Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYThis is my first official entry thought I have been journaling this quest since about May. It all started in Paris with an idea that it was time to make some noise about Epilepsy. I have watched as the brave folks I know take strong meds and move through a world that can turn on a dime and leave them being told about something happening that they never see. Seizures in some ways only happen to those around you. The person having them seems to suffer mainly the consequences, a strange turn of events, and life long.
I decided to raise some noise and attract attention to a couple of issues close to my heart and if you have seen my web page you know what of I speak.
I am an aging athlete with a big mouth and a hard head and I am afraid of little that I can confront. But there is nothing I can do to change the lives of epileptics BUT I can honor their bravery and tenacity and I can shine a light.
I started with a idea to announce three train wrecks and see if I could get the press involved. As it turns out it is harder to do than I thought but the trains are moving now.
I started with a run in down town Paris on my birthday. It was s Saturday night in May and the streets were teaming with students drinking and dancing and feeling the air turning warm. I wore a Clinton Gore 92 T shirt and got thumbs up all through the Bastille to Notre Dame.
Back home a began my running and boxing and tried in vain to get an epilepsy organization to take me seriously. Mainly I was told flat "We aren't interested." and "It won't work." Finally Kim Macher at ETDP answered my questions and my many phone calls and with tenacity I got some folks on board.
Many miles and boxing rounds and it looks like I will be diving and running and eventually fighting an undefeated pro boxer. I train with an 18 year old Olympic Hopeful which is a sight in the ring and I run on Saturdays in the most beautiful place imaginable. I am scared and excited and not that all the administrative stuff is rolling all I have to do is prevail. I love the edge! I have no idea what will happen and I embrace the possibility of failure as a friend. On my best days I cherish every ache and pain. I am alive.

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Epilepsy should not be understood as a single disorder, but rather as
syndromic with vastly divergent symptoms but all involving episodic
abnormal electrical activity in the brain.
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