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Blog Index
 watches |
linhanyi |
nbalik... |
bhing |
gvalegirl |
kimber... |
gillyb... |
maxineh |
DerbaDee |
 vigga6... |
unicorn26 |
Runnin... |
 xavier... |
maveri... |
tweety 12 |
 Sherri... |
4myson |
summer... |
 britta... |
 jcflores |
 chelle-g cosmic thing
my blog is just this it is a blog to connect with people like myself and i look forwrd to meeting them
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haley09 |
Lisa D... |
 erykaj |
 INACLA... |
esierra |
 sugarc... |
Evergi... |
brandi... |
 soyama... |
dfrogg... |
Blog Activity
watches New - wholesale watches
Dear friend ! 1.We can offer all kinds of wholesale watch. We offer safe delivery and best service,low price and good quality. 2.We have excellent customer service team, which could solve online various problems about wholesale watches we provide in 24 hours....
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linhanyi New - Rasmus' walk-off lifts Cards over Giants
Dear friend !
1.We can offer all kinds of wholesale watchWe offer safe delivery and best service,low price and good quality.
2.We have excellent customer service team, which could solve online various problems about wholesale watcheswe provide in 24 hours.
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nbalik... |
 lee New - nice site
It is so amazing to come in here and beable to check on things, but i have to say even though i have been away for a long time i always try and catch up the best i can, besides my life and taking care of my twin nephews, my son who now has a internship, and...
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bhing New - support worker people with learning disability
hi folks just ask some question
1. why it is important to assess for each individual the ways in which his or her epilepsy present?
2. why it is important to keep accurate records in relation to epilepsy?
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gvalegirl New - my son sheldon
my son sheldon, is having a vagal nerve stimulator inserted in a couple of months, can anyone give me any thoughts or experiences with this. he is 18 but has intellectual problems and is profoundly deaf. surgery is not an option!!
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 wenko New - Meds do not stop all of my seizures
I have been on AEDs for 50 years of my sixty years of epilepsy and no med has taken away all of my seizures
I am also blind in one eye I cannot see the eye chart so I get just a plain lense for that eye
I keep missing lines as I read and some...
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xavier... New - Pop Pop came to visit me.
Hello again,
I hope you all had a great Wednesday and July is bringing you good fortunes and your E is at bay. My Pop Pop came to visit me today which is great because my parents can really use a break. As I said earlier today, my seizures are back. ...
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kimber... |
britta... New - please answer :)
hi everyone this is my second blog i really dont know what to talk about i am 12 as some of you know. i am going to visit my dad in illnois because my mom and dad got divcored when i was 1 month old.but i dont knwo why but when ever i go to illnois i have...
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 robl New - Splashing our feet in the fountain
So, I took my 17 month old son out for a long walk today to a playground in the middle of a large park. It's a nice park filled with nice beach sand. I mean real beach sand. Clean, too. It's just missing water. A mile back in the large grass field...
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 Living... New - Summer!
Things are going great this summer besides forcing myself to go to bed early every night. Last night I stayed up too late, drank too much coffee in the morning, and had some twitches in my left arm when I was woke up this morning. Besides that incident...
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maxineh New - seizures begining at menopause
Hi everybody. Me again. Did'nt really finish this the first time. I am wondering if anybody has the same problem? I told you about the migraines and then the seizures when they stopped. I am post-menopausal and I have these seizures or whatever they...
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xavier... New - Ugh...they're Baaaack
Well, we knew it was inevitable but just over a week since my corpus callosotomy I had a major event/episode. The thing that really stinks is that it was a seizure type that was supposed to be corrected by the surgery. I knew that the callosotomy wasn't...
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gillyb... New - thinking of children
i've had epilepsy for about 10 years now and i have been seizure free for about 7 of them and my partner and i are considering children but i am concerned about coming off the med, i've read that some woman has had great healthy pregancy while on tegratol,...
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xavier... New - Swelling On My Head at Surgery Site
Hello All,
Today was a pretty good day although I've got some swelling around my incision on the top of my head. Dad called my neurologist and they said it's likely hydrocephalus and that we must keep an eye on it. If any spinal fluid begins to...
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 megfrito New - Epilepsy Helmet Concept
I have designed a seizure helmet concept. Please vote for my design in the James Dyson Award Design Competition at: http://www.jamesdysonaward.org/Default.aspx. You have to register first and then look under the United States for a design called Protec. Vote...
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xavier... New - New Features and Updates
Hello Again,
I just wanted to let you all know I'm doing well. My recovery is going extremely well. I've been eating and crawling and doing all the things I used to do before my Corpus Callosotomy. My dad even took me running last night. The...
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 shelly... New - Death of my teenage son
I just wanted to stop and update everyone on what was taking place with me. Well since I last logged on I was doing pretty good. My doctor and I had talked about lowering my meds and discontinueing my Topamax. I had started my decrease and then one night all...
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maxineh New - seizures beginning at menopause. Is there any help
Hi,,, this is my first blog. I am 54 years old. I had ocular migraines . They started in about 2000. Now I am guessing that was pre-menopause. I started getting weird feelings in 2002. I would just feel weird and think something just happened but...
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DerbaDee New - My 1st Blog Here (finished)
My name is Debra.I am 31 years old. I was 1st diagnosed at 19 when I
had a grand mal at a friends house..while playing a hand held video
game. Before seizures came along, I was a very perky, outgoing girl with lots of friends..I went 2 years after my first...
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robl |
vigga6... New - Surgery second time ?
Is it much risk, to have second surgery.? The first was not good enough. I have temporal lobe epilepsy, on left part of the brain. How are the hospitals in Sweden ?
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 Gina M... New - Neurologist Hunting
Doctor hunting is a rather daunting prospect but the alternative, staying with my current neurologist, is unacceptable at this point, so how do I start?
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xavier... New - It's been 1 week since I underwent my Corpus Callosotomy
Last Tuesday, I underwent the first of three surgeries in an attempt to control my E. I had a Corpus Callosotomy at UAB/Children's Hospital. I will still likely have to undergo a resection of the foci, but that will come in a few months.
So far...
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 cvargas New - MEDS VS. DRUGS whats the difference
I live in El Paso,Tx and my Dr is in Dallas Tx so right now Im staying in Dallas so that my "meds" can level out.
I wasnt able to walk straigt stand by my self ...I was using a cane now Im being taken off of keppra and vimpat is being added...
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xavier... |
xavier... New - I'm having a contest on my website
Hello Everyone,
I'm home and enjoying the comforts of my own house. Yesterday was pretty much a lazy day for everyone in my family as were all exhausted after being in the hospital for the past week.
I've got some new stuff on my website, www.xaviersjourney.com. ...
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 ladybu... New - EMU
Hello all!
Hoping i can get some pointers or ideas on how to enduce a seizure. Im sitting here in the epilepsy monitoring unit at the University of Colorado. Off my meds now and have tried multiple things to get a seizure that they can capture....
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 ouize |
unicorn26 New - Seizures are running my life!!
Hi.. I am a 56 year old female and this is my first Blog in my life. I have been checking out the Epilepsy website for the past 2 years and today I just decided that's it... registered... and here I am. I am really having a hard time these days (the past...
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Runnin... New - Don't let it take over your life
About 10 years ago, I was sent for an assessment for surgery to cure my epilepsy, but when the doctors found that they couldn't perform the surgery on me, they doubled the amount of medication that I had been taking. I was now put on the maximum...
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xavier... New - Looking for suggestions
Hello All,
I am working on a site that chronicles my journey through E in order to help other children like me. I would love suggestions, feedback, advice, or anything that you think could help children understand this illness better. If you have...
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xavier... New - Successful Surgery
Hello All,
I just wanted to update you on my recent surgery. I had a corpus callosotomy on 23JUN2009 at Children's Hospital/University of Alabama, Birmingham. It was performed by Dr. Blount who is amazing. I am recovering well and left the hospital today.
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maveri... |
Living... New - I'm back. ( : Does anyone know anything about nicotine patches and epilepsy?
This time i'm back on here but not for school. By the way, I graduated for
anyone on here that I have talked to before. (: I also made Mastery on my Senior
Project which was on Epilepsy.
Oh and does anyone know anything about nicotine...
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tweety 12 New - me
i was just wondering if there is any one in my state of new mexico who has sezuirs grandmal at night i could just talk with i cant seem to find any one and my husband and family dont want ot talk about becouse they say it was a scarey thing to see me have...
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Sherri... New - They won't let my daughter go to Church camp b/c of Epilepsy!
I am so upset right now and I don't know what to do... My daughter was signed up to go to church camp with her youth group to Dry Gulch in Oklahoma. She is 16 years old and has not had a seizure in about/a little over a year. She has complex partial...
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4myson |
summer... New - out of control :(
Im lost n very discouraged.... My 11 yr old daugther has uncontrollable seizure disorder been goin on for 4 yrs cant seem to get help and she has regressed since her diagnosis in 2006
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britta... New - this stinks!!!
i have epilepsy and everyone makes fun of me in school i just go along with it so i dont look like a fool. they always like shake around and pretend they are having a seziure. i just wanta friend that will not make fun of me :(
p.s. im 11
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ny2ga67 |
jcflores New - Dilantin vs Keppra
I am feeling lost. I have been on Dilantin for the past 7 years and have been seizure free. I recently had an EEG and it came back normal. So they decided to take me off the Dilantin. On the third week of being weined off I had a seizure.
Now my Neurologist...
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chelle-g |
 bent_e... New - hellloooo everyone am back
hey there am back,, i know it was a long time since my last login
many things have been changed lately,, still having my seizures
still on keppra plus anew medicine called topamax
i got really fed up with this stupid doctor iam having...
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 banffgirl New - THIS IS DEDICATED TO ALL THE DRIVERS WHO HAVE SIEZURES- I KNOW YOU WONT READ THIS
IN THE NEWSPAPER HERE THE OTHER DAY THERE WAS AN ARTICLE ABOUT A MAN TRYING TO GET TEXAS TO MAKE IT MANDITORY TO REPORT A SIEZURE TO THE DPS. THIS OF COURSE WOULD HAVE YOUR DRIVERS LICENCE TAKEN AWAY UNTIL YOU ARE 12 MONTHS SEIZURE FREE. TEXAS HAS A VOLUNTARY...
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 jayenm... New - She's now an adult
It's been a while since I was on this site. My life is forever busy and yet while reading my previous blogs, I am reminded at the power of faith and prayer. I have never been one to turn to religion but I honestly can say, I would never have gotten thru...
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 Daronides |
erykaj New - The Return
I go back to work tomorrow and I have misgivings about it. Not because I dont like my job, I do. I just feel like I can't get a momen't peace from my boss. Every move I make is in question. It makes me uncomfortable.
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haley09 New - Haley's Blog
Hi, my name's Haley Finch, and I'm 17 years of age. I found this website, and from reading over some of the blogs and forums I have found everything to be very helpful.
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