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Blog Index
 trey2007 |
aprilb114 |
jaorande |
 Christ... |
naskp |
dietpills |
 hnubts... |
shags38 |
Vampir... |
 davidm... |
 lisalou |
 shubham |
pushed |
reader9 |
song bird |
 stacei... |
sharon516 |
mawmaw06 |
jaketh... |
 living... |
 nick31 |
LIT |
dianenix |
Mark_J20 |
 lminni |
lng89 |
austin... |
Blog Activity
 Daniel... New - headaches and tulle
Tonight I have a wedding. Icing and candles and frufru but I am excited to make it happen. Yet I have not only the mild headache that has not left since I upped my dosage but the nagging feeling of what if...
It is such a complicating thing. What if...but...
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jillsmom New - Jillian's Progress
Saturday morning and Jillian is doing well. She is very sleepy and somewhat fussy, but the doctor's agree she is doing well. We will be taking her to a regular floor soon ( out of ICU). I will give more details soon. Pray for continued healing.
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jillsmom New - Jillian's Progress
Ok, I have not updated like I should have. But here's the latest. Jill is in her second surgery right now. We just got an update from the OR nurse. She is doing well. Surgery will last 6 to 8 hours.
I will try to update again, but it is hard...
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trey2007 New - Son with seizures
Hello, my name is Pamela, I am new to this sight and am looking for any advice possible for my son.... He has been taking seizures since the age of 5 and 1/2 months, they started out as him rolling his eyes and dropping his head along with a grunting...
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Daniel... New - mexican food, hairspray, and the pendulum swing
Just started upping my meds last night and it all came screaming back to me. Does anyone else get cravings on topamax? The first month or so after an increase in dosage for me is like my very own pregnancy...I crave random foods at random times and all the...
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lisalou New - Tick tock tick tock
Tick tock. Tomorrow is Friday and for the last two weeks I have ended up in hospital on friday nights. Is it work? Tiredness? Stress? Just one of these things?
Tick tock. I am so nervous that I am just a time bomb walking around. I am trying to find...
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michel... New - michelle
i went to see my doctor about my meds and the side effects keppra has he told me to wait until my next visit why iam on phenobartal he told me to see a physcologist has that happen to you before . so i did and it has helped me how to cope with...
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Daniel... New - more drugs, no rock and roll
So I went to the neurologist today. She is upping my topamax by a total of 50 mg. Not much, but enough to make me a little bit crazy, little bit angry. Hopefully I don't throw my guitar at anyone like last time. We will see where this takes us...
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aprilb114 New - emilys epilepsy
emily is currently on epilim and its doing wonders for her. my 19 month old baby is doin great. her seizures are controlled so far. although her test and scan all came back with no reason as to why she has it, which is frustrating but good that ther are no...
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reader9 New - I need insurance!!
I just turned 23 and was taken off of my parents' insurance plan. I need to find my own, and am having a lot of trouble. I applied to Blue Cross Blue Shield, but was rejected because of my condition. We are looking up Humana, but apparently I have...
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Daniel... New - knocked over by a rabbit
I feel like I am a juggler, only I need three arms, because every time I get all of the balls rolling one flies caterwankus and I can't catch it.
Lately my seizures have gone mad on me, doing things that they have never done before. Oh, what to do. For...
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jillsmom New - Jillian's Progress
Jillian is in surgery right now. Please pray for all health staff and for Jillian. We are hanging in there.
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 sonicboom New - been a year and things have changed
goodness gracious i havnt written on here for over a year.. i dont know where the time goes, this of course is not helped by the fact that i spend a fair few extra hours every month unconcious or post ictal...
let me see...
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 MichaelK New - Lack of common sense in some doctors.
Day 5 of my hospital stay. It is snowing heavily outside here in Tokyo. I am wearing a ECG and am forbidden from taking a shower and I have to log everything I do on a little sheet. The MRI results came in and the doctor thinks I have Left Temporal Lobe...
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Christ... |
jaorande New - Hi everyone
Hi, i am new to blogging but i know i have a lot to share. some might be fun, crazy or me being me. I have been diagnose with epilepsy for nine year and i am trying to beat it. i have my own method of keeping me seizure free and it works well for me. i...
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 kjcana... New - my epilepsy lately
WOW, IT HAS BEEN A LONG TIME SINCE I'VE BEEN ON HERE! I HAD BEEN DOING GREAT UP UNTIL JANUARY 27TH. I WAS AT WORK THEN ALL OF A SUDDEN MY CO-WORKERS WERE CARRYING ME TO A PRIVATE OFFICE WHERE I PROCEEDED TO HAVE A SEIZURE. THEY OF COURSE CALLED AN AMBULANCE...
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lisalou New - I have had another seizure!
I am recoveing from my Friday night which shoud have been ful of friends and fun but instead I spent the majority of the night at the Emergancy room!
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Christ... |
naskp New - Partial Seizures
My 10YR old son is suffering from partial seizures .WHATS THE BEST AVAILABLE TREATMENT ---
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dietpills |
hnubts... New - epilepsy - to share or not to share
I was talking with two friends today about a book, The Spirit Catches You and You Fall Down (http://my.epilepsy.com/node/4334). It's about a young girl with epilepsy and the struggle between culture and medicine. It was a good theoretical conversation about...
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shags38 New - Will 3D Television or movies trigger seizures?
There is much hype and concern about the effect of 3D viewing being a trigger to epileptic seizures - the concerns and the myths need to be dispelled, or proven.
This is the hottest topic globally amongst epilepsy sufferers causing often unwarranted...
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tweety 12 New - not again
had another sezuir yesterday first one in 14 months i was on only keppra 1000 twice a day couse i had allercic reactions to topmax and lamictal now they put me on zonegran and keppra togther is any one taking the zonegran and can you tell me how it affects you
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lisalou New - My blood type is B+
At the moment I have an epilepsy which is like a game of poker- you don't now which hand you will draw.
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lisalou New - I had to cancel The Prodigy
I just had to cancel the Prodigy. Is it sefish and spoilt that I on friday I didnt really get so upset about the ambulance or hospital visit?
The days off work have been pretty bad as I am feeling sort of useless. I purchased these tickets for Phillip...
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 karl34 |
Vampir... New - What Type of Seizures Are These?
I have a question. I am eighteen years old. I started having seizures when I was sixteen. I went to the neurologist and they said that there was no evidence of a brain tumor or anything according to my MRI but that my seizures were probably stress-related....
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tweety 12 New - more problems
had a allergic reaction to the tompax they put me on after i had one ot lamictal . it made my feet swell up so bad i couldnt walk so know im on only 1000 of keppra and haveing sezuirs so there going ot send me ot the unversty to see if i quify for the surgery
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davidm... New - siezures
hi guys well i was put on extra keppra and i am still haveing siezures and deppresion good thing though i got a job its only two days a week but its a good pay and the employer knows about my eppy . I just lost my gp he got sacked from the medical centre he...
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 kjeldo... New - Living a Double Life
It’s strange for me to say this but right now it feel like I am living a double life. I’m tired of always getting B’s and now I want an A. Alexander is my middle name and the people who don’t know me are now calling me Alex. I’ve started using...
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lisalou New - 25 blond woman, beautiful, fun, career-minded, funny, epileptic
Hi my name is Lisa,This is my first blog so bare with me. At this moment I am just recovering from a seizure. I have had so many now I do not remember what number this is. It is the type of seizure which is teeth scrambling, face grazing, and sends you off...
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shubham New - Concentration problem
I find my self very uuncomfortable in concentrating on works,studies and many other things.I find my self in ditch while performing a mental exercises like stepping on a blick placed on row by leaving one and placing foot on another.After start of my seizures...
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pushed |
reader9 |
kjeldo... New - Today the feeling of Deja Vu is gone.
Well it seems like that today the terrible feeling of Déjà Vu is gone. What happened to make it go away you ask? I am not quite sure what it was. But what I do know is this. Last night I forgot to take my pills and this morning I felt like frackin'...
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MichaelK New - I have epilepsy. My dog gets treated better than me.
I hate writing these types of blogs but I hate Epilepsy and how I am treated for it as well. This morning I called a neurological clinic who is supposed to admit me for a VEEG but they have not done so yet. When I asked them this morning how long it would...
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kjeldo... New - Deja Vu
I had a great day today but right now I have the most terrable feeling of deja vu. Like I've been here before and I know what is going to happen. It's one of the signs that a seizure may be comming. I feel fear and I do not know what to do. What...
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jillsmom New - Jillian's Progress
We saw Dr. Chugani and Nurse Ruth on Wed, Feb 24. We had a long conversation about the upcoming surgery. To begin, Jillian is doing very well right now despite the fact that she continues to have daily seizures. Dr. is certain, however, if she continues...
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kjeldo... |
 Sophs6... |
kjeldo... New - How did my seizures start?
It's a terrible feeling. If I come onto this web site and speak about what gave me a seizure I get in trouble for it. No one knows what cannabinoid hyperemesis syndrome is. I suppose that I’m just wasting my time typing anything because I'd like to...
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hazel ... New - Has anyone tried Magnesium with Calcium to stop auras/seizures???
I just started taking CALM Magnesium powder for my auras and it has really helped me out w/my monthly auras:) I am wondering though about the Calcium/Magnesium supplements for seizures as well. The Magnesium is really helping me, but I have read that you...
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michel... New - michelle
i went see my doctor about keppra to lower my meds and he said give it six more months i told him about side effects i get drowsiness and dizziness and moodiness. he told me just to give it time if it didnt work he would think about lowering down my...
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kjeldo... |
 George R New - Just What Is "Cured"?
As a man now entering his long-dreaded "senior years" I must say I've learned something vital about dealing with epilepsy. And that is a correct definition of "cured." Sounds simple, I know. But having grown up to face nothing physically...
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song bird New - help with myclonic seizures???
My husband had a siezure in November while we were driving down the road and he went totally stiff and non responsive. Starting in January he starting have musclce contractions in the night and I documented the minutes and time they lasted, pretty much...
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kjeldo... New - How could He have known
Today I ask myself these questions. Why did my friend think that I was
in the hospital? Why did he feel like I was in the Hospital? How
could he have known? I was not there but if I had lost my battle. I would have been in the Hospital. But...
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Daniel... New - Tired of hiding...
I realized today that I am tired of hiding.
I am a married woman in my mid-twenties living with JME. To understand why I have been hiding, you would first have to understand my story.
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stacei... New - The Mystery of the "focal point"
So I have had seizures since I was 15 years old and I have never had an EEG show the mysterious "focal point" in my brain where my seizures originate from.
I have been tested and poked and prodded and subjected to scrutiny from ER's and hospitals...
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