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mamajess
mamajess

how to go from "why me?" to "why not me?"

Well, Darren has been seizure-free since starting the keppra. He reached the therapeutic dose of keppra and is down completing the descent from the clobazam. Neuro kept him on the Clobazam while he upped the keppra and now we are at 1000 mg of keppra/day and 10 mg of clobazam/day. End of the month we will be flying solo with Keppra and praying that it holds him. He has been tired as the meds go down...When we were adding keppra and upping it he would be bone weary for 2 days. As we are going down with the clobazam he is tired and weapy for about a week until he stabilizes. I wish i wish i wish... these words keep begging to come out. There are a few things in life i would like to change and my sons' struggle is one of them. I read about a young teen talking about his diabetes and he said " I kept asking "why me!?" and then i finally realized "Why NOT me?" I thought that was an interresting rind of philosophy for a 14 year old to chew on. I guess i want to know too... why is it Darren?...but i can't say "why NOT him" It seems so careless when he is my child....my questions are more like why is it not me? I do however want to make HIM the kind of young man that asks "why not me"...It's a good humble, prideless question. How can i nurture good fruit in his character from this plant of sorrow and fatigue. I know that God is already doing his work in Darren. It is a strange thing to feel like your child is learning a hard life lesson that you didn't plan for him to learn this early. My daughter has a verse up in her room that says "Carry each other's burdens, and in this way you will fulfill the law of Christ." Galatians 6:2... Maybe i don't have to have all the answers for him... he's not even questioning... i am! I just need to love him... ache when he aches...that's not so hard!

By mamajess at Mon, 09/10/2007 - 8:06pm | 77 views | 1 comments
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you know none of us will ever know why it is the way it is. my mom felt it was her fault somehow that i had epilepsy. i was diagnosed at 6, she went to neuro appts numerous times with me as adult, i was married had 3 kids but she wantd to go so i let her. they all asked her the same questions and told her the same thing, you did nothing, its not your fault somewhere in the genes is where it came from, why she got it and no one else, no one knows. it actualy came from my dads side after lots of digging. but she being a mom, always blamed herself, cuz she had 3 healthy kids. i told her over and over mom youve got to stop blaming yourself, she said it was her fault because of the gene pool i came out of, i told her i would be me if i was from another gene pool mom, and i love you so dont worry any more. but i know she did. she was the worlds best mom, and in a little less than a month it will be qne year since she passed through heavens gates, i always told her epilepsy was my cross to bare. so to you and all moms out there, stay strong in faith, and teac your children faith for it will give them comfort over the years, more than you will ever know. i read footprints in the sand when ever i get low. which i was this weekend, but it took me awhile to get past the after affects of so many seizures. now that i am think rationaly again, God has carried me through another bad time.
your kids are adorable! you are truly blessed!

banffgirl

banffgirl