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Depakote, Behaviors, and personality

Mon, 02/11/2008 - 19:22
My 7 year old daughter was diagnosed with Epilepsy a year ago this coming April.  She has been on Depakote since the beginning.  It seems to be doing very well at controlling the seizures, but she has become a whole different child.  It breaks my heart, and every day seems to get a little bit worse.  She is regressing academicaly, socially, and emotionally.  Her neuro seems to think it is all "behavior issues".  He doesn't want to change the meds but has mentioned it a couple of times.  He seems to think she will be like this no matter what we put her on.  I want my little girl back.  Anybody else struggling with this?

Comments

Re: Depakote, Behaviors, and personality

Submitted by Dragool on Tue, 2008-02-19 - 15:32

I got on Depakote when I was 11.  It's hard to tell if it changed my behavior.  I was a preteen and was very shy. 

The Depakote made me insanely tired.  When I got off of it at 15, it felt like I was waking up for the first time in four years.

My seizures came back, and they put me back on Depakote.  Now I'm in college and being on Depakote I had to drop three classes because I was so tired.  Now I've switched to Lamictal which does not make me tired at all.  It has side effects too of course.  But I'm not tired all the time anymore.

Talking with her doctor would be a good idea.  If you don't like what the medication is doing to her, you can see if any other medication works.  Everybody reacts differently to them.

I got on Depakote when I was 11.  It's hard to tell if it changed my behavior.  I was a preteen and was very shy. 

The Depakote made me insanely tired.  When I got off of it at 15, it felt like I was waking up for the first time in four years.

My seizures came back, and they put me back on Depakote.  Now I'm in college and being on Depakote I had to drop three classes because I was so tired.  Now I've switched to Lamictal which does not make me tired at all.  It has side effects too of course.  But I'm not tired all the time anymore.

Talking with her doctor would be a good idea.  If you don't like what the medication is doing to her, you can see if any other medication works.  Everybody reacts differently to them.

Re: Depakote, Behaviors, and personality

Submitted by sophiesmom on Fri, 2008-03-07 - 11:21
I'm just wondering a few things, if anyone would care to respond.  There has been talk about switching me to Depakote, and I'm truly nervous after reading these postings!  My biggest problems with side effects have been migraine (already a problem since seizures) and personality changes (very hostile, sometimes I feel like I'm going crazy).  Has anyone had a positive experience with this drug??  And Dragool, you mentioned switching to Lamictal and its side effects - may I ask what you are experiencing?  I've read that can be helpful for my type of E and would be willing to try it (I think).  Thanks!

Re: Depakote, Behaviors, and personality

Submitted by Dragool on Fri, 2008-03-07 - 15:06

With Lamictal, I've been experiencing loads of rashes.  They turn into huge welts.  I got onto Lamictal Jan. 07 and now I hardly ever get the rashes and when I do, they're not that bad at all anymore.  It just took my body a while to get used to them.  The other side effect I get is twitches.  They occur in my arms, legs, torso even my neck sometimes.  My neuro said they were just from stress, but I am on anti-anxiety/depressants and I had never had "stressful twitches" before in my life.  I keep thinking they're myoclonic seizures and now my neuro finally believes me.  They're like muscle contractions.  You don't know when they're coming and of course you can't stop them.  They're usually pretty minor, but sometimes they make me jump.  Once, I was lying on my side watching TV and my entire torso contracted and my body ended up jumping back about a foot.  I'm going to talk to my other neuro in a couple weeks (I'm ridiculously excited for this!).

Overall, I'm much happier with Lamictal because I am not tired at all.  The doctors prescribed me 1000mg/day of Depakote at first and that overdosed me.  I would sleep all day except when I had to get up to eat or go to classes.  They reduced me to 500mg/day but I still had to take naps every day.  I am really pleased with Lamictal, I just still have a few kinks to work out with it.

With Lamictal, I've been experiencing loads of rashes.  They turn into huge welts.  I got onto Lamictal Jan. 07 and now I hardly ever get the rashes and when I do, they're not that bad at all anymore.  It just took my body a while to get used to them.  The other side effect I get is twitches.  They occur in my arms, legs, torso even my neck sometimes.  My neuro said they were just from stress, but I am on anti-anxiety/depressants and I had never had "stressful twitches" before in my life.  I keep thinking they're myoclonic seizures and now my neuro finally believes me.  They're like muscle contractions.  You don't know when they're coming and of course you can't stop them.  They're usually pretty minor, but sometimes they make me jump.  Once, I was lying on my side watching TV and my entire torso contracted and my body ended up jumping back about a foot.  I'm going to talk to my other neuro in a couple weeks (I'm ridiculously excited for this!).

Overall, I'm much happier with Lamictal because I am not tired at all.  The doctors prescribed me 1000mg/day of Depakote at first and that overdosed me.  I would sleep all day except when I had to get up to eat or go to classes.  They reduced me to 500mg/day but I still had to take naps every day.  I am really pleased with Lamictal, I just still have a few kinks to work out with it.

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