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kimber...
kimber...

Am Considering Corpus Collostomy For Our 8-Yr.-Old Son.

We're depserate for information: outcome/recovery process of this procedure on anyone whose child has had it done.

Started on 03/11/2009 - 2:54pm|2444 views|1 post

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Desperate for Any Information RE: Corpus Colostomy Surgery
Posted at 03/11/2009 - 2:54pm|11 Views|0 Comments

My name is Kim Carpenter and we have a son, AJ who will be 10 in April 2009. AJ has every seizure type there is (Lennox-Gastaut Syndrome), including atonic (head/body drops) tonic and tonic-clonic seizures. AJ's seizures get worse at night when he's trying to fall asleep (nocturnal) and I’ve been having to give him rectal valium almost nightly since February 11, 2009. Sometimes the