So we have had 2 of the worst weeks with the kids this past 2 weeks. Last week starting on Monday Kaitlyn started running a fever, I was constantly hoovering over her to assure that she wouldn't have a seizure and if she did I would be right there. It continued to get worse, and then Christopher got whatever it is that she has too. So now we had 2 kids with fevers hitting 103.5 and we can't figure out why. If that wasn't bad enough, on the way to go and see the kids peditrician the new neurologist calls (this is on Tuesday evening that they call) and tells us that the appointment for Thursday doesn't work for them!! We had already booked out hotel for the night and finalized our plans. So we either had to go on Wednesday or wait for 3 weeks. So we decided to go ahead and go on Wednesday even though the kids are sick. So we rush home, pack up, clean and get ready. The kids fevers continue to rise and they are absolutley miserable. Kaitlyn woke up at 3:00 am screaming and her fever had soared back up to 104.5, the doctors say not to worry, just viral, continue Motrin and Tylenol. She won't eat or drink, she hasn't eaten since Monday. We are crazy for thinking about taking a road trip with her like this. We decided that we have to, we had waited long enough and if she was going to have a seizure from this, I would like to have talked to her new doctor so I knew what she had to say about it all. We left home at 6:00 am and drove the 7 1/2 hr drive to St Louis, the whole time the kids are screaming, running fevers, coughing and just upset. We finally get to St Louis and Kaitlyn has a seizure in the car, a seizure like I have never seen her have. Her eyes are half open, and she just keeps making this weird noise, 5 minutes later it's over and she is back asleep!! We were 3 blocks from the neurologist. So we go into the appointment and the minute the doctor walks in Christopher starts to cry and scream so Nic takes him out for a walk so I can to the doctor without being distracted by Christopher and get all of the answers that I need. Well that throws Kaitlyn into a whirlwind of anger and is upset that her dad left, so she is screaming and crying!! I can't even say 2 words to the doctor, and she just looks pissed off. I guess I would be too, but Kaitlyn just had a seizure and is sick, what do you expect? So after I tracked down Nic and the neurologist took Kaitlyn on walk, Kaitlyn calmed down and I could atleast ask why medicate? And what kind. So they put her on Keppra, in hopes that would help with her behaviors and help to assure that there would be no more seizures. I asked what kind of seizures is it that she is having. Complex partials and simple partials. She says that she thinks its genetic because of the information from the previous neuro, I'm not sure what that information is. I asked about genetic testing and she said that would tell us nothing. So now I am worried that our son is going to have this too. I don't know. I should be happy, I just got the information that I drove 7 1/2 hrs away for. But I'm not, I'm crushed!! Someone finally diagnosed her with Epilepsy. The doctor before this one, never said what it was, just seizures. The doctor never told us what kind of seizures. To hear the words, I can't even describe it. It just broke my heart, No more denying it. So we leave the doctors office with some information and the prescription for the Keppra and Diastat. We decided that we are miserable and want to go home, so we make the 7 1/2 hr drive back home, all though this time it was longer. We had to stop more to make us wake up and be more energized. We had been up since 3:00 am with Kaitlyn, and now driving all this way, and just everything... it was draining!! We got home around 2:00 am. On Thursday both of the kids seemed worse so we took them into the doctor again, they gave us some medicine and we forgot to fill the Keppra. So we got the Keppra on Friday morning, I gave it to Kaitlyn at 10:00 AM. Before I gave her the medicine, she was in a better mood than she had been and was trying to eat some food finally. Then, at 10:15 she stopped eating, drinking, walking, talking... We thought maybe she was just tired from the medicine and being sick, so she took a nap. About 2 later, she woke up and we tried to get her to talk but she wouldn't, she was just in a daze. When she jumped down to walk somewhere she just stumbled all around. We just carried her around with us for awhile thinking she was just tired and then clumsy. This went on all morning and afternoon. I called the neurologist and told them what she was doing, and they said this wasn't from the Keppra but to discontinue the Keppra until she was over the cold. By late afternoon, Kaitlyn couldn't even stay awake for them 5 minutes at a time, and when she did talk finally she was confused, she called her brother a cat and didn't know who I was or who her father was. We called the peditrician and they said to take her to the ER, so we took her to the ER and they told us that they didn't know what was causing it but that it had to be normal for someone with a cold!! Christopher has the same cold and wasn't like this. She hadn't peed all day, wouldn't eat, drink, talk or walk and this was all normal for a cold. So we left the ER with no information. We started to give her fluids by using a syringe, every 5 minutes we would give her a syringe full of water or juice. She starte to perk up a little bit around 10:30 PM but still not normal. 24 hrs after that dose of Keppra, she is almost her normal self, still sleepy and confused and still hasn't had a wet diaper in over 24 hrs so I call the doctor again, we took her to her primary care doctor and they did blood work. She wad dehydrated but she didn't have to be hospitalized as long as we got her to have 2 wet diapers that day. So we waited, and to our surprise she had 2 more wet diapers so we were fine. The next day, 48 hrs from the dose of the Keppra, she was back to her normal self. She started to eat and drink like normal, talked like normal, and was interested in the world around her again. She still has this cold and is grouchy, it's been over a week now!! I don't know what this is! They want us to start the Keppra again in week or so, I don't know if we want to. I am scared to go through that again. I wonder what the lesser of the 2 evils are, to medicate and not have seizures but have the side effects from the medicines or have the seizures and just deal with the ones that she has. I don't know. She has had more absence seizures this week.