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Depakote, Behaviors, and personality

Mon, 02/11/2008 - 19:22
My 7 year old daughter was diagnosed with Epilepsy a year ago this coming April.  She has been on Depakote since the beginning.  It seems to be doing very well at controlling the seizures, but she has become a whole different child.  It breaks my heart, and every day seems to get a little bit worse.  She is regressing academicaly, socially, and emotionally.  Her neuro seems to think it is all "behavior issues".  He doesn't want to change the meds but has mentioned it a couple of times.  He seems to think she will be like this no matter what we put her on.  I want my little girl back.  Anybody else struggling with this?

Comments

Re: Depakote, Behaviors, and personality

Submitted by GuidonGirl on Mon, 2008-03-17 - 16:19

Reading these forums always helps me.

I have been diagnosed with TLE for about a year now and have been a slew of medicines. I was just put on Depakote about a month ago. I have felt like crap since the moment I started taking it. I gained 10 pounds (even though I had the stomach flu so bad for two weeks this month and could only drink tea and eat soup) have been moody as all get out and can hardly control my emotions. I can't wait to talk to my neuro and let him know what the heck is going on with me. I have an appoinment this week. I am lucky and got a good doc on the first try and he actually listens and lets me have a say when it comes to meds and what we think is best together.

 Doctors need to know that it is our bodies...we know them best.

 

I recently had a bad seizure and scare and had to be rushed to the ER. My neuro couldn't be reached and this on call doc treated me like a drug adict. I wanted to choke him...why do some docs act as though we chose epilepsy? Like we wanted this for ourselves?  

 Doctors...

Reading these forums always helps me.

I have been diagnosed with TLE for about a year now and have been a slew of medicines. I was just put on Depakote about a month ago. I have felt like crap since the moment I started taking it. I gained 10 pounds (even though I had the stomach flu so bad for two weeks this month and could only drink tea and eat soup) have been moody as all get out and can hardly control my emotions. I can't wait to talk to my neuro and let him know what the heck is going on with me. I have an appoinment this week. I am lucky and got a good doc on the first try and he actually listens and lets me have a say when it comes to meds and what we think is best together.

 Doctors need to know that it is our bodies...we know them best.

 

I recently had a bad seizure and scare and had to be rushed to the ER. My neuro couldn't be reached and this on call doc treated me like a drug adict. I wanted to choke him...why do some docs act as though we chose epilepsy? Like we wanted this for ourselves?  

 Doctors...

Re: Depakote, Behaviors, and personality

Submitted by missid on Mon, 2008-03-10 - 21:57
I came to this website tonight to see if I could find some answers myself on Depakote, my 7 year old daughter just started on this medicine in October and like you we don't even know her anymore.  She usually is the sweetest most considerate little girl, since she has been on the Depakote she is short tempered, hostile, sad, and defiant. I have just started to notice the lack in concentration with her work as well as lack of attention to detail(not her at all!). We too want our little girl back.  We are to a point that I was deciding to call the Neurologist tomorrow and take her off the medication, now I know I am going to do it.

Re: Depakote, Behaviors, and personality

Submitted by nytasha on Mon, 2008-03-10 - 22:30
Good luck and let me know what you find out.  My daughter had another seizure today, we think due to lack of sleep from her first sleepover, but her neuro won't listen to what I think about any of it.  I swear he thinks I am a crazy mom and don't know my little girl at all.  We are in the process of looking for a new Neurologist.

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