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Please Help Me: New To Epilepsy

Sat, 02/16/2008 - 00:28
Well, My doctor believes that I have epilepsy. I am just starting Topamax. I have these "episodes" in the mornings. I usually get my seizures later that night or the next day..or not even at all.  But the last episode I had was so earth shatteringly scary I had to write about it. I'm 20 and I've just started dealing with all this happening. All of this has landed in my lap at once and I am really freaked out. When I had my episode, which I am wondering if it might be an aura, it starts off like static in my head. It sounds like a shovel scraping lightly on a snowy wet pavement. Then I usually lock myself in the bathroom to catch my breath and tell myself that none of this is real. That I need to get a hold of myself. That is when the worst part comes. I see everything including my body in super fast speed. Like everything is a movie being fast forwarded. And I am trying to keep up with it. Usually there is a small part of my brain that I can control and hear and calm until the episode eventually stops, but this time was the first time it disappeared completely until it eventually went faster and faster until I felt like my brain was going to explode and boil. It was so frightening. I had never experienced anything that scary before. Usually I am scared but not like that. Please help me and tell me what you think. All of this is new to me. I've dealt with passing out and shaking all my life, but now it is getting worse and worse and I am very frightened. Plus with being a senior at university it is very difficult being tired and confused all of the time. Thank you for helping and listening.

Comments

Re: Please Help Me: New To Epilepsy

Submitted by pbugbee on Sun, 2008-02-17 - 09:37

I have been with Epilepsy for 28 years and let me start off by saying that Topamax is a weird AED. I did some research on that after a couple years on 200mg twice a day and the side effects of it with little help and found that it drains your blood of anything else you are taking except for one or two different prescriptions. If you go searching google for information on your Anti Epileptic Drug and Epilepsy itself specifically the type your Dr thinks you have to get more information you will more likely feel more comfort due to knowing more about yourself and what you maybe facing and needing to do instead of having to trust your Dr to find it all out. You can print it and take it to him or even be able to do it yourself if approved correctly and find a very global facility to help yourself with this to end it quickly if possible. I wish you nothing but the best of comfort, luck and success with the most information you can find (use the Scholar tab on google too)  and God be with you in all our hearts and prayers with anything you may need as that is what we are here for.

Paul J. Bugbee "you always have a friend" just gimme a shout

I have been with Epilepsy for 28 years and let me start off by saying that Topamax is a weird AED. I did some research on that after a couple years on 200mg twice a day and the side effects of it with little help and found that it drains your blood of anything else you are taking except for one or two different prescriptions. If you go searching google for information on your Anti Epileptic Drug and Epilepsy itself specifically the type your Dr thinks you have to get more information you will more likely feel more comfort due to knowing more about yourself and what you maybe facing and needing to do instead of having to trust your Dr to find it all out. You can print it and take it to him or even be able to do it yourself if approved correctly and find a very global facility to help yourself with this to end it quickly if possible. I wish you nothing but the best of comfort, luck and success with the most information you can find (use the Scholar tab on google too)  and God be with you in all our hearts and prayers with anything you may need as that is what we are here for.

Paul J. Bugbee "you always have a friend" just gimme a shout

Re: Please Help Me: New To Epilepsy

Submitted by just sam on Sun, 2008-02-17 - 13:24
I guess the real question is...did these episodes start before or after beginning the Topamax?

Re: Please Help Me: New To Epilepsy

Submitted by Bigkev on Sat, 2008-02-23 - 19:20

I can understand where you're coming from. I was 19 when I first started having seizures. I have been diagnosed with complex partial seizures. I'm 21 now and a junior in college. It took a couple of tries to get the meds right, but eventually I ended up on Lamictal, and I've been doing great when I take care of myself. Keep talking to your doctor about what's going on so if any changes need to be made. Once you find the right medicine and the right dose things get better. It took me 3 drugs to get there, but things are a lot better now. Just hang in there. 

If you want someone to talk to, feel free to e-mail me at Sandiesmanagerman@yahoo.com

Kevin

I can understand where you're coming from. I was 19 when I first started having seizures. I have been diagnosed with complex partial seizures. I'm 21 now and a junior in college. It took a couple of tries to get the meds right, but eventually I ended up on Lamictal, and I've been doing great when I take care of myself. Keep talking to your doctor about what's going on so if any changes need to be made. Once you find the right medicine and the right dose things get better. It took me 3 drugs to get there, but things are a lot better now. Just hang in there. 

If you want someone to talk to, feel free to e-mail me at Sandiesmanagerman@yahoo.com

Kevin

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