So I am very relieved that we got the refferal to get the second opinion for Kaitlyn, but now our neurologist here still hasn't faxed the paperwork to the new one in St. Louis. I don't know why they would take so long, they just act as if everything that is going on with Kaitlyn is nothing. I am glad that we are getting another doctor to deal with Kaitlyn, and the fact that they are an E Specialist makes me feel so much better.

Ever since Kaitlyn had her first seizure my mind has been racing with all of the what if's and the whys, and I have been feeling like I am failing her. Now that we have this option to see an E Specialist I feel like atleast I know that I am trying my hardest to get her the best possible care. I just want to get to the bottom of it, even if it doesn't stop the seizures completely, we need to know what we are dealing with.

I am trying to keep a diary of all of her seizures or odd behaviors but it's so hard to pick out what is normal. For one, she is my first child, so everything that we are going through is all new, and we are new to the world of Epilepsy so I don't know what all seizures look like. It's so hard to say for sure, what is not normal behavior for an almost 2 year old. How is she suppoed to act vs. how do you act when you are having the different kind of seizures?!

For the past couple of days she has been shaking her head back and forth and screaming when we are in the car, but I don't know if I'm over analyzing this, or if it's something. I suppose all I can do is write down EVERYTHING and then let the professional tell me what's nothing and what is something to worry about.