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epilepsy and speech - what do you do for school??

Sun, 03/02/2008 - 07:40

my daughter's speech is GREATLY affected by her epilepsy (due to where the seizures are taking place in her brain.)  we have gone to ASL with her although she is still in speech once a week.  this has greatly helped her communicate - praise God! 

we are looking toward pre-school years now and are not sure where she fits school wise.  her seizures are not under control and although she uses ASL - she hears and understands things perfectly.

anyone else in this situation?  what have you done school-wise?  we will not be using the computer thing that would "speak" for her.

tia!

 

 

Comments

Re: epilepsy and speech - what do you do for school??

Submitted by toriandbilly on Sun, 2008-03-02 - 17:22

I have only been diagnosed for a year but have had speech arrests for several.  They are a little better in that I don´t stutter very rapidly anymore thankfully. (Think people thought I was crazy or messing about.)

My big seizures are under control but I still have a kind of strangled feeling and am unable to speak, this is only occasionally compared with b4, maybe 5 times a week for maybe only a couple of seconds at a time.

As a teacher it is a problem but usually I can kind of feel it happening.  Have patience and try not to be too anxious as your girl will pick up on it, the more anxious I get the worse it gets.

I have only been diagnosed for a year but have had speech arrests for several.  They are a little better in that I don´t stutter very rapidly anymore thankfully. (Think people thought I was crazy or messing about.)

My big seizures are under control but I still have a kind of strangled feeling and am unable to speak, this is only occasionally compared with b4, maybe 5 times a week for maybe only a couple of seconds at a time.

As a teacher it is a problem but usually I can kind of feel it happening.  Have patience and try not to be too anxious as your girl will pick up on it, the more anxious I get the worse it gets.

Re: epilepsy and speech - what do you do for school??

Submitted by starchild262002 on Tue, 2008-03-11 - 14:02
My daughter is in the first grade now, but was diagnosed with epilepsy when she was in preschool. She has had speech and learning problems. She was diagnosed with left frontal with secondary genrealized, she has been seizure free since 10/07/06, due to the meds she is on. She is on Trilepital. One of the major reasons she had speech problems were due to a mucus seal on the bottom of her tongue. We had that removed, and her speech improved, but with some little problems still. She has been moved to remedial classes for reading and gets tutoring for two hours two days a week.

Re: epilepsy and speech - what do you do for school??

Submitted by starchild262002 on Tue, 2008-03-11 - 14:16
Actually sometims after my daughter had a seizure she would not talk. She would move her head to yes an no, but could not speak for sometimes up to five hours. One time we were in the emergency room, and had to wait for her to talk before we were released. After talking ot her doctor, she said it is due to the lac of oxygen to her brain during her seizures. Her seizures always last for longer than five minutes. We have to give her disastat through rectal to stop them.

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