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Blog Index

Gubs
Gubs
On E
Created by Gubs|39 Views|2 Posts
Latest Postat03/21/2010 - 8:44am|1 View|0 Comments
The late onset, nocturnal
Kimand...
Kimand...
KimandLannie's blog
Created by Kimand...|6 Views|1 Post
Latest Postat03/20/2010 - 7:03pm|1 View|0 Comments
R_Vand...
R_Vand...
R_Vandercook's blog
Created by R_Vand...|12 Views|1 Post
Latest Postat03/19/2010 - 10:09am|3 Views|0 Comments
 
2112
2112
2112's blog
Created by 2112|20 Views|1 Post
Latest Postat03/18/2010 - 10:06am|6 Views|1 Comment
 
poonewz
poonewz
poonewz's blog
Created by poonewz|26 Views|1 Post
Latest Postat03/16/2010 - 7:46pm|3 Views|0 Comments
cpartlvr
cpartlvr
cpartlvr's blog
Created by cpartlvr|57 Views|1 Post
Latest Postat03/16/2010 - 7:42pm|5 Views|0 Comments
 
Its Me
Its Me
Its Me
Created by Its Me|39 Views|1 Post
Latest Postat03/16/2010 - 11:16am|5 Views|0 Comments
I had a Brain Tumor Removed in the early 80"s
MeLy D.
MeLy D.
MeLy D.'s blog
Created by MeLy D.|35 Views|1 Post
Latest Postat03/16/2010 - 9:32am|5 Views|1 Comment
 
Lisake...
Lisake...
Lisakelli1's blog
Created by Lisake...|30 Views|1 Post
Latest Postat03/15/2010 - 8:47pm|8 Views|2 Comments
 
Peanutz
Peanutz
Peanutz's blog
Created by Peanutz|28 Views|1 Post
Latest Postat03/15/2010 - 5:13pm|6 Views|0 Comments
 
Sanfor...
Sanfor...
SanfordTAS's blog
Created by Sanfor...|25 Views|1 Post
Latest Postat03/15/2010 - 10:56am|1 View|0 Comments
 
trey2007
trey2007
trey2007's blog
Created by trey2007|47 Views|1 Post
Latest Postat03/11/2010 - 8:25pm|13 Views|0 Comments
 
aprilb114
aprilb114
aprilb114's blog
Created by aprilb114|57 Views|1 Post
Latest Postat03/10/2010 - 6:51am|3 Views|0 Comments
 
jaorande
jaorande
jaorande's blog
Created by jaorande|31 Views|1 Post
Latest Postat03/08/2010 - 7:39pm|1 View|0 Comments
 
Christ...
Christ...
Christine86's blog
Created by Christ...|84 Views|3 Posts
Latest Postat03/17/2010 - 11:36am|7 Views|0 Comments
 
naskp
naskp
naskp's blog
Created by naskp|38 Views|1 Post
Latest Postat03/06/2010 - 6:50am|2 Views|0 Comments
 
dietpills
dietpills
dietpills's blog
Created by dietpills|46 Views|1 Post
Latest Postat03/04/2010 - 10:41pm|4 Views|0 Comments
 
hnubts...
hnubts...
hnubtshiab's blog
Created by hnubts...|706 Views|1 Post
Latest Postat03/04/2010 - 3:44pm|15 Views|1 Comment
 
shags38
shags38
shags38's blog
Created by shags38|51 Views|1 Post
Latest Postat03/03/2010 - 7:21pm|11 Views|1 Comment
 
Vampir...
Vampir...
VampiressSaraBrook's blog
Created by Vampir...|62 Views|1 Post
Latest Postat03/01/2010 - 6:00pm|13 Views|2 Comments
 
davidm...
davidm...
davidmorrison's blog
Created by davidm...|84 Views|1 Post
Latest Postat02/28/2010 - 7:37pm|15 Views|3 Comments
 
lisalou
lisalou
lisalou's blog
Created by lisalou|121 Views|5 Posts
Latest Postat03/11/2010 - 2:24am|18 Views|1 Comment
 
shubham
shubham
shubham's blog
Created by shubham|73 Views|1 Post
Latest Postat02/27/2010 - 10:29am|11 Views|1 Comment
 
pushed
pushed
pushed's blog
Created by pushed|66 Views|1 Post
Latest Postat02/27/2010 - 12:51am|15 Views|0 Comments
 
reader9
reader9
reader9's blog
Created by reader9|64 Views|2 Posts
Latest Postat03/09/2010 - 12:41pm|13 Views|1 Comment
 
song bird
song bird
song bird's blog
Created by song bird|72 Views|1 Post
Latest Postat02/23/2010 - 11:08am|13 Views|4 Comments
 
stacei...
stacei...
staceinspace's blog
Created by stacei...|115 Views|2 Posts
Latest Postat02/22/2010 - 10:12pm|14 Views|0 Comments
 
sharon516
sharon516
sharon516's blog
Created by sharon516|88 Views|1 Post
Latest Postat02/22/2010 - 1:01pm|2 Views|0 Comments
 
mawmaw06
mawmaw06
mawmaw06's blog
Created by mawmaw06|67 Views|1 Post
Latest Postat02/22/2010 - 8:44am|7 Views|0 Comments
 
jaketh...
jaketh...
jakethesnake2056's blog
Created by jaketh...|61 Views|1 Post
Latest Postat02/19/2010 - 5:48pm|5 Views|0 Comments

Blog Activity

Gubs
Gubs
New - My memory, mental function's been badly affected. Is it the medication, or the fits?
Created by Gubsat03/21/2010 - 8:44am|1 View
Blog Posted To: On E
Gubs
Gubs
New - Any ideas?
Created by Gubsat03/21/2010 - 8:20am|1 View
Blog Posted To: On E
I'm starting to think my late onset (at aged 39), nocturnal (plus around waking or going to sleeping) epilepsy has to do with sleep patterns.
Daniel...
Daniel...
New - confessions of a blogaholic
Created by Daniel...at03/20/2010 - 10:58pm|5 Views|1 Comment
Blog Posted To: Instability at its finest
seizures this week: plenty laws broken today: 1 caffeine consumed: 2 units Some days it is a lot to handle. Some weeks it is a lot to handle.
Kimand...
Kimand...
New - we have a question
Created by Kimand...at03/20/2010 - 7:03pm|2 Views
Blog Posted To: KimandLannie's blog
They just put my son on debakote ER and Our question is can anyone please tell us about this medicine. He is doing good on it so far. His eyes are not rolling any more. Any info. would be helpful. Thank You.
CCrawford
CCrawford
New - Tegretol & Lamictal & Depo
Created by CCrawfordat03/20/2010 - 10:04am|2 Views
Blog Posted To: CCrawford's blog
Wow do I feel much better.  My neurologist stoped the Topamax and gave me Lamictal.  THis works much better with my Tegretol.  I'm not even having the auras.  Although I do feel a little strange when I don't get enough sleep.  I can definately feel sleep...
stephs...
stephs...
New - Car Crash - But Only Figuratively
Created by stephs...at03/19/2010 - 7:38pm|2 Views
Blog Posted To: Postictal Fusion
OMG - it's been over a year since I've written in my blog.  I wish I could say a lot has happened, a lot has changed... but meh...it's about the same. My arm shakes sometimes during the day - every once in a while at night. The nocturnal stuff's the most...
R_Vand...
R_Vand...
New - How in the world can I....
Created by R_Vand...at03/19/2010 - 10:09am|3 Views
Blog Posted To: R_Vandercook's blog
I am thirty-one and have had Grand and pettet maul siezures for about eight years now. I have been diegnosed with post-tramatic epilepsy. I'm a chef and have been living with family and friends since I've been siezing but I feel like I have been a burden...
jillsmom
jillsmom
New - Jillian's Progress
Created by jillsmomat03/19/2010 - 7:59am|3 Views
Blog Posted To: jillsmom's blog
Jillian feels much better today. She has stayed awake for a long time and played and laughed and smiled. She had low grade this am at 5. Everytime she has formula, she throws up. So gramma jean suggested trying a little applesauce with the pedialyte, which...
2112
2112
New - 2112
Created by 2112at03/18/2010 - 10:06am|6 Views|1 Comment
Blog Posted To: 2112's blog
I am 47 yrs old. Ive had epilepsy since I was 12. Ive taken Dilatin, Infatab, tegratol, Lamectal, Zonegram ( which gave me kidney stones two months in a row), and now am taking Keppra XR. Everything was going fine until last Sat. I had a seizure at work. Luckily...
MichaelK
MichaelK
New - Specimen for Study Part II - Stupidity of Doctors
Created by MichaelKat03/17/2010 - 6:35pm|4 Views
Blog Posted To: MichaelK's blog
I have been in this hospital for over two weeks. My doctor asked me "what do I really want from these tests?" I wanted to punch him for his raucaus stupididy. I want my life back, and have been sacrificing everything I can to get it.
pibbs84
pibbs84
New - Support Groups/Naples
Created by pibbs84at03/17/2010 - 11:37am|3 Views
Blog Posted To: pibbs84's blog
I wanted to know if anyone ever put together a support group. I am meeting up with someone tomorrow and we are putting one together. I wanted to see if anyone had any ideas.
Christ...
Christ...
New - Doctors and diets
Created by Christ...at03/17/2010 - 11:36am|1 View
Blog Posted To: Christine86's blog
So I am still on the hunt for a different doctor. My primary doctor recommended a neurologist. But I can't figure out where this doctor practices. I asked my primary doctors nurse and she just said oh I am not sure I just know it's somewhere in the city....
jillsmom
jillsmom
New - Jillian's Progress
Created by jillsmomat03/17/2010 - 6:19am|7 Views|1 Comment
Blog Posted To: jillsmom's blog
Jillian had fever last evening and during the night. Her fever is gone this morning, but she doesn't seem to feel well yet. Dr. Chugani will see her this afternoon, so we will know more then. Thanks to all.
poonewz
poonewz
New - 3 yr old nephew having seizures
Created by poonewzat03/16/2010 - 7:46pm|3 Views
Blog Posted To: poonewz's blog
Hello Community,
cpartlvr
cpartlvr
New - Epileptic with an unsupportive spouse..Should I leave him?
Created by cpartlvrat03/16/2010 - 7:42pm|5 Views
Blog Posted To: cpartlvr's blog
Hello,
Its Me
Its Me
New - Still Alone
Created by Its Meat03/16/2010 - 11:16am|5 Views
Blog Posted To: Its Me
I have been looking for someone to date and one day get married.  My epilepsy had gotten in the way. One of the first things I let a guy know is of my condition, just in case a seizure comes up in the mist of a date.  I will not say it right away,...
Daniel...
Daniel...
New - spiderman
Created by Daniel...at03/16/2010 - 9:50am|4 Views|1 Comment
Blog Posted To: Instability at its finest
So I get my eeg tomorrow. I am a little nervous. Maybe it is because in comic books every time they get hooked up to a machine they come out with super powers. I vote Wolverine's if I get to choose. ;)
MeLy D.
MeLy D.
New - Married to an Epileptic and feeling alone.
Created by MeLy D.at03/16/2010 - 9:32am|5 Views|1 Comment
Blog Posted To: MeLy D.'s blog
Hello to all! I am new to this site and am hoping someone will read my blog and give me some feed back.
jillsmom
jillsmom
New - Jillian's Progress
Created by jillsmomat03/16/2010 - 7:05am|2 Views
Blog Posted To: jillsmom's blog
Tuesday morning and we are doing well. Jillian had one drain removed yesterday, and Dr. Sood said the other drain will be taken out this afternoon. We are very excited about this because it will be easier to move her. She is staying awake for longer periods...
MichaelK
MichaelK
New - A Specimen for Research
Created by MichaelKat03/15/2010 - 9:51pm|2 Views
Blog Posted To: MichaelK's blog
Here is my donation to science: the unforgiveness of my Epilepsy. A group of doctors told me that the results of my VEEG were inconclusive and so my doctor is going to present my case to a group of Epileptologists and neuroseurgons this week. Has there...
Lisake...
Lisake...
New - I need an answer.
Created by Lisake...at03/15/2010 - 8:47pm|8 Views|2 Comments
Blog Posted To: Lisakelli1's blog
I am not epileptic, but my Husband is epileptic.  We live in an apartment comunity that just installed flourecent lighting.  My husband has not been feeling well since.  My question is can flourecent lighting cause siezures or cause an epileptic to feel...
Daniel...
Daniel...
New - great expectations
Created by Daniel...at03/15/2010 - 7:41pm|4 Views
Blog Posted To: Instability at its finest
Some things are paradoxes. Things you cannot wrap your mind around no matter how hard you may try. For me lately, the paradox with which I have been struggling is expectations. I was told today that I am too hard on myself. At first I totally disagreed...
Peanutz
Peanutz
New - Peanutz
Created by Peanutzat03/15/2010 - 5:13pm|6 Views
Blog Posted To: Peanutz's blog
Sanfor...
Sanfor...
New - Neighborhood with high frequency of Seizures
Created by Sanfor...at03/15/2010 - 10:56am|1 View
Blog Posted To: SanfordTAS's blog
jillsmom
jillsmom
New - Jillian's Progress
Created by jillsmomat03/14/2010 - 2:11pm|7 Views|1 Comment
Blog Posted To: jillsmom's blog
Ok everyone. We are out of the picu and onto the neurology floor. Not a private room but we are dealing with it. Jillian doesn't seem to be bothered so that is all that matters.
Daniel...
Daniel...
New - gerbera daisies
Created by Daniel...at03/14/2010 - 5:43am|12 Views|3 Comments
Blog Posted To: Instability at its finest
Well the wedding last night went off without a hitch. Happy! There was an incident with a two year old ring bearer but... All in all it was beautiful. Glad I didn't give in to the fear or I would have missed the cheer of the night and a chance to get a daisy.
xavier...
xavier...
New - 2010...more of the same???
Created by xavier...at03/14/2010 - 5:38am|4 Views
Blog Posted To: xaviersjourney's blog
Hello Everyone, 2010 is a few months old now and hopefull the new year is treating you all well.  I'm ready for spring.  We had a cold and snowy winter this year which is quite odd for southwest Georgia, US.
Daniel...
Daniel...
New - headaches and tulle
Created by Daniel...at03/13/2010 - 8:35am|8 Views|1 Comment
Blog Posted To: Instability at its finest
Tonight I have a wedding. Icing and candles and frufru but I am excited to make it happen. Yet I have not only the mild headache that has not left since I upped my dosage but the nagging feeling of what if... It is such a complicating thing. What if...but...
jillsmom
jillsmom
New - Jillian's Progress
Created by jillsmomat03/13/2010 - 8:00am|13 Views|1 Comment
Blog Posted To: jillsmom's blog
Saturday morning and Jillian is doing well. She is very sleepy and somewhat fussy, but the doctor's agree she is doing well. We will be taking her to a regular floor soon ( out of ICU). I will give more details soon. Pray for continued healing.
jillsmom
jillsmom
New - Jillian's Progress
Created by jillsmomat03/12/2010 - 7:02am|11 Views|1 Comment
Blog Posted To: jillsmom's blog
Ok, I have not updated like I should have. But here's the latest. Jill is in her second surgery right now. We just got an update from the OR nurse. She is doing well. Surgery will last 6 to 8 hours. I will try to update again, but it is hard...
trey2007
trey2007
New - Son with seizures
Created by trey2007at03/11/2010 - 8:25pm|13 Views
Blog Posted To: trey2007's blog
Hello, my name is Pamela,  I am new to this sight and am looking for any advice possible for my son....   He has been taking seizures since the age of 5 and 1/2 months, they started out as him rolling his eyes and dropping his head along with a grunting...
Daniel...
Daniel...
New - mexican food, hairspray, and the pendulum swing
Created by Daniel...at03/11/2010 - 5:06pm|5 Views
Blog Posted To: Instability at its finest
Just started upping my meds last night and it all came screaming back to me. Does anyone else get cravings on topamax? The first month or so after an increase in dosage for me is like my very own pregnancy...I crave random foods at random times and all the...
lisalou
lisalou
New - Tick tock tick tock
Created by lisalouat03/11/2010 - 2:24am|6 Views
Blog Posted To: lisalou's blog
Tick tock. Tomorrow is Friday and for the last two weeks I have ended up in hospital on friday nights. Is it work? Tiredness? Stress? Just one of these things? Tick tock. I am so nervous that I am just a time bomb walking around. I am trying to find...
michel...
michel...
New - michelle
Created by michel...at03/10/2010 - 2:53pm|3 Views
Blog Posted To: michelle41's blog
 i went to see my doctor about my meds and the side effects keppra has he told me to  wait until my next visit why  iam on phenobartal  he told  me to see a physcologist has that happen to you before . so i did  and it has helped me how to cope with...
Daniel...
Daniel...
New - more drugs, no rock and roll
Created by Daniel...at03/10/2010 - 2:49pm|13 Views|3 Comments
Blog Posted To: Instability at its finest
So I went to the neurologist today. She is upping my topamax by a total of 50 mg. Not much, but enough to make me a little bit crazy, little bit angry. Hopefully I don't throw my guitar at anyone like last time. We will see where this takes us...
aprilb114
aprilb114
New - emilys epilepsy
Created by aprilb114at03/10/2010 - 6:51am|3 Views
Blog Posted To: aprilb114's blog
emily is currently on epilim and its doing wonders for her. my 19 month old baby is doin great. her seizures are controlled so far. although her test and scan all came back with no reason as to why she has it, which is frustrating but good that ther are no...
reader9
reader9
New - I need insurance!!
Created by reader9at03/09/2010 - 12:41pm|2 Views
Blog Posted To: reader9's blog
I just turned 23 and was taken off of my parents' insurance plan.  I need to find my own, and am having a lot of trouble.  I applied to Blue Cross Blue Shield, but was rejected because of my condition.  We are looking up Humana, but apparently I have...
Daniel...
Daniel...
New - knocked over by a rabbit
Created by Daniel...at03/09/2010 - 8:48am|3 Views
Blog Posted To: Instability at its finest
I feel like I am a juggler, only I need three arms, because every time I get all of the balls rolling one flies caterwankus and I can't catch it. Lately my seizures have gone mad on me, doing things that they have never done before. Oh, what to do. For...
jillsmom
jillsmom
New - Jillian's Progress
Created by jillsmomat03/09/2010 - 6:29am|10 Views|2 Comments
Blog Posted To: jillsmom's blog
Jillian is in surgery right now. Please pray for all health staff and for Jillian. We are hanging in there.
sonicboom
sonicboom
New - been a year and things have changed
Created by sonicboomat03/09/2010 - 4:48am|2 Views
Blog Posted To: Me my life and stuff
goodness gracious i havnt written on here for over a year.. i dont know where the time goes, this of course is not helped by the fact that i spend a fair few extra hours every month unconcious or post ictal...  let me see...  
MichaelK
MichaelK
New - Lack of common sense in some doctors.
Created by MichaelKat03/08/2010 - 9:31pm|8 Views
Blog Posted To: MichaelK's blog
Day 5 of my hospital stay. It is snowing heavily outside here in Tokyo. I am wearing a ECG and am forbidden from taking a shower and I have to log everything I do on a little sheet. The MRI results came in and the doctor thinks I have Left Temporal Lobe...
Christ...
Christ...
New - Another day a different.
Created by Christ...at03/08/2010 - 9:13pm|8 Views|1 Comment
Blog Posted To: Christine86's blog
jaorande
jaorande
New - Hi everyone
Created by jaorandeat03/08/2010 - 7:39pm|1 View
Blog Posted To: jaorande's blog
Hi, i am new to blogging but i know i have a lot to share. some might be fun, crazy or me being me. I have been  diagnose with epilepsy for nine year and i am trying to beat it. i have my own method of keeping me seizure free and it works well for me. i...
kjcana...
kjcana...
New - my epilepsy lately
Created by kjcana...at03/08/2010 - 2:17am|7 Views
Blog Posted To: My bad day
WOW, IT HAS BEEN A LONG TIME SINCE I'VE BEEN ON HERE! I HAD BEEN DOING GREAT UP UNTIL JANUARY 27TH. I WAS AT WORK THEN ALL OF A SUDDEN MY CO-WORKERS WERE CARRYING ME TO A PRIVATE OFFICE WHERE I PROCEEDED TO HAVE A SEIZURE. THEY OF COURSE CALLED AN  AMBULANCE...
lisalou
lisalou
New - I have had another seizure!
Created by lisalouat03/06/2010 - 4:41pm|25 Views|5 Comments
Blog Posted To: lisalou's blog
I am recoveing from my Friday night which shoud have been ful of friends and fun but instead I spent the majority of the night at the Emergancy room!
Christ...
Christ...
New - What can I say...
Created by Christ...at03/06/2010 - 11:05am|7 Views
Blog Posted To: Christine86's blog
naskp
naskp
New - Partial Seizures
Created by naskpat03/06/2010 - 6:50am|2 Views
Blog Posted To: naskp's blog
My 10YR  old son is suffering from partial seizures .WHATS THE BEST AVAILABLE TREATMENT ---
dietpills
dietpills
New - hello
Created by dietpillsat03/04/2010 - 10:41pm|4 Views
Blog Posted To: dietpills's blog
hi,this is my blog.
hnubts...
hnubts...
New - epilepsy - to share or not to share
Created by hnubts...at03/04/2010 - 3:44pm|15 Views|1 Comment
Blog Posted To: hnubtshiab's blog
I was talking with two friends today about a book, The Spirit Catches You and You Fall Down (http://my.epilepsy.com/node/4334). It's about a young girl with epilepsy and the struggle between culture and medicine. It was a good theoretical conversation about...
shags38
shags38
New - Will 3D Television or movies trigger seizures?
Created by shags38at03/03/2010 - 7:21pm|11 Views|1 Comment
Blog Posted To: shags38's blog
There is much hype and concern about the effect of 3D viewing being a trigger to epileptic seizures - the concerns and the myths need to be dispelled, or proven. This is the hottest topic globally amongst epilepsy sufferers causing often unwarranted...

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