Well it's been a long time since I've done a blog... I've just spent a while going through and reading everyone else's blogs/posts and what not.... and I have to say I am utterly disappointed with what this site has become. Granted most of you probably don't think of me as a regular but I have been on this site well over a year now and from what it was then to now, it's just down right depressing. I was seeing some posts/blogs with people begging for someone to reach out and not a SINGLE person has said anything to most of them. There are some with 20 or more views, even one with some 200 some odd views and not one response, not even a welcome to the site or I hope you find what you are looking for... nothing. When I first started coming to this site, I was almost certain that anytime I had a question, concern or just wanted a friendly person to chat with or understand I would find it here. I would get almost bombarded with responses to almost every single thing that I posted, even if the person couldn't relate they would still respond... What has happened here? I know they did a lot of changes to the site and a lot of people didn't adjust well but the need is still here for the support, where has all of the support gone? And ROCKNROLL, I am coming to respond to all of yours as soon as I am done, I've read yours and you asking for someone to understand, to reach out.... and I am sorry that I didn't see them sooner. And Crashllama, don't stop blogging... some of us enjoy reading what you write and I will make an effort to comment everyone that I see... There are a few of you who have been so kind to me and have helped me so much, I just can't imagine that this site has gone to this now... where people are begging for someone, anyone to answer them.... I've also noticed an increase in those with these stories, pitty party stories, very elaborate obvious lies and it just disgusts me to think that people are coming on here to gain sympathy for something that almost everyone on here has or they know someone who has, and these people have to lie and be deceitful. One in particular is just over the top and I hope that no one will ever be affected their their lies...

Ok off of my soap box...

Not a whole lot going on in these neck of the woods. Rainy, rainy, rainy... flooding, flooding, flooding... the usual midwest weather... Kaitlyn is still having seizures, we are on her 8th medication with a combination of high doses of B6. Waiting for more of her genetic test to come back and see if they find anything that will explain anything else... We are getting ready to start Felbatol in the a few days or week or so.... not looking forward to that but I guess whatever it takes to get to the point of her being seizure free.... well not really whatever it takes, we are sort of getting to the point of what we do for our child vs. what we do to our child and we are teetering awful close to what we are doing to our child...

Chris is still having medical problems. He's undergone some genetic testing as well, we should know more in 2 weeks or so... *fingers crossed for answers* He's had two seizures, stronger, more noticeable seizures.... And I am almost certain he had his third seizure a week ago on the way to the ER for a high fever...

Then we go onto me... ugh, ugh, ugh... I've been getting these weird episodes for weeks, months..... and I finally went the doctor... had a CT done, had to wear a heart monitor (still waiting on those results) and now I get to go in for an EEG now... they are almost certain what I am experiencing are Auras/Seizures... go figure right! There is the missing link.... the one we have searched for, for over a year.... we've found it.... Me. I'm waiting to get into the neurologist but they can't see me until August 5th, so I am searching for another neurologist to go to.... so MorningGlory if your reading this, can you email me and tell me who it is that you see.... I need one that can see me sooner than later please!!

Well there is our life in a nutshell. It's a roller coaster for sure. If it wasn't for the few of you on here that I talk to on a regular basis I don't think I could get through all of this.... so thank you Richie, Maggie, Joan, MG and Sylvia!! Lots of love and HUGS to all of you!!