Sorry I missed some things. Tell them it is not acceptable about waiting that long for an appt to get a test done or getting test results. If they say results are 3-5 days, you call in 2. P/U pizza in 25 min. BS, it is done in 15!
They tell you two weeks to get in for a test. Again, BS! There is a way to get you in sooner. An MRI takes about 45-60 min and with Kaitlyn they may have to sedate her a bit so she will be easy to do. You can bother them and they will get you in just so you start bugging them. You are entitled to good service even from a health care provider!
Tell them you need to know and you DESERVE to know what is going on. This is your daughter. It is okay to get firm with these people. If you don't get firm now, they will act this way the entire time you deal with them. You have to train them, not the other way around.
Please keep me posted.

Hello. You have a beautiful daughter! I can totally relate to everything you are experiencing, the feelings you have, the fear, everything!! I have had seizures for 30 years and my daughter was born on a Sunday in 1989 and at 5 days old she started having tonic clonic seizures, one every 3-5 hours. We were just sick and scared to death! With my history, we took her to ER immediately b/c she was fully involved; arms, legs, whole body. Not to mention I had just gotten out of the hospital from having two brain surgeries for my seizure problems ten days before her birth. She was wired up with EEG, IV, and everything else. They did test after test and as usual, it all was "normal." But that is not uncommon. I have had plenty of "normal" reads in my 30 years but continue to have seizures to this day.
I agree with some of the other chatters, keep talking to the doctors, even if they are in the same practice until you feel comfortable with one you like. Don't be afraid to leave the practice you are with and go somewhere else. Kaitlyn is YOUR daughter and not theirs. YOU have to feel comforable with her care and deserve the best for your daughter.
Fortunately, we were able to find a good ped neuro and get our daughter on the right med-this was in '89 so she was on phenobarb and we were able to mix it with her formula. She stayed seizure free for a year and then we weened her off her meds. She has not had any re-occurances of any seizures and she just turned 18 last month.
Does Kaitlyn have an "active" personality? This was the case with my daughter. She was active from the minute she was out of the womb; looking around, loud as can be, busy in the nursery, just afraid she'd miss anything. The doctors said that her was brain was "too active" for her body and this is what caused her seizures. The brain was too mature for the body and it could have been responsible for the seizures as the body could not handle the differences. As she grew "into her brain" I guess things evened out.
My neurologist told me children can not inherit epilepsy but they can inherit "epileptic tendencies". This is from Dr Luders, MD/PhD head of the epilepsy dept at the Cleveland Clinic who has cared for me the past 20 years.
I will be thinking about Kaitlyn and your family.
Keep me posted if you will. Take care. Richard-seizure boy is a nickname from my step daughter. Humor gets me thru a lot of things.