Well, it's been 3 years since we started down the road of epilepsy with our son Darren.  This November 16th will not only mark my youngest daughters' birthday, it will also mark Darren's first grand mal seizure that we witnessed and his diagnosis....not only that.  I am due with baby # 6!  Darren is bursting at the seams over his new brother who is due any day now.  He told me that when "Hauk" is born he is going to hold him until he's 21.  :)  Darren is our first child and almost 11.  After he was born we had 4 beautiful little girls and now, after all these years, another

Well, it has been 10 months that Darren has been on keppra and as far as we know has been seizure-free.  On Friday, Darren went fishing all day with his uncle and cousin and then to baseball with the family to watch his sister play.  He was tired for bed at the end of the night but had a great time.  The next morning, Curt woke him up around 5:30 am to go riding horse in the mountains with him.  They got up and drove 31/2 hours, rode for 6 and then drove home another 31/2 hours.  They got home around 8 and Darren denied being tired but i sent him up to shower and brush his teeth for bed a

Well, Darren has been seizure-free since starting the keppra. He reached the therapeutic dose of keppra and is down completing the descent from the clobazam. Neuro kept him on the Clobazam while he upped the keppra and now we are...

It's 4:54 and Darren is in bed. He was supposed to run chores with his dad but was too tired. Curt got frustrated and told him to go do nothing then and so Darren came back in the house and crawled into bed. He has been bone weary...

well it is the second day on Keppra. Yesterday was totally normal but today he's been so tired. He cleaned out his chicken barn and did chores but he keeps complaining of feeling so tired. I'm really not convinced about the medication...

Funny how it feels like i'm waiting for something horrible to happen everytime we start a new drug. I wake up in the morning and wait until Carrie comes into my room. I'm listening for the seizures that only happen in the morning....

Darren had another bad seizure this morning and that makes 5 so far this month. My sisters' idea of making his life a little more boring is starting to sound good to me. He's been bear hunting and fishing with his dad this month,...

well, there have been 5 seizures so far this month while on 25 mg of clobazam/day. To make it easier i will just post the letter i wrote to my family: We had our appointment with the neurologist today. I brought Darren's seizure...

My son's Neurologist called me back today and said we had room to up the clobazam. He said that the clobazam seemed to be limiting the seizure spread somewhat. Darren is now aware during the seizures and able to talk during them...

Well, my son is at 25 mg/day of Clobazam (frisium) and is still seizing. Without meds he was having about 1 a month. He had 2 seizures in April, skipped all of May... and then promptly made up for it by having a seizure June 1st...

Well, we are back to square one with the seizures it seems. He hadn't had a huge grandmal since he was on medication--- only 10 second long seizures that he was aware during. Then two days ago he had another big one. Strangely...

Well, we are still slowly upping the clobazam as he continues to have seizures. So far he is at 15 mg and his seizures are once a month and he is aware of them now. He has never been aware of them before. He says it's only scary...

Well, it has been quite awhile since the last entry and much has changed. We tried dietary changes and glyconutritionals and phytonutrients for over 3 months. I'm not sure if these had a huge impact or not, but i think they helped...

Epilepsy came for us on a night when we were celebrating LIFE. I had spent the day of November 15th in labour with my 5th child. When my husband came home i told him this was the day our anticipated baby girl "Sadie" was choosing...