. My "hat" looked like a cone. I wore a hoodie all weekend even though it was summer and the hoodie didn't hide it. It was funny. I had a sense of humor about it. Cuz what the * else was I going to do? A girl I used to hang out with came over before she moved and made out with me while I had it on my head. I mention that for anyone who thinks it is completely going to suck. It can't be that bad if a girl made out with me while I had it on my head. My neoro told me that I have "slow brain waves" on the left side of my brain.

 

 

Re: 24 hr eeg what is this like?

Submitted by bex on Tue, 2008-04-08 - 15:32

am pleased this thread has popped up as I have one coming up in may, must remember to take a hoodie! lets hope the weather is not hot. Am not going to go to work with that on my head and hadnt even thought about sleeping! Glad you still have a sense of humour.Best wishes Bex

am pleased this thread has popped up as I have one coming up in may, must remember to take a hoodie! lets hope the weather is not hot. Am not going to go to work with that on my head and hadnt even thought about sleeping! Glad you still have a sense of humour.Best wishes Bex

Re: 24 hr eeg what is this like?

Submitted by Sparkeybird on Fri, 2009-09-25 - 00:37
I know this post was so long ago (came across it on google, lol) but thought I would add in my two cents. 

I just had a 48 hour ambulatory EEG. Walking out of the hospital as well as in with all those wires on my head was embarrassing and my chiropractor asking me to take my hood off was as well. (Though they advice you not to put anything on your head while on the EEG) I had a few partial seizures on the EEG BUT I do not yet know the results as to if it's Epilepsy or something else. I've been having seizures since June and been having them every single day. Usually partials but I have had a load of tonic clonic and been hospitalized many times due to these.   I used to have 2 tonic clonics or more a day, leading them to believe it is Psychogenic Non Epileptic Seizures but after an abornomal EEG in late July at a hospital out of state (I was at Six Flags and had a cluster of seizures on a roller coaster, got admitted to their local hospital and seen by Dr.House) they aren't so sure now.  So, just waiting on the latest EEG results and hoping for some answers. Been on Lamictal and Keppra but my neurologist doesn't want me on medication so he took me off those right away.  I'm currently on Ativan 3 times a day and that helps a litle bit when I remember to take it.

Sleeping with the wires really isn't too horrible. The worst part in my opinion was keeping the diary of everything that I was doing during those two days. Eating, drinking, bathroom breaks, watching TV, waking up, sleeping, ect.   And of course, the pack that you have to carry around your shoulder. It's more uncomfortable than the wires. The glue does suck, but if you have a good EEG tech they'll have it glued good enough that it wont come off at all!  I had no wires come detached during my 48 hour venture with it but had one close to coming detached.. 

When it is done in the hospital (as inpatient) it's called Long Term Epilepsy (Epileptic) monitoring. I have had 2 of those done, one being 16 hours (it aws supposed to be 24, but I had a bad cluster attack of seizures and they ended up dosing me with medications to stop it which messed up the test) and a 24 hour on June 8th, the day after my seizures started.

They're thinking it's frontal lobe seizures, hoping to find out from this last EEG. If not, have to go to a Spec and PET scan!

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