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I need all the information I can get on Topomax
I was on Topomax from the middle of 2004 until March of 2006. I now have no memory of 2005. Short term memory loss is very scary. Topomax did nothing for my seizures. I wouldn't recommend it for anyone, epilepsy or migrains.
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Sorry to hear that Topomax didn't work for you, some things that work for some people may not work for others. Also some people may have side effects while others may not have any, it really can vary from person to person. I would say that anyone taking medication like this should be aware of any side effects and consult with a doctor if they do notice any or if they feel it is not working for them. If the medication does not work for you then a doctor may be able to prescribe something else so don't give up hope.
I am currently on Topamax and it is controlling my severe tonic clonic seizures. Were you having tonic clonic seizures?
Also..when you say you had no memory of 2005..how do you mean?
Any information you give I would greatly appreciate.
Thanks so much,
sophie did you have a temper before topomax, i didn't, but i wen't through a divorce 3 years ago and under the stress of being a single mom, so i don't know if it's that or the med change, i have a short fuse w my nine year old now
sparrow123 Is there a medication that you WON't gain weight? I'm allergic to Topomax (and from what I've read its a good thing. I'm so sick of the FOG HEAD, staggering around, dizziness and MOST OF ALL -- THE EATING!!!!!!!! Help me stop.
Hi Solis...I hear you on the word retrieval! I so hear you! I cannot seem to recall even the most basic of names for objects sometimes! I can read and speak normal other times!
What bothers me is that often people may mistake me for being drunk! It bothers me when I have to speak in public for a job or for school or when speaking on the phone, and when I am tired it is made worse.
Unfortunately for me the drug is my fourth..but it is controlling my tonic clonic seizures so I am staying on it for now...
I tried Keppra and Tegratol but the weight gain were so bad..had to quit.
My experience with Topomax landed me in the hospital… I lost my memory, my health, almost lost my eyesight. I nearly lost my home and my job. I even forgot how to dial a phone. It has taken 4 years to recover most of my physical health. Now comes the hard part… Emotional health. Speaking from my own experience…. Be wary, be very very wary…By the way, the seizures continued.
I now have a new physician, new medication (Keppra and Lamictal) and I have been seizure free for 20 months. I am one happy person and it is my personal goal to laugh and have fun every day.
“Forget the housework, let’s go have some fun.” ~ CJ ~
I was put on Topomax in 2/08 for bipolar illness, mood swings. I began having episodic diarrhea, could not eat anything, it became worse and I went to ER and to my GP who treated me for sinus infections as I was having intense throbbing behind my eyes, migraines, nausea and cold sweats. Finally, I ended up in the hospital a week ago and my blood was tested, I was given a CT Scan and Ultrasound. The doctors first thought I had Pancreatitis as my enzyme levels were high but lowered in one day and they could not diagnose my illness. I had been also given a shot of cortisone due to allergies which the doctors at my GP felt were causing the headaches so my metabolism is all screwed up. I stopped taking the Topomax as I tried to remember what had changed when these episodes began and that was all I could remember was being put on Topomax. I have contacted the Dr. who put me on it and he will not return my calls, The GP told me I was lucky to figure it out! I cannot get any of these doctors to assist me in ensuring no damage has been done to my organs such as glaucoma which runs in my family and I have liver disease and I read that you should not take Topomax if you have liver disease. I have been in pain, to doctors who did not help me and suffered financial and emotional and physical pain. I thought you should know.
I just quit taking Topomax after 4 years and have switched to Trileptal. Within a year and a half of taking Topomax, I got my first attack of Pancreatitis and was hospitalized for 2 1/2 weeks. I kept getting attacks of pancreatitis almost every 6 months. I was told by doctors that pancreatitis was caused by heavy drinking, but I kept telling them I only seldom dring. Finally after getting a new doctor with Kaiser did he go over all my medications and find that topomax has be causing pancreatitis in some people. He and my neurologist decided it would be best to get me off the topomax and on something else. I't taken me about 6 months to do this medication change and I'm still having abdominal and back pain flare ups (actually as I'm writing this), but they do seem to be getting a little bit better...at least I'm staying out of the hospital. I have had 5 bouts of pancreatitis in the last 4 years and let me tell you, this is NO FUN!!! If you take topomax and have unexplained abdominal and back pain frequently, I urge you to talk to your doctor about changing medications. It could become pancreatitis, and you dont want to mess with this!!!! IT SUCKS!!!
The Day After Thanksgiving my father committed suicide by stabbing himself. One of the medications that he was on was Topomax. My father was a devout Catholic since the age of 13. He died at 66. He had just started on this medication and Kepra for drop seizures in Sept. right after Labor day weekend. My family is devasted - we believed in the doctors and I wish I would have come to this website sooner. Please, please see your doctor and FIGHT!!! if thats what it takes to have your medication changed if you feel that your personality has changed completly
Miss Lynda Boston, Ma.
Dr. Jason, Here's some info: I'm alergic to it! I had just learned how to curb the behavioral side effects, then showed my neurologist the rash on my torso. He almost jumped out of his chair. That's a potantially fatal allergy. He took me off it, obviously. Now I'm on Keppra, and have been for a few years. I take seroquel for the modd swings the Keppra caused me to have. Anyway, check out my blog, and please share! http://lyndamcguirk.blogspot.com/
I took Topomax twice a day for migraines for two years. It seemed to make my migraines less frequent, but I developed kidney stones from taking them. When I brought up to my prescribing doctor that one of the side effects of Topomax is kidney stones, she was very suprised. One would think that your doctor would know the side effects and tell you them when prescribing the medication. Since then I have spoken to several people who have had the same experiences with kidney stones. I took myself off of the pills after developing the stones. Also, when I had my kidney stones "blasted" by sonic waves while I laid in water, I then got pancreatitis. It seems that this is very common also after being treated for kidney stones.
I had been also given a shot of cortisone due to allergies which the
doctors at my GP felt were causing the headaches so my metabolism is
all screwed up.
Cpanel Dedicated Servers
I began taking this drug a month and a half ago for my bi-polar disorder. I had heard and seen wonderful things about it and it's weight loss effects. Frankly after gaining a ton on depakote and nuerontin I was wanting to try it and asked for it. And boy did I get it!
Flashing lights in eyes
Hands, feet, knees, face and scalp falling asleep constantly
Crying every day
Mixing up my words all the time
Unable to concentrate
Here's something really bizarre-I sat outside one day and stared at a rock and watched it breathe. That's how bad my eyes got.
I'm completely miserable and in agony. But I'm not manic..oh joy! This drug can cause blindness I have come to find out. I was on my way there. Can you imagine? I don't recommend this drug. I'm sure you can see why. Web MD or just Googleing, Topomax will help you find out a lot more about it. Good luck friends.
I forgot to mention the constant itching all over which made it impossible to fall asleep at night or relax at all.
Hello there! I've been having seizures twice or thrice a week and my doctor prescribed me to take TOPOMAX 100mg per day. But in a few weeks of taking such medicine I feel some strange body reaction which I never felt before I took it. First I feel so sleepy all the time which consumes lots of hours in a day in just sleeping. In some part of my arms and legs I felt numbness and tingling. And I observed I am losing my concentration. What's happening to me? Do I need to stop taking this medicine? 31 Day Fat Loss Cure
The worst anti-epileptic drug created: I have been on all but two that are legal in Canada
I have problems with my speech
The first time I was on this drug I dropped 8 sizes like that - it is suposed to be used as a diet pill fpr some people...the second time I went on this drug, about 4 months after I came off I gained 8 sizes like that
I have no interest in eating until I am starving...I can go two days without food
I am so depressed all the time
I argue with peoplep and get mad/upset easily which is not my personalilty at all...|I have quit my favorite activities because I am in fear in blowing up at the volunteers running them
Have recently been tested for glacoma
Constantly feel sick to the stomach and do get sick somehow
Insomnia(even taking melatonin...)
Tired all the time
Mix up my words, pause, etc...then people start yelling at me because I dont know what I am saying
Forgetting even the simplist things like names of people I see everyday
But sadly its only dug that only midly works me and controls my four seizures a day I get so tired after being at the gym 20 minutes. My grades are steadily declining...) I do not know what to do...I have the dest epileptolosits in Canada on my case
We all respond differently. Some have actually had good responses to Topamax. I had a horrible itchy rash which caused me to scratch until I bled. I also experienced excema and 'battle scars' from the rash that lasted several years. Fortnately, they went away after several years and a LOT of sunscreen. I experiencrd hallucinations. Finally, I stopped communicating with anyone. I had no idea what was happening; nothing. I was able to follow instructions which were given when spoken in a soft voice. I ended up in E.R. because my sweetie thought I'd suffered a stroke. I had a CT scan, which showed that I didn't; thank God! For me, it was the worst AED I ever took. Hallucinations is a known side effect. Read the pkg. info carefully. Take care, T. Cameron
I will Fight, because it is wrong for people to lose their minds for the sake of 'doctors' getting rich while pharmaceutical companies have them push their poisions onto us. They may help some, but I believe the issues can't allways be treated with this or that med. The mind is a complex system, and druging it only tends to fog things up, or make other areas of the body not respond in ways we would like for them to. And In My Humble Opinion... we consumers need to put a stop to this maddness. Unless we honestly want to become mindless slaves to the corporate system in place we need to put an end to this maddness before 0ur freedoms become a thing of the past.
OUR MINDS ARE NOT DART BOARDS!
I pray that we all can come to an understanding of a willingness to work together. God Loves Us All, and I have Faith in All Of You. God Bless You All,
Thank you. I hae been on this medication practically 8 years things seem to get worse as more time goes by. My family nor educators see that its the medication-I can perform fine in a practicum setting, as for tests and classroom work, theroy, remembering names, etc its above my head. And people just get mad at me because I cant recall everything like that so fast I am afraid of failing a program I started out on Deans Hounor Roll
angie1261 Been on it too long and now my Dr. wants me to go down mlg. I know what she is doing I told her I was not going to take them any more and you are so wright you do lose part of everything it's like you smeebody has taken your memory away and that my good people is Topomax....!!!!
I cant agree more, I am going being on this drug 8 years now with about a 5 month break when I was 18, I turn 23 exactly 1 month from today