I had my first seizure last week. I am 28. It was a tonic clonic seizure, and it was unquestionably one of the most awful things I've ever experienced in my life. I've had two babies, a kidney infection, and been in a roll over car accident, and by far the seizure has been the most painful in so many ways.
I was asleep last Thursday, and I guess I began having a seizure and started making gasping sounds in bed. My husband asid I wouldn't respond, so he called an ambulance. I woke up for a few seconds in the ambulance, and a paramedic kept telling me to calm down, that I had had a seizure, and I was going to be okay. I lost consciousness again, and finally woke up for good in the ER.
Immediately I realized my back was in serious pain. I couldn't breathe in very deeply without shooting pain, and still a week later this hasn't improved. Moving at all sends fire through my entire back. I am back at work and trying to do everything just like I used to do, but this pain just doesn't go away. EVER. I really think I must have pulled a muscle or something back there is not right, but I don't know what to do. I don't know what is normal to do after a seizure. I feel like I really need a good masseuse or chiropractor (or both?). What have you done? Has anyone ever tried physical therapy? It seems drastic to me to see a physical therapist, but my life is so busy and having two small children is crazy, and I NEED my body to work exceptionally. I don't want to just 'get by' until something else happens, I want to feel great. I want this pain to go away.
I always knew seizures could be part of my life. My dad started having grand mal seizures when he was 34. I get migraines and have other small health promblems just like him, so this is not really a surprise. But in other ways this is a major shock to me. I guess I never really prepared myself mentally for a seizure. I can't even put into words how odd I feel. Like I am someone else now, and I don't know if I'll ever feel like my old self again. Maybe this is just temporary. We'll see in a couple weeks.
I have started doing all the tests. CT, MRI, sleep deprived EEG, and in 2 weeks I'll do the ambulatory EEG. Then in 1 month I'll finally meet with the doctor. What happens then? Will they put me on medication after just 1 seizure? What if I refuse to take medication? My dad hated his meds, but he still took them and they are slowly killing him. I don't want any part of that.
I guess it's just a waiting game. A really scary game.