So I want to know everyones opinion on my concept for the redesign of the epilepsy helmet. As you will notice it doesn't even look like a helmet, but imagine if this was what you could wear instead of the annoyin helmet.Look at the file called 16 at the...
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UPDATED: Sat, 02/21/2009 - 4:06pm
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megfrito
Epilepsy Helmet
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Does anyone have experience wearing a helmet due to drop seizures? I'm trying to do some reach on the helmets and would find it really helpful to hear other people's opinions and experiences. If you could be this person I'd love to talk to you. Leave me a message or something, thanks.
By megfrito at Sat, 02/21/2009 - 4:06pm | 41 views | 6 comments
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Hi,
My name is Debbie and my daughter suffers from drop and T/C seizures. She's recovering from a subdural hematoma due to a drop attack. She needs to wear a helmet whenever she's standing, but she's a junior in high school and doesn't want to wear one. So, she's restricted to a wheel chair in school until the injury is fully healed. I am interested in finding a helmet cover that would look like a hat. I have looked all over the internet and can't find anything that would be inconspicuous. They have stretch covers on the Danmar site but they just look like you are trying to cover a helmet. I quess you would really have to engineer a different helmet first and then cover it with hat material. I think what you are doing is great! People like you really do make a difference. Your design is very high tech but my nerves are so bad from watching my daughter get hurt that I think I need to see coverage. That's not to say that you design wouldn't work but I always err on the side of safety. If you know of any sites that offer this option, please let me know. Or maybe you could come up with your own design. I wish you luck in your venture. I am really impressed.
God Bless,
Debbie
Nicki007 Special Agent for Living with Epilepsy
I use to have to wear one many years ago.When I first started wearing it not only did I feel like an alien but I got treated like one to. Then I came across a theripist who taught me to read my body . He wasn't experienced in epilepsy but a zen explorer. He taught me to examine every emotion and physical change that happened before my seizure .I thought to myself thats impossible to do but I gave it a try .I carried a pocket notepad with me and after each seizure try to write down what i was doing and how I felt soon I noticed a pattern now today they call it an aura but when I did it I was 10 and now I am 38. Within a year I got so good at it I could sit down before a seizure or let some one know what was going to happen and I didn't have to wear the helmet any more .How long have you had epilepsy? We will talk again soon. Hang in !
hey, check out my latest blog post. its my concept for a new helmet, tell me what u think.
I've had epilepsy basically since I was born. At the age of 9 doctors found a brain tumor, it was successfully removed. However, I still have epilepsy but not anywhere near as badly as it was. I don't personally need a helmet but I am doing reach on helmets for those who do need them. I'm just trying to figure out the worst part of wearing the helmets. So far I've defined the social stigma of it being the worst part. Its really had to come up with a solution to that problem. Would you be willing to answer some questions about your own experience wearing the helmet? I just think its a complete bummer that completely "normal" (bad word i know) people have epilepsy and if you put them in a helmet its like suddenly they aren't "normal" anymore. I just want to find some kind of solution to that. I know it won't be perfect but I feel anything could be an improvement over existing helmets, they are not pretty by any means.
Nicki007 Special Agent for Living with Epilepsy
Hey Megfrito,
Why don't you and I get together and reinvent the helmet.
How would you suggest we do this? Email back and forth or do you like instant messaging? I'd be really interested in hearing your ideas. I can share with you the current ideas I am developing/considering.