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Blog Index
 becky89 |
 quesof... |
 argyle... |
 earthq... |
 Juniper |
bedford |
mash4077 |
wounde... |
cicilu... |
watson... |
Prinny |
pwalker |
michel... |
 pinkve... |
maryhope |
 Syd-Vi... |
gthompson |
gnarly... |
 aek1985 |
 gbbruc01 |
cmh29 |
 Tabby |
krigg |
alycat13 |
 Royalla |
JessMe |
 GabyMa... |
lilsha... |
tiredo... |
jillsmom |
samant... |
nedra |
caschr... |
Ricard... |
 claire... |
Blog Activity
becky89 New - nightmares
Well then it happened again this time while I was sleeping. Weird enough, never had it like that before, awful nightmare to start with, with me running from others to get out and "waking up" to see my boyfriends worrying face, but I just said, "don´t leave...
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 jacky99 New - i need to vent...
i need to get this all off my chest. i know it complaining but this has been building and building and building for the last two years that if i do not let this out i will probably die of a brain anneurysm or something stupid from all the thinking and stress.
so...
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michel... New - michelle
hi i have seizures and iam feeling better about myself and my seizures . i read this blog about this man who cant accept his wifes seizures. if you really love someone you will accept there seizures because my husband has he loves me and my seizures ....
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 Shenoah New - I hate the hospital.
They called and cancled when we had everything set up.. this is the SECOND time we have been prepared and they let us down..
I hate the hospital.
I hate this.
I'm at a loss of words.. I just thought I...
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 MichaelK |
kjeldo... New - Awesome night & 711 Food Posioning
I had one of the best nights last night out at the bar with
my friends. But right now I feel terrible terrible pain in my guts.
I feel like it is karma. Somebody said something to me about Terry Fox
and it made me quite angry. I repeated to some...
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quesof... New - Well, I know.... (Question at bottom of blog.)
I'm not Epileptic and most of the blogs I've seen are people with Epilepsy.
I know my husband would never look into sites like this, let alone write a blog. He is Epileptic and isn't sure what kind he has because of his hatred of hospitals. He had...
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argyle... New - Drooling associated with BRE?
Hi :) last May at the age of 13 i had my first tonic-clonic seizure i went to Cook Children's Hospital and they preformed alot of testing a week later i was told i had Rolandic Epilepsy and that i will most likely grow out of it but that they would like to...
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 caboose New - Acupuncture and Craniosacral Therapy
Acupuncture and Craniosacral Therapy
I had more acupuncture and Chinese herbs on Wednesday between work and
classes. Sarah, my friend and student practitioner, needled different
points under a different doctor. These hurt less. The first doctor was
from...
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kjeldo... |
 wenko New - seizure alert dog
I don't quite agree with all of this article I dont feel seizure alert dogs are hyped up
at least in my case Having epilepsy all my life
we always had a dog in our family. Our dog sensed my partial seizures and stayed at my side as he knew it would...
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kjeldo... |
earthq... New - Earthquake's blog
Hello everybody , Having a litl trouble getting on the chat room but if anybody wants to get ahold of me send an Email Jones.jimbob1@gmail .com
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Shenoah New - We finally set a date. AND COLLEGE
Joe is going into the hospital this Monday, they are putting
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 epi_help New - time for an update!
Hi everyone,
Hope all is well with everyone. It's been great meeting lots of new people on the site lately! I hope you are finding the site helpful, and are finding your way around. If you need any help, feel free to contact me, any of the mentors...
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Juniper New - New and Worried
I am new to this site, as a member, but have browsed through. I'm here because this seems to have the information pertinent to what I'm feeling. I look through different sections and I feel I can go, "Yep! That's me..."
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bedford New - 4th ANNUAL EFA WALK - MARCH 27, 2010!
MAKE YOUR RESERVATIONS NOW to go to Washington DC for 4th annual EFA Walk for Epilepsy!! Let the world know that epilepsy is no small thing. Meet others and make friends
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mash4077 New - same dose for 6 years possible unidentified seizures
My 10 year old son has been on the same dose of Trileptal for 6 years. Every since he was 4, when his first focal seizure appeared, he has been on Trileptal 300mg at bed time. Even though he more that triples his weight, he remains on the same dose. Lately,...
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wounde... New - Valentines Day
Ok it is almost Valentines Day and with that thought I created an Epilepsy Web Site for Epileptics who want to meet other Epileptics.
http://epilepticsneedlovetoo.webs.com/
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cicilu... New - llllllllllloooooooooooollllllllllll
oh kool a blog so u've probably guessed that i have seizures and on my last one i told the paramedic that he smelt good lololololololololololololololololololololololololololololololololololol
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watson... New - Searching for Answers ...
Hi,
This is my first blog. I've never blog before but I was hoping to get some answers.
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wenko New - Manufacturer of Keppra stops distribution of brand keppra to all pharmacies without notice
I tried get a refill on my seizure med Keppra brand my pharmacist and neuro nurse
told me the manufactuer of keppra has stopped distributing the brand keppra to
all pharmacies
Keppra manufactuer did this without any advanced warning to keppra users or...
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Prinny New - I blocked out
I was diagnosed to have seizure disorder at the age of 16. Id been drinking different types of medicines. I started in phenobarbital, topamax, epival and now depakote. The cause of my seizure is unknown. Myneurologist cant find what triggered my seizure...
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pwalker New - Medication Interactions - Keppra XR
I'm curious about fruit juice, particularly citrus, and the effects they have on how well AED's are absorbed into the blood stream. Anyone have any personal stories or curiosities regarding this topic? I began looking into this and I found that "many"...
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michel... New - seizures
i have seizures and i just found out i had to strokes at birth i take phenobartal and keppra it has been so hard for me but doing ok michelle . when i was in school all up to 6grade i was doing ok until i went to 7 thru 11 grade i was not accepteed because...
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 Hilary... New - Frustrated
These past few days have been agravating, so much stuff happening all at once and its hard to deal with. I am hoping that one day I will be able to get back to normal and not have to worry about to much stuff anymore.
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pinkve... |
MichaelK New - Waiting and trying to understand
"Just stop!" I would scream many times in my mind today at my right hand as it either quickly curled or jumped up for no reason. Some days I would scream that at both hands as I could not control how they acted to the point of not being able to hold a cup.
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Hilary... New - Please Help
Hi my name is Hilary and I have set up an Acct at Bank of America. Its to help pay for my medical bills if you could please donate that would be so helpful.
Please go to my carepage www.carepages.com and type in Hilarysjorneytohealing in the search...
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Syd-Vi... New - Im a 14 year old girl (from the U.S.) with JME and in need of a friend like me!
Hey, My name is Sydney Gray, and im kinda new on here. I live in Missouri in the U.S. I am a 14 year old Girl with Juvenile Myoclonic Epilepsy (JME) and I was diagnosed over the summer of 2009, and im still struggling. I am really on my own with dealing...
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Syd-Vi... New - Im a 14 year old Epileptic Teenager and my life sucks all because of a simple brain disorder!!
My name is Sydney & I am a 5ft 7in 14 year old 8th grader. I use to be your average girl. I played basketball, volleyball, track & softball & loved them all. I guess i was kinda good at basketball because i got recruted to play on a Varsity team...
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maryhope |
 KatieF... New - First VEEG....
So I had my first VEEG this past week from Monday Jan. 25th to Friday Jan. 29th.....I didn't have any grand mals or complex partials while in the hospital however, I did have some myoclonics and simple partials. The epileptologist on call for this past week...
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Syd-Vi... |
 CCrawford New - A working epileptic
Today was embarrassing. I hate to admit it, but it was. I had a seizure at work. Sitting at my desk infront of my computer. I felt the aura, but I swear it felt like time stoped or for a moment I was out of it and then I came to. But when it was...
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wenko New - "I am socialogically sick"
why is it amongst a crowd if someone has diabetes or anything else it is open topic
but if I bring up that i have epilepsy Im told to hushhh about it
or the room is so quiet you can hear a pin drop...and I get no support like the
diabetics or other ...
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wenko New - Epilepsy seiizures/driving to pharmacy and neurologist impossible!
How can I take care of myself when there is no public transportation
to get to my neurologist and pharmacy for seizure meds?
I call up for help and told no help for me where I live
I thought it was the law that some type of transportion is provided...
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gthompson |
kjeldo... |
gnarly... New - lamictal insomnia and other symptoms help???
I was diagnosed with jme in october of 09. Im a 23 yr old in shape and active male. However one morning i woke up from a night of drinking got into the shower and then woke up in an ambulance. Two weeks later i was diagnosed which came as a total shock to...
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 crashl... New - The Llama Zoo
I have been seizure free almost a year. Woo Hoo! With the addition of topamax on top of lamictal I've done really well. Except I have no memory. Nada. They don't call it Dopamax for nothing. And I'm not even on that high of a dosage.
I have to write...
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aek1985 New - things today
today i was hopein' to just chill and relax not have to worry about anything but of course havin ' a three yr. old child livin' in the house u need to have alot of attention go to them too.
i love my nephew very much but man does he talk alot!!!!...
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kjeldo... New - Cannabinoid Hyperemesis Syndrome : Clinical diagnosis of an under recognized manifestation of chronic cannabis abuse
Since I’ve finished 3rd year electrical I’ve decided to take a break from righting. I kept being as and told that everyone reads this on facebook. It made me feel uncomfortable to I stopped. Well anyway I finished my course & just in time because...
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 Audrey... New - Three Years Later
It's been almost 3 years since I started this blog, and since that time I have met so many people via the web who are suffering from seizures after gastric bypass surgery. To my knowledge, neither the neurological community nor the gastric bypass community...
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 djj58 New - Seizure meds that cause more seizures
My 15 yr old son has intractable epilepsy for 14 yrs. He is on Keppra, Carbatrol, and Vimpat. He has been having 1-2 seizures/night for a few months, started seeing the chiropractor for a couple of months due to back pain. He is now standing straighter,...
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hazel ... New - Anyone w/ temporal lobe epilepsy and not on medication?
I'm just wondering if there is anything natural to help w/ these? I've never actually had a grand mal or anything, just the freakish auras and the horrible headaches that follow. Had these since a child, probably since I was 2-3. I do not believe I need...
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gbbruc01 New - absence turning into grand mal
im eighteen years old and i have had absence seizures since i was in sixth grade. About two weeks ago i had my first grand mal seizure. I am on Lamictal and take 100mg in the morning and 200 mg at night. Ever since i had my grand mal I have noticed a lot of...
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jillsmom |
alwhite New - Getting a Job
Hi everyone! I am still trying to figure out how to navigate through this site. Anyway, I used to be a critical care procedural RN. I had to quit (on my own terms) because I was having way too many seizures. I am on disability right now. I am wondering...
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Ashutosh New - How far it is good to do a surgery
here is my story, i was having seizures for more that 2 years but after the prescription the doctior i decreased my medicine (fentoin ER) by 100mg per day, after a week i had a seizure again after 6 days i had another seizure later after the prescription...
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