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trey2007 trey2007's blog
Created by trey2007|17 Views|1 Post Latest Postat03/11/2010 - 8:25pm|4 Views|0 Comments |
aprilb114 aprilb114's blog
Created by aprilb114|38 Views|1 Post Latest Postat03/10/2010 - 6:51am|3 Views|0 Comments |
jaorande jaorande's blog
Created by jaorande|18 Views|1 Post Latest Postat03/08/2010 - 7:39pm|1 View|0 Comments |
Christ... Christine86's blog
Created by Christ...|57 Views|2 Posts Latest Postat03/08/2010 - 9:13pm|7 Views|0 Comments |
naskp |
dietpills dietpills's blog
Created by dietpills|29 Views|1 Post Latest Postat03/04/2010 - 10:41pm|4 Views|0 Comments |
hnubts... hnubtshiab's blog
Created by hnubts...|696 Views|1 Post Latest Postat03/04/2010 - 3:44pm|15 Views|1 Comment |
shags38 shags38's blog
Created by shags38|37 Views|1 Post Latest Postat03/03/2010 - 7:21pm|11 Views|1 Comment |
Vampir... VampiressSaraBrook's blog
Created by Vampir...|44 Views|1 Post Latest Postat03/01/2010 - 6:00pm|11 Views|2 Comments |
davidm... davidmorrison's blog
Created by davidm...|73 Views|1 Post Latest Postat02/28/2010 - 7:37pm|15 Views|3 Comments |
lisalou lisalou's blog
Created by lisalou|95 Views|5 Posts Latest Postat03/11/2010 - 2:24am|18 Views|1 Comment |
shubham shubham's blog
Created by shubham|54 Views|1 Post Latest Postat02/27/2010 - 10:29am|11 Views|1 Comment |
pushed pushed's blog
Created by pushed|52 Views|1 Post Latest Postat02/27/2010 - 12:51am|15 Views|0 Comments |
reader9 reader9's blog
Created by reader9|54 Views|2 Posts Latest Postat03/09/2010 - 12:41pm|13 Views|1 Comment |
song bird song bird's blog
Created by song bird|56 Views|1 Post Latest Postat02/23/2010 - 11:08am|13 Views|4 Comments |
stacei... staceinspace's blog
Created by stacei...|102 Views|2 Posts Latest Postat02/22/2010 - 10:12pm|14 Views|0 Comments |
sharon516 sharon516's blog
Created by sharon516|76 Views|1 Post Latest Postat02/22/2010 - 1:01pm|2 Views|0 Comments |
mawmaw06 mawmaw06's blog
Created by mawmaw06|53 Views|1 Post Latest Postat02/22/2010 - 8:44am|7 Views|0 Comments |
jaketh... jakethesnake2056's blog
Created by jaketh...|46 Views|1 Post Latest Postat02/19/2010 - 5:48pm|5 Views|0 Comments |
living... livingwater's blog
Created by living...|88 Views|1 Post Latest Postat02/19/2010 - 5:58am|23 Views|2 Comments |
nick31 |
LIT |
dianenix dianenix's blog
Created by dianenix|48 Views|1 Post Latest Postat02/15/2010 - 7:21pm|9 Views|1 Comment |
Mark_J20 Mark_J20's blog
Created by Mark_J20|95 Views|2 Posts Latest Postat02/13/2010 - 10:45am|25 Views|1 Comment |
lminni |
lng89 |
austin... austinconsidine's blog
Created by austin...|44 Views|1 Post Latest Postat02/12/2010 - 12:02pm|4 Views|0 Comments |
Daniel... New - headaches and tulle
Created by Daniel...at03/13/2010 - 8:35am|4 Views Blog Posted To: Instability at its finest Tonight I have a wedding. Icing and candles and frufru but I am excited to make it happen. Yet I have not only the mild headache that has not left since I upped my dosage but the nagging feeling of what if...
It is such a complicating thing. What if...but...
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jillsmom New - Jillian's Progress
Created by jillsmomat03/13/2010 - 8:00am|9 Views|1 Comment Blog Posted To: jillsmom's blog Saturday morning and Jillian is doing well. She is very sleepy and somewhat fussy, but the doctor's agree she is doing well. We will be taking her to a regular floor soon ( out of ICU). I will give more details soon. Pray for continued healing.
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jillsmom New - Jillian's Progress
Created by jillsmomat03/12/2010 - 7:02am|10 Views|1 Comment Blog Posted To: jillsmom's blog
Ok, I have not updated like I should have. But here's the latest. Jill is in her second surgery right now. We just got an update from the OR nurse. She is doing well. Surgery will last 6 to 8 hours.
I will try to update again, but it is hard...
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trey2007 New - Son with seizures
Created by trey2007at03/11/2010 - 8:25pm|4 Views Blog Posted To: trey2007's blog Hello, my name is Pamela, I am new to this sight and am looking for any advice possible for my son.... He has been taking seizures since the age of 5 and 1/2 months, they started out as him rolling his eyes and dropping his head along with a grunting...
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Daniel... New - mexican food, hairspray, and the pendulum swing
Created by Daniel...at03/11/2010 - 5:06pm|5 Views Blog Posted To: Instability at its finest Just started upping my meds last night and it all came screaming back to me. Does anyone else get cravings on topamax? The first month or so after an increase in dosage for me is like my very own pregnancy...I crave random foods at random times and all the...
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lisalou New - Tick tock tick tock
Created by lisalouat03/11/2010 - 2:24am|6 Views Blog Posted To: lisalou's blog
Tick tock. Tomorrow is Friday and for the last two weeks I have ended up in hospital on friday nights. Is it work? Tiredness? Stress? Just one of these things?
Tick tock. I am so nervous that I am just a time bomb walking around. I am trying to find...
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michel... New - michelle
Created by michel...at03/10/2010 - 2:53pm|2 Views Blog Posted To: michelle41's blog
i went to see my doctor about my meds and the side effects keppra has he told me to wait until my next visit why iam on phenobartal he told me to see a physcologist has that happen to you before . so i did and it has helped me how to cope with...
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Daniel... New - more drugs, no rock and roll
Created by Daniel...at03/10/2010 - 2:49pm|7 Views|2 Comments Blog Posted To: Instability at its finest So I went to the neurologist today. She is upping my topamax by a total of 50 mg. Not much, but enough to make me a little bit crazy, little bit angry. Hopefully I don't throw my guitar at anyone like last time. We will see where this takes us...
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aprilb114 New - emilys epilepsy
Created by aprilb114at03/10/2010 - 6:51am|3 Views Blog Posted To: aprilb114's blog emily is currently on epilim and its doing wonders for her. my 19 month old baby is doin great. her seizures are controlled so far. although her test and scan all came back with no reason as to why she has it, which is frustrating but good that ther are no...
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reader9 New - I need insurance!!
Created by reader9at03/09/2010 - 12:41pm|2 Views Blog Posted To: reader9's blog
I just turned 23 and was taken off of my parents' insurance plan. I need to find my own, and am having a lot of trouble. I applied to Blue Cross Blue Shield, but was rejected because of my condition. We are looking up Humana, but apparently I have...
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Daniel... New - knocked over by a rabbit
Created by Daniel...at03/09/2010 - 8:48am|3 Views Blog Posted To: Instability at its finest I feel like I am a juggler, only I need three arms, because every time I get all of the balls rolling one flies caterwankus and I can't catch it.
Lately my seizures have gone mad on me, doing things that they have never done before. Oh, what to do. For...
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jillsmom New - Jillian's Progress
Created by jillsmomat03/09/2010 - 6:29am|10 Views|2 Comments Blog Posted To: jillsmom's blog Jillian is in surgery right now. Please pray for all health staff and for Jillian. We are hanging in there.
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sonicboom New - been a year and things have changed
Created by sonicboomat03/09/2010 - 4:48am|2 Views Blog Posted To: Me my life and stuff
goodness gracious i havnt written on here for over a year.. i dont know where the time goes, this of course is not helped by the fact that i spend a fair few extra hours every month unconcious or post ictal...
let me see...
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MichaelK New - Lack of common sense in some doctors.
Created by MichaelKat03/08/2010 - 9:31pm|4 Views Blog Posted To: MichaelK's blog
Day 5 of my hospital stay. It is snowing heavily outside here in Tokyo. I am wearing a ECG and am forbidden from taking a shower and I have to log everything I do on a little sheet. The MRI results came in and the doctor thinks I have Left Temporal Lobe...
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Christ... New - Another day a different.
Created by Christ...at03/08/2010 - 9:13pm|7 Views|1 Comment Blog Posted To: Christine86's blog |
jaorande New - Hi everyone
Created by jaorandeat03/08/2010 - 7:39pm|1 View Blog Posted To: jaorande's blog Hi, i am new to blogging but i know i have a lot to share. some might be fun, crazy or me being me. I have been diagnose with epilepsy for nine year and i am trying to beat it. i have my own method of keeping me seizure free and it works well for me. i...
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kjcana... New - my epilepsy lately
Created by kjcana...at03/08/2010 - 2:17am|7 Views Blog Posted To: My bad day WOW, IT HAS BEEN A LONG TIME SINCE I'VE BEEN ON HERE! I HAD BEEN DOING GREAT UP UNTIL JANUARY 27TH. I WAS AT WORK THEN ALL OF A SUDDEN MY CO-WORKERS WERE CARRYING ME TO A PRIVATE OFFICE WHERE I PROCEEDED TO HAVE A SEIZURE. THEY OF COURSE CALLED AN AMBULANCE...
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lisalou New - I have had another seizure!
Created by lisalouat03/06/2010 - 4:41pm|23 Views|4 Comments Blog Posted To: lisalou's blog
I am recoveing from my Friday night which shoud have been ful of friends and fun but instead I spent the majority of the night at the Emergancy room!
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Christ... New - What can I say...
Created by Christ...at03/06/2010 - 11:05am|7 Views Blog Posted To: Christine86's blog |
naskp New - Partial Seizures
Created by naskpat03/06/2010 - 6:50am|2 Views Blog Posted To: naskp's blog My 10YR old son is suffering from partial seizures .WHATS THE BEST AVAILABLE TREATMENT ---
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dietpills New - hello
Created by dietpillsat03/04/2010 - 10:41pm|4 Views Blog Posted To: dietpills's blog
hi,this is my blog.
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hnubts... New - epilepsy - to share or not to share
Created by hnubts...at03/04/2010 - 3:44pm|15 Views|1 Comment Blog Posted To: hnubtshiab's blog
I was talking with two friends today about a book, The Spirit Catches You and You Fall Down (http://my.epilepsy.com/node/4334). It's about a young girl with epilepsy and the struggle between culture and medicine. It was a good theoretical conversation about...
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shags38 New - Will 3D Television or movies trigger seizures?
Created by shags38at03/03/2010 - 7:21pm|11 Views|1 Comment Blog Posted To: shags38's blog
There is much hype and concern about the effect of 3D viewing being a trigger to epileptic seizures - the concerns and the myths need to be dispelled, or proven.
This is the hottest topic globally amongst epilepsy sufferers causing often unwarranted...
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tweety 12 New - not again
Created by tweety 12at03/03/2010 - 1:56pm|5 Views|1 Comment Blog Posted To: tweety 12's blog had another sezuir yesterday first one in 14 months i was on only keppra 1000 twice a day couse i had allercic reactions to topmax and lamictal now they put me on zonegran and keppra togther is any one taking the zonegran and can you tell me how it affects you
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lisalou New - My blood type is B+
Created by lisalouat03/03/2010 - 3:28am|7 Views Blog Posted To: lisalou's blog
At the moment I have an epilepsy which is like a game of poker- you don't now which hand you will draw.
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lisalou New - I had to cancel The Prodigy
Created by lisalouat03/02/2010 - 6:29pm|8 Views Blog Posted To: lisalou's blog
I just had to cancel the Prodigy. Is it sefish and spoilt that I on friday I didnt really get so upset about the ambulance or hospital visit?
The days off work have been pretty bad as I am feeling sort of useless. I purchased these tickets for Phillip...
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karl34 New - Doubt whether medication can harm non epileptic
Created by karl34at03/02/2010 - 2:31am|12 Views Blog Posted To: brain operations can help |
Vampir... New - What Type of Seizures Are These?
Created by Vampir...at03/01/2010 - 6:00pm|11 Views|2 Comments Blog Posted To: VampiressSaraBrook's blog
I have a question. I am eighteen years old. I started having seizures when I was sixteen. I went to the neurologist and they said that there was no evidence of a brain tumor or anything according to my MRI but that my seizures were probably stress-related....
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tweety 12 New - more problems
Created by tweety 12at03/01/2010 - 3:06pm|3 Views Blog Posted To: tweety 12's blog had a allergic reaction to the tompax they put me on after i had one ot lamictal . it made my feet swell up so bad i couldnt walk so know im on only 1000 of keppra and haveing sezuirs so there going ot send me ot the unversty to see if i quify for the surgery
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davidm... New - siezures
Created by davidm...at02/28/2010 - 7:37pm|15 Views|3 Comments Blog Posted To: davidmorrison's blog hi guys well i was put on extra keppra and i am still haveing siezures and deppresion good thing though i got a job its only two days a week but its a good pay and the employer knows about my eppy . I just lost my gp he got sacked from the medical centre he...
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kjeldo... New - Living a Double Life
Created by kjeldo...at02/28/2010 - 11:38am|9 Views Blog Posted To: kjeldoran_king's blog It’s strange for me to say this but right now it feel like I am living a double life. I’m tired of always getting B’s and now I want an A. Alexander is my middle name and the people who don’t know me are now calling me Alex. I’ve started using...
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lisalou New - 25 blond woman, beautiful, fun, career-minded, funny, epileptic
Created by lisalouat02/28/2010 - 4:34am|18 Views|1 Comment Blog Posted To: lisalou's blog Hi my name is Lisa,This is my first blog so bare with me. At this moment I am just recovering from a seizure. I have had so many now I do not remember what number this is. It is the type of seizure which is teeth scrambling, face grazing, and sends you off...
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shubham New - Concentration problem
Created by shubhamat02/27/2010 - 10:29am|11 Views|1 Comment Blog Posted To: shubham's blog I find my self very uuncomfortable in concentrating on works,studies and many other things.I find my self in ditch while performing a mental exercises like stepping on a blick placed on row by leaving one and placing foot on another.After start of my seizures...
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pushed |
reader9 New - Newbie
Created by reader9at02/26/2010 - 3:30pm|13 Views|1 Comment Blog Posted To: reader9's blog
Hi,
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kjeldo... New - Today the feeling of Deja Vu is gone.
Created by kjeldo...at02/26/2010 - 9:27am|16 Views|2 Comments Blog Posted To: kjeldoran_king's blog Well it seems like that today the terrible feeling of Déjà Vu is gone. What happened to make it go away you ask? I am not quite sure what it was. But what I do know is this. Last night I forgot to take my pills and this morning I felt like frackin'...
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MichaelK New - I have epilepsy. My dog gets treated better than me.
Created by MichaelKat02/26/2010 - 7:41am|6 Views Blog Posted To: MichaelK's blog
I hate writing these types of blogs but I hate Epilepsy and how I am treated for it as well. This morning I called a neurological clinic who is supposed to admit me for a VEEG but they have not done so yet. When I asked them this morning how long it would...
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kjeldo... New - Deja Vu
Created by kjeldo...at02/25/2010 - 9:14pm|13 Views|3 Comments Blog Posted To: kjeldoran_king's blog
I had a great day today but right now I have the most terrable feeling of deja vu. Like I've been here before and I know what is going to happen. It's one of the signs that a seizure may be comming. I feel fear and I do not know what to do. What...
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jillsmom New - Jillian's Progress
Created by jillsmomat02/25/2010 - 1:28pm|7 Views|1 Comment Blog Posted To: jillsmom's blog
We saw Dr. Chugani and Nurse Ruth on Wed, Feb 24. We had a long conversation about the upcoming surgery. To begin, Jillian is doing very well right now despite the fact that she continues to have daily seizures. Dr. is certain, however, if she continues...
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kjeldo... New - How My Seizures Started A True Story
Created by kjeldo...at02/25/2010 - 7:05am|16 Views Blog Posted To: kjeldoran_king's blog How did my seizures start continued
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Sophs6... New - Movie, Dinner, Cell, Seizure = Tired Me
Created by Sophs6...at02/24/2010 - 9:42pm|5 Views Blog Posted To: Sophs64833's blog |
kjeldo... New - How did my seizures start?
Created by kjeldo...at02/24/2010 - 9:02pm|6 Views|1 Comment Blog Posted To: kjeldoran_king's blog It's a terrible feeling. If I come onto this web site and speak about what gave me a seizure I get in trouble for it. No one knows what cannabinoid hyperemesis syndrome is. I suppose that I’m just wasting my time typing anything because I'd like to...
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hazel ... New - Has anyone tried Magnesium with Calcium to stop auras/seizures???
Created by hazel ...at02/24/2010 - 8:18pm|2 Views Blog Posted To: I always have called the "aura" the "feelings" I just started taking CALM Magnesium powder for my auras and it has really helped me out w/my monthly auras:) I am wondering though about the Calcium/Magnesium supplements for seizures as well. The Magnesium is really helping me, but I have read that you...
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michel... New - michelle
Created by michel...at02/24/2010 - 6:03pm|6 Views Blog Posted To: michelle41's blog
i went see my doctor about keppra to lower my meds and he said give it six more months i told him about side effects i get drowsiness and dizziness and moodiness. he told me just to give it time if it didnt work he would think about lowering down my...
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kjeldo... New - My will to fight before it takes
Created by kjeldo...at02/24/2010 - 8:50am|3 Views Blog Posted To: kjeldoran_king's blog
My will to fight before it takes
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George R New - Just What Is "Cured"?
Created by George Rat02/23/2010 - 12:35pm|5 Views Blog Posted To: Life's Worthwhile Challenges As a man now entering his long-dreaded "senior years" I must say I've learned something vital about dealing with epilepsy. And that is a correct definition of "cured." Sounds simple, I know. But having grown up to face nothing physically...
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song bird New - help with myclonic seizures???
Created by song birdat02/23/2010 - 11:08am|13 Views|4 Comments Blog Posted To: song bird's blog
My husband had a siezure in November while we were driving down the road and he went totally stiff and non responsive. Starting in January he starting have musclce contractions in the night and I documented the minutes and time they lasted, pretty much...
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kjeldo... New - How could He have known
Created by kjeldo...at02/23/2010 - 6:42am|8 Views Blog Posted To: kjeldoran_king's blog
Today I ask myself these questions. Why did my friend think that I was
in the hospital? Why did he feel like I was in the Hospital? How
could he have known? I was not there but if I had lost my battle. I would have been in the Hospital. But...
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Daniel... New - Tired of hiding...
Created by Daniel...at02/22/2010 - 10:42pm|21 Views|1 Comment Blog Posted To: Instability at its finest I realized today that I am tired of hiding.
I am a married woman in my mid-twenties living with JME. To understand why I have been hiding, you would first have to understand my story.
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stacei... New - The Mystery of the "focal point"
Created by stacei...at02/22/2010 - 10:12pm|6 Views Blog Posted To: staceinspace's blog
So I have had seizures since I was 15 years old and I have never had an EEG show the mysterious "focal point" in my brain where my seizures originate from.
I have been tested and poked and prodded and subjected to scrutiny from ER's and hospitals...
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