I am 29 years old and I had my first seizure when I was 20. It was the most terrifying experience I have ever gone through.
The last thing I remember from that morning right before it happened... I was at my best friend’s house and we were watching a movie. I went to the kitchen to get a drink and that's when it happened. My friend said, she heard a loud bang and she came into the kitchen and I was on the floor seizing. My eyes rolled back, foaming at the mouth, body contoured in awkward position. She and her father eventually got me in the car and took me to the hospital.
I don't remember any of that, thank goodness! The next thing I remember is "waking" up in the backseat of a car. I wasn't sleeping, but that's what it feels like to me, just sort of snapping back into your world again, "waking" up. As I was sitting in the backseat I was looking at my friend in the passenger seat and her dad was driving. She kept turning around and staring at me and asking me if I was okay. I just kept looking at her wondering why the hell she keeps staring at me. I was really very confused and scared. I also, couldn't remember either of their names or what I was doing. They kept asking me if I was okay but I couldn't answer them. It was almost like an out of body experience. (I have heard of these 'out of body' experiences before with people who have been sleeping and they can leave their body spiritually and go around where ever they want.)
Well, that's how I felt that day. I felt as I was watching myself sitting there and telling myself to move and talk. I couldn't get any words out. They were asking me questions but I couldn't talk. I was getting mad and yelling at myself to answer them but it didn't work. This made everything more terrifying. Then I was in the hospital. They gave me medications and didn't know why it happened so set up EEG’s and MRI testing.
My whole life turned upside down. Everything was going so good, had a good job and was happy with where I was. I never imagined something like this to happen to me.
At first I was scared for my health and my life. I know it may sound dramatic but I thought I could die at any time.
My whole world changed after that day since that first seizure it made my life different from what it would be. Not saying it's positive or negative.
I am on here to seek out people who have an idea of what I go through and how they deal and handle their condition, as everyone’s is different.
I want to discuss so many different things and possibly get ideas or solutions that I haven’t thought of or tried on my own. I want to learn as much as I can and hope people will share with me or give advice.
I have also made a video if you would like to check out as well:
Will 3D Television or Movies Trigger Seizures?
Created by shags38at3/3/10 - 7:39 pm|21 Comments
New - 7 y/o - Depakote/Tegretol - behavior issues
Created by ChelInNYat4/5/13 - 7:05 pm
Help with Epilepsy 'After-effects'?
Created by KrisCl...at1/31/13 - 2:15 pm|2 Comments
I can't do this any more.
Created by Grandm...at8/20/12 - 2:38 pm|19 Comments
Damn. Epilepsy it is boys. now what?
Created by Sebast...at7/21/12 - 3:32 pm|1 Comment
Concussions: Helping Your Brain Heal
Created by phylis...at5/24/11 - 10:42 am
Created by jmrose...at8/27/10 - 8:58 pm|1 Comment
Ongoing Struggle and no answers!
Created by naaksh...at10/10/09 - 1:17 am|13 Comments
Created by bykerb...at8/26/08 - 12:47 pm|4 Comments
Created by bykerb...at8/26/08 - 12:46 pm|2 Comments
New - Epilepsy triggers?
Created by Black....at3/18/08 - 11:11 am|106 Comments
Left Temporal Lobe Epilepsy?
Created by Laurrrikat2/22/13 - 12:24 pm
Left Temporal Lobe Epilepsy?
Created by Laurrrikat2/22/13 - 12:20 pm
New to this, scared and haven't a clue what I'm dealing with
Created by Sandra...at2/20/13 - 3:41 pm|2 Comments
P a r i s
Time and Memory Loss.
Created by P a r i sat2/18/13 - 5:02 am|1 Comment
10 year old son dx with a brain tumor now suffering from seizures
Created by peters...at2/13/13 - 12:47 pm
New - New to epilepsy, having medicine problems.
Created by Klamic...at1/28/13 - 5:50 pm|3 Comments
New - Medication Side- Effect of Depression...Know Any Specialists?
Created by ramcquownat1/24/13 - 10:35 pm|2 Comments
Depression Associated with Epilepsy...Specialists?
Created by ramcquownat1/24/13 - 10:30 pm
Anxiety or Epilepsy?? Confused and Scared! Pseudoseizures?
Created by Caitlin09at11/23/12 - 2:30 pm|5 Comments
Created by Laura....at11/20/12 - 8:50 am|2 Comments
Does any one else have seizures when they relax and start to get ...
Created by deena2at10/6/12 - 6:18 pm|17 Comments
Does being sick cause seizures?
Created by Chelsnoryat9/22/12 - 2:00 pm|6 Comments
Getting your License Back after Being Diagnosed with Epilepsy
Created by kimste...at9/18/12 - 9:04 am|3 Comments
1st seizure @ 2 yrs old, now 56 yrs old, only 1 abnormal eeg in l...
Created by bttnglat9/16/12 - 6:40 pm|1 Comment