Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYHey everyone! So it was brought to my attention that I have vanished without a trace... I am still here! Thanks for wondering about me! A lot has been going on here lately so catch up all of those who follow Kaitlyn and all of us...
Kaitlyn is still medication free right now, she is doing alright. We have a lot of bad days and I just feel so helpless with life right now, the way it is. She is very unhappy and constantly screaming, fighting, crying, not sleeping, not eating... it's a real battle here. I don't know what it is. I hate to assume that it is seizure related but what the hell happened to my little angel and when did she change into this angry little girl? I don't understand it. I am to my wits end with it all. I don't believe in spanking children or yelling at children (scolding yes, yelling no) and I swear all I do now a days is yell. I just get so mad so fast... ugh! I am exhausted now. She is still having a lot of spacing out and stiffening...
Chris is doing good, he is eating and gaining weight sort of. Still having the space out episodes, some jerking and back arching still... still no answers about him. He is finally talking, which I am grateful for. Now if only we can get on a routine and I can get my sanity back.
My hubby bought a race car, he is going to start to race a hobby stock on circle dirt track. I am really excited for race season now so we get to spend time together. Plus I am getting into the spirit with the shirts, stickers and all.
I have been having some weird things going on lately, getting really freaked out but I don't want to go to the doctor because I am terrified of what they are going to say. I get these headaches, like migraines... they start real subtle or I get this sick feeling in my stomach, my ears start to ring, my eyes go blurry, then I can't see or hear right... and then bam... full on migraine... and I feel like someone just ran me over. I have stopped driving now because I don't feel safe. When I drive, I can't see out of the sides of my eyes and I feel like I am not there, I feel like I am missing half of the picture and like I am going to run someone over. Then I feel like I am watching life go by. I have to super concentrate on everything, and it's just really hard to explain. I get this feeling in my stomach before it starts though, like anxiety times a million because I actually feel sick with it. I don't know. I get them at least once a day... ugh......
Well that's life... we are here, we are living for the moment... it's crazy and stressful but it's life.
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Add your comments
emily!!!!
so good of you to write. lol. yes i have been worried about all of you. the space outs are abscence siezures, which maybe you can ask your doc about a med i was on my whole childhood with no side effects, zarontin, cheap, been around for ever, obviusly if i took it when i was a kid,lol, but works great on abscence siezures and then no more space outs. just a suggestion. your migraines are classic, and i am sure stress related. you have been through so much and still going thru so much, nausea is very normal with migraines, talk to your doc about what to do for them. also good luck with nic and his racing, did you tell him i said to name the car after you? take care and my email is always open sweetie! kiss my little angels for me!
you and ypur family are always in my prayers. love, sylvia