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Medication for simple partial seizures

Wed, 03/05/2008 - 19:53

For those of you who currently have, or have in the past had simple partial seizures... what type of medication/treatment worked best for controlling them for you. Also, if you don't mind sharing, what were your seizures like?

I have simple partials in my left hand and arm... weakness, gripping, twitching, full seizing... as well as in my tongue and jaw making it hard to speak breifly (though this is less often than the arm)

I have also had a couple grand mals (in my sleep/nocturnal) about 5 years ago but they are fully under control with my medication.

In the past I took tegretol (almost 4 years) which controlled things well but caused immense weight gain... so I switch to a low dose of topomax. I have been on this for almost 2 years and am back to my "normal weight" but I have a few more simple partials than I used to on tegretol... I also get B12 shots which seem to help but I have to go back once a month for those.

thanks for reading and thanks in advance for your reponses.

 

Comments

Re: Medication for simple partial seizures

Submitted by kcox1228 on Fri, 2009-07-24 - 15:32

So you still get your simple partial seizures as descibed while on dilantin? or has the dilantin fixed the simple partials as well? Your SP seizures sound JUST LIKE mine... I am going to be setting an appointment to see a new neurologist soon to discuss my options since I take topamax and it does a good job over all, controlling my grand mals and my SP's except around certain times in my monthly cycle... 

 

So you still get your simple partial seizures as descibed while on dilantin? or has the dilantin fixed the simple partials as well? Your SP seizures sound JUST LIKE mine... I am going to be setting an appointment to see a new neurologist soon to discuss my options since I take topamax and it does a good job over all, controlling my grand mals and my SP's except around certain times in my monthly cycle... 

 

Re: Medication for simple partial seizures

Submitted by t_bedi on Fri, 2010-06-25 - 13:56

i am sorry for the VERY late reply but if you read this anytime soon, send me an email to tej43@hotmail.com. i just wanna know more about you and if your situation relates to mine. Since yours and mine SPs are the same and you are well controlled, there may be help for me. Currently I am on Clobazam and Dilantin and it is not working well for me. It does periodically but then it is just a disaster.

 I would really like to talk to u and I think we can further benefit from talking to eachother, i just hope you get this.

i am sorry for the VERY late reply but if you read this anytime soon, send me an email to tej43@hotmail.com. i just wanna know more about you and if your situation relates to mine. Since yours and mine SPs are the same and you are well controlled, there may be help for me. Currently I am on Clobazam and Dilantin and it is not working well for me. It does periodically but then it is just a disaster.

 I would really like to talk to u and I think we can further benefit from talking to eachother, i just hope you get this.

Re: Medication for simple partial seizures

Submitted by bex on Fri, 2008-04-04 - 12:43

I have tried a number of meds, epilim, lactimal, keppra and topamax. Topomax appeared to reduce the intesity of seizures and migraines but at 400mg I was experiencing too many side affects and it was affecting my cognitive functioning at work it was particulary difficult. So I took the decision to come off the meds and have been pff them 2 months now but seizures and migraines have worsened. If I go back on anything I will go back on the Topomax at a lower dose maybe 200mg. The Keppra made me feel dreadful emotionally. Lctimal didn't seem to help too much and gave me increased hallucinations. The neuro suggested Tegretol but I don't fancy trying that one. Even now off the Topomax I can have problems speaking, getting the write word out and with spelling and numbers and my memory is much worse now.I saw a neuropsychologist who said it could be the epilepsy or the medication but they wont know until I have been off the meds for 3-6 months. As for getting pains in my head I used to get this funny sensation in my head also on the Topomax. Best wishes to you all. Bex

I have tried a number of meds, epilim, lactimal, keppra and topamax. Topomax appeared to reduce the intesity of seizures and migraines but at 400mg I was experiencing too many side affects and it was affecting my cognitive functioning at work it was particulary difficult. So I took the decision to come off the meds and have been pff them 2 months now but seizures and migraines have worsened. If I go back on anything I will go back on the Topomax at a lower dose maybe 200mg. The Keppra made me feel dreadful emotionally. Lctimal didn't seem to help too much and gave me increased hallucinations. The neuro suggested Tegretol but I don't fancy trying that one. Even now off the Topomax I can have problems speaking, getting the write word out and with spelling and numbers and my memory is much worse now.I saw a neuropsychologist who said it could be the epilepsy or the medication but they wont know until I have been off the meds for 3-6 months. As for getting pains in my head I used to get this funny sensation in my head also on the Topomax. Best wishes to you all. Bex

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