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Ever go from not knowing you're having seizures to being aware you are?
Sun, 03/30/2008 - 19:22Hi!
I'm looking to know if it's possible for seizure types to change from when you're originally diagnosed, and if the way seizures happen can change. Things seem to be getting better for me in some ways, but also really, really strange in others.
Originally, I was diagnosed at age 5 with peti-mal seizures. I took meds until age 12. Well, age 16, I experienced another seizure (a bit more severe, don't know the type), got put back on meds and have been on them ever since - various combinations. I'm now 33 and currently I'm on Topomax 100mg 2 x day, Keppra 500mg 2 x day, and Clobazam 10mg at night.
The strange thing -- until a couple months ago I'd have seizures that would be absence or really minor complex partial seizures once in awhile, and am aware of most of the triggers to manage things. When seizures happened, people around me would pick up on it, I'd be totally out of it, unaware, unresponsive and unable to talk to people in a way they'd understand for about 20 minutes after.
Most recently, I've had a couple seizures where I sorta know I'm having them. Last Saturday, during a seizure my boyfriend was talking to me, I was talking to him, I sorta remember the conversation and I remember saying I have a headache, but I'll be ok, baby, I just want to chill out....my jaw is going to be sore isn't it.
Then, this week at work (I work in a call center), I remember it feeling like the lights were going on and off for a bit. I took a few calls where I broke 'em off (ended them), then I remember talking to a lady who said, it's okay, just relax, I'm probably not interested but I'll talk to you. While going through main part of the seizure I mummbled the sales pitch sorta, and wrote my bf's cell # on a note pad. Then I hung up my phone, walked over to my account manager & said "call this # I can't, tell him spacey says hi"...the rest is sorta hazey, but it's wierd to remember going through the seizure.
Is it possible to have things change in a way where you remember going through seizures? Any one else ever have this happen? Doe this mean I have to increase my meds or change them?
Any input would be appreciated.
Thanks.
Erin / Godiva
Comments
Re: Ever go from not knowing you're having seizures to being awa
Submitted by mom2superkid on Mon, 2008-03-31 - 13:08
I have always known I was having a seizure up until this week. I've had several seizures recently that I've not know about. I wake up sore with my husband hovering over me.
My guess, uneducated as it is, is that our seizures can change with med changes, life changes and time.
Hugs!
I have always known I was having a seizure up until this week. I've had several seizures recently that I've not know about. I wake up sore with my husband hovering over me.
My guess, uneducated as it is, is that our seizures can change with med changes, life changes and time.
Hugs!
Re: Ever go from not knowing you're having seizures to
Submitted by whitetigrus on Tue, 2008-04-01 - 18:39
Yes E does change with age! My epileptologist told me this when I had my first seizure in 15 years in August of 07! It was a Gran mal seizure but totally different from the ones that I had had before! I have a lot of absent seizures, but then again I've always had a problem with those little buggars.
Yes E does change with age! My epileptologist told me this when I had my first seizure in 15 years in August of 07! It was a Gran mal seizure but totally different from the ones that I had had before! I have a lot of absent seizures, but then again I've always had a problem with those little buggars.
Re: Ever go from not knowing you're having seizures to being awa
Submitted by bex on Tue, 2008-04-08 - 16:56
My seizures changed from Grandmal up until I was 20 when I then had no seizures until I was 25 and they were partials. These have increased in intensity nd now I get super sick afterwards. I always just get up from my desk walk away and come back half an hour later as I know I cant communicate properly. The I go home, and some times I feel so strange I have to lay on the floor. Its like I get this feeling and I know that will be the safest place it can't even be the bed. Sometimes people say I look strange or absent. Its not suprising though! My neuro said its common for them to change, so watch this space who knows what may happen next!
My seizures changed from Grandmal up until I was 20 when I then had no seizures until I was 25 and they were partials. These have increased in intensity nd now I get super sick afterwards. I always just get up from my desk walk away and come back half an hour later as I know I cant communicate properly. The I go home, and some times I feel so strange I have to lay on the floor. Its like I get this feeling and I know that will be the safest place it can't even be the bed. Sometimes people say I look strange or absent. Its not suprising though! My neuro said its common for them to change, so watch this space who knows what may happen next!