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Please Help Me: New To Epilepsy

Sat, 02/16/2008 - 00:28
Well, My doctor believes that I have epilepsy. I am just starting Topamax. I have these "episodes" in the mornings. I usually get my seizures later that night or the next day..or not even at all.  But the last episode I had was so earth shatteringly scary I had to write about it. I'm 20 and I've just started dealing with all this happening. All of this has landed in my lap at once and I am really freaked out. When I had my episode, which I am wondering if it might be an aura, it starts off like static in my head. It sounds like a shovel scraping lightly on a snowy wet pavement. Then I usually lock myself in the bathroom to catch my breath and tell myself that none of this is real. That I need to get a hold of myself. That is when the worst part comes. I see everything including my body in super fast speed. Like everything is a movie being fast forwarded. And I am trying to keep up with it. Usually there is a small part of my brain that I can control and hear and calm until the episode eventually stops, but this time was the first time it disappeared completely until it eventually went faster and faster until I felt like my brain was going to explode and boil. It was so frightening. I had never experienced anything that scary before. Usually I am scared but not like that. Please help me and tell me what you think. All of this is new to me. I've dealt with passing out and shaking all my life, but now it is getting worse and worse and I am very frightened. Plus with being a senior at university it is very difficult being tired and confused all of the time. Thank you for helping and listening.

Comments

Re: Please Help Me: New To Epilepsy

Submitted by chas1228 on Sat, 2008-02-16 - 02:09
it is a very strange sickness it only gets better  shakes headaches times of blankness memory loss but medice does help

Re: Please Help Me: New To Epilepsy

Submitted by EarthMonkey on Sun, 2008-02-24 - 17:43
One thing I would advise is not going into a bathroom to hide out.  If your seizure was to generalize (turn to tonic clonic) a bathroom is not the place you want to be.  Go lay down in bed or on a couch.

Re: Please Help Me: New To Epilepsy

Submitted by SpiceC on Sat, 2008-04-05 - 02:28

Hi Im a senior in college getting ready for another degree. I started having my seizures when I started highschool so it's almost the same aspect where your life is changing along with your brain. 

I completely understand where you are coming from! feeling helpless and not knowing what to do. One of the last seizures I had I dont know what it was, but all I can remember is being on the floor hoping I wasn't going to drown in my own saliva.

If you still have the auras think of it as a blessing in disguise and get to a spot where your body is safe! if you're completely passing out no warning then you're having a tonic clonic which is what I generally have, and they aren't fun.

It took me 4 meds to get where i am now so think positive. It's trial and error which is the sucky part!

 

You are more then welcome to email me if you want to talk.

candi_angel_2004@hotmail.com

Hi Im a senior in college getting ready for another degree. I started having my seizures when I started highschool so it's almost the same aspect where your life is changing along with your brain. 

I completely understand where you are coming from! feeling helpless and not knowing what to do. One of the last seizures I had I dont know what it was, but all I can remember is being on the floor hoping I wasn't going to drown in my own saliva.

If you still have the auras think of it as a blessing in disguise and get to a spot where your body is safe! if you're completely passing out no warning then you're having a tonic clonic which is what I generally have, and they aren't fun.

It took me 4 meds to get where i am now so think positive. It's trial and error which is the sucky part!

 

You are more then welcome to email me if you want to talk.

candi_angel_2004@hotmail.com

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