So just a little bit about me, I am a 22 year old stay at home of 2 kids under 2. My oldest Kaitlyn will be 2 in May and my youngest Christopher is 7 months old. I stay home because Kaitlyn was always getting sick when she was in daycare and has some health problems from birth, she has a heart defect and also no soft spot (so we are watching for slow growth...etc.) So I thought that was all of her health problems until March 20, 2007...

Here it goes:

On my one night away from my kids I went to my pottery class with my father and sister-in-law, after it was over I looked at my phone and saw that there was a ton of missed calls from my husband. I called him back and he told me "I don't want to freak you out but I just tried to wake Kaitlyn up from a late nap and she wouldn't wake up" he then explained everything to me and told me how it took a few minutes to get her to even come to it, she then acted tired and not herself for the remainder of the night. Well I was freaking out, saying that we need to take her but my husband and mother told me that I am over reacting... so I just let it go until the next day... I called the dr and they told me maybe she was just overly tired and to watch her for spacing out. Well she had been "spacing out" for some time now, I just didn't know that was a concern. I should have known. Then on Saturday we were driving and she went some what spacey and then screamed, I mean screamed bloody murder... so I pulled over and she was just so upset, I didn't know what happened. Then on Thursday March 29, my husband came bursting into the bathroom while I was getting ready with Kaityn, and said "It happened again", she was just laying there in his arms looking at me, I tried to talk to her, nothing happened, then she kind of moved, and then she started to twitch (different parts of her body at a time) and her eyes were huge. Then it was over, she still wasn't herself but was responsive. So I started to get worried, and was tired of the doctors not listening to me, so I called her neurologist and told me I was pissed off because this happened again and no one was listening to me! They told us to take her to the ER, so we did and they said she did have a seizure. They then sent us on our way, and then my mind just started to wonder with all of the what if's, or the possibilities.

So on Friday we had an EEG done, and that came back "normal" pending he looks at it again. Her neurologist put her on Topamax 15 mg a day for one week and then 30 mg after that. He said that based on some finding on the EEG he believes that she needs to be placed on the meds, but wait I thought the EEG was NORMAL.... I don't know what the deal is, maybe he forgot what he had said before. So we went and got a ton of blood work done, still waiting for the results on it. And we are waiting for them to call with a day to do the MRI.

So we made it through the weekend with out much problems, a couple of times she would space out for a few minutes and not respond. But it seems like everything happens when she's asleep. So we have started to think back to how she has been in the past. And we can come up with about 3-5 other times that we think this is what was happening.

So now, I am trying to learn everyting I can about this like I do about everything else. I hate the uknown and I want to know why and what and how to make it better. I guess thats what scares me the most because we might not be able to know why. I don't want to just take that there's no cause for it and it's just happening as an excuse. I want some answers.

I don't know how to treat her anymore because I am find myself being way to over-protective and she was just getting to the age where she wants and needs her independence. She loves to play in her playroom and sometimes by herself. But now I don't want her alone, I don't even like when she has to sleep alone in her room because what it something happens in her sleep and I'm not there. And now I don't want to leave her with anyone else to have the babysit because what if it happens when I'm not there... I just don't know how to act anymore.

I have alot of other stuff going on with my family as far as health issues and just life stress, sometimes I just feel like I am reaching my limit but I know I have no choice but to just deal with it. My father is suffering from liver failure and all of those horrible side effects from that, then my father in law just had a heart attack and stroke... and both of them have diabetes so I mean... how does one deal? Plus my son Christopher, he's still a baby and needs me too, and he is having health concerns too, he's being tested for Cystic Fibrosis, Diabetes and whatever else they can test him for. Just stressin' out!