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Thu, 2/9/2012
Take control of your epilepsy and seizures. Seizure management has never been easier.
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Blog Index
 johnve... |
zachar... |
Arizon... |
lvfash... |
davids... |
 pfincher |
 xyz123... |
empery521 |
eblack... |
 photo-... |
bethmu... |
dlott |
forlife |
lizzie... |
 Bob Co... |
maticusw |
worrie... |
michelleU |
 Bowlof... |
 JennDPT Jennifer's Blog
This blog will be used as a place for me to share my stories and frustrations of living with non-epileptic seizures. The challenges of having your driver's license suspended and being placed off of work. The loss of independence and change in lifestyle that...
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amygue... |
karenuu |
cn-lig... |
Blog Activity
johnve... New - The Sunday Dreads
At the end of a weekend you
always like to feel you’ve done something with the time given. Whether
you’ve lazed around doing feck-all as planned or walked Mount Brandon
on Saturday and climbed Carrantouhill on Sunday at least having a
memory of...
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zachar... |
cn-lig... New - Frederick's of Hollywood Announces the "Hollywood Love Story Contest" Valentine's Day
Just in time for the most romantic day of the year, Frederick's of Hollywood, world-famous lingerie retailer, is pleased to announce their "Hollywood Love Story Contest." While it's undeniable that Hollywood has produced some unforgettable romance...
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Arizon... |
 dayna New - Speech at Epilepsy Pipeline Update Conference -2012
I would like to thank Epilepsy Therapy Project for the incredible weekend. I personally had a Fantastic time. It was quite an Honor for me to be chosen to speak at this Conference. I thank you for having the confidence in me. WOW the people I was on a Panel...
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Bowlof... New - Two weeks in with Zarontin
We have now reached the full dosage. Krikey. I don't think I'm ever going to get used to seeing my daughter take this medicine every morning and every night. What upsets me now the most are the side effects that this poor little girl has to feel all the time...
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lvfash... |
 bryan_... New - Epilepsy Pipeline Update Conference
I attended part of the Epilepsy Pipeline Update Conference (http://my.epilepsy.com/etp/pipeline2012) in San Francisco on Saturday February 4, 2012. Wondering if anyone else saw part of the conference or heard the Friday interview.
What did you think? What...
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 Writin... New - Past Life Regressions, Detox Diet, and Other Strange Musings
I had another appointment recently with my "spiritual shrink," Darryl. Because he's out on the west coast and I'm over in the east, we have our appointments over Skype. This time, though, his internet was down, so he asked if a phone appointment was okay....
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xyz123... |
davids... New - Know How To Operate Embossing Machine
Have you ever operated embossing machine? Before revealing you the exact method of operating, let me tell you the function of this machine. Embossing is a method to accentuate a particular part to make it visible. It is a technique that creates a raised image...
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pfincher New - My walk towards surgery
I am writing this for my own outlet but hope it might provide info for others.
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xyz123... |
xyz123... |
empery521 New - Today driving
First partial complex seizure in good long while, while driving. When I came back, I must have driven about 1000 feet without hitting anything. I panicked and was scared when I came back. Only thing I remember was I had a odd sensation in the back of...
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eblack... New - Getting help that all we need,
What do someone do when a person like me and you try to get SSI and they think we are ok? I have been trying for along time to get the help I need but it not working that way. Are they looking for a person to died, lose him mind or just kill himself. People,...
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photo-... New - Photo-sensitive seizures
So you know, this is for the photo-sensitive guys out there. You know, I was declined by Medicaid and SSI not calling me back, but Devaplorex Sodium was what I took. I was on Depakote ER and that was expensive but really good. One in the morning lasts all...
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bethmu... New - 1st post :)
New to all of this as I am coming to terms with my daughter having Epilepsy.
She is now 9 months old and since 4 months has had 3 seizures. We are living in the UK and undergoing various tests. She has had a 30 minute EEG before Christmas but all was...
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ccraven |
dlott New - dlott
I have been on 800mgs. of Tegretol for 32 years now. I have been seizure free for 20 years. My Neurologist tested me to check on whether or not I could discontinue the medicine, and found that I was fine, as long as I continued with the medicine. ...
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Bowlof... New - The Doors.
I spoke to my daughter on the phone and convinced myself she had changed. I couldn't hear her personality anymore. I freaked out of course. I wrote an e.mail to her neurologist asking whether Zarontin was a mind altering drug. Whether my daughter was having...
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Bowlof... New - The first business trip.
I'm on the other side of the world while my baby gets used to her 2.5ml of brain drug every morning and every night. I've noticed that the mention of epilepsy in childhood, leaves people speechless and shocked. Their reactions feed my neurosis and every time...
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forlife |
lizzie... New - why me, why now
why me, why now? i have asked myself that question over and over for the past few years. why do we struggle with infertility? why does my husband have to give me shots every night while giggling at my dimpled bruised butt (he thinks it is still cute and...
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Bob Co... New - Holistic Health Through Natural Remedies
All-natural Zeolites cleanse your body system from heavy metals, radiation, varieties of cancer, HIV, HPV, Herpes, in addition to many various other kept contaminants within the entire body. These products can be used to help our detox our pets waste products,...
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Robina3 New - Robina3
I am a 60 year old woman who has had spilepsy since babyhood. I take Lamictal and Keppra which control the seizures (nocturnal and absence) quite well. However, my medium term memory had been badly affected - lost altogether in certain cases...
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Robina3 New - Robina3
I am a 60 year old woman who has had spilepsy since babyhood. I take Lamictal and Keppra which control the seizures (nocturnal and absence) quite well. However, my medium term memory had been badly affected - lost altogether in certain cases...
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Bowlof... New - I MUST CALM DOWN . I MUST CALM DOWN.
I have to keep reminding myself of a few things:
IT COULD ALWAYS BE WORSE.
This a not a life threatening disease.
There are treatments for it that hold it at bay and do allow the users to continue to live a normal life. Who the hell wants to drive a...
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maticusw New - Australia and Abu Dhabi rules about drugs
Hey, Im going to Aus for the first time in the summer and stopping off in Abu Dhabi. I take 125mg Zonisamide and 300mg Lamotrigine twice daily at the moment. Does anybody know about any problems I may run into (obviously I'll ask my Neuro and Epileptologist...
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maticusw New - Abu Dhabi
Hey, Im going to Aus for the first time in the summer and stopping off in Abu Dhabi. I take 125mg Zonisamide and 300mg Lamotrigine twice daily at the moment. Does anybody know about any problems I may run into (obviously I'll ask my Neuro and Epileptologist...
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worrie... New - On set seziures
My daughter is 4 years old and was just recently diagnosed with chronic on set seizures they have put her on valporic acid in sprinkle form. When the seizures still continued we ended back at the emergency room and they drew blood and we were told her medicine...
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JennDPT New - Upcoming EEG
Today is January 24, 2012, and I have been seizure free since the 15th. The EEG technician called me this morning and said she was able to move up my EEG from Thursday to Wednesday (which is tomorrow....). I am so dreadfully scared that the seizures are...
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Bowlof... New - The medicine is inside of her now. It has started.
I've done it. I've administered the first dosage. 2.5ml of this toxic drug Zarontin. I took a xanax after reading the warning slip that comes in the box. It's scarier than any Steven King story. As if parents aren't freaked out enough we still have to read...
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michelleU New - How does someone deal with such unhappiness?
Hello everyone, I feel so sad and even more mad all the time. I feel like I have a monster growing inside of me. I feel like I am a monster. I am mean, unforgiving, stubborn, selfish, angry, I have unbelievable rage, and any other mean and negative word you...
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Bowlof... New - This has knocked the crap out of me.
I'm exhausted. I've spent the last 3 days reading every bit of info I can find on the web relating to Childhood Absence Epilepsy. I've written to, called, skyped and consulted with neurologists in New york, Sydney Australia, London and Boston. I have done...
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JennDPT New - Long Day
Today is January 22, 2012. Two years ago on this day, my husband committed suicide with a gun shot wound through his aorta. Last year I visited him at his grave site, but not this time. I have mixed feelings about this, because part of me wants to pay tribute,...
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ShawnS |
Bowlof... New - FORUMS NOT HELPING. MAKING THINGS WORSE.
There's just not enough good news stories on here. Not enough happy endings. Not enough success stories. Where are the 65% of kids who grow out of CAE ? Where can I find those stories ?
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Bowlof... New - IMPORTANT LESSONS I'VE LEARNED SO FAR.
The human brain is like one's fingerprint. No two are ever alike. Even identical twins have different brains. So how one brain reacts to a seizure or epilepsy medication cannot be compared with another.
Which brings me to lesson NUMBER 1:
DO NOT READ...
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JennDPT New - My first blog post
Today is January 20th, 2012, and I have been seizure free since late evening on January 15, 2012. I have no driver's licence. I am not permitted to return to work. I have someone "babysitting" me 24/7. I have fallen and hit my head twice, and now I walk...
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amygue... |
Writin... New - Record-keeping: a follow-up
It's late, so I should get to bed. (Sleep is, obviously, very important in managing your brain chemistry.)
But I just wanted to quickly report that my use of Bento by Filemaker (for Mac) is working beautifully. I've been very good at keeping track of everything...
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Writin... New - Dietary Plans: Detox?
My appointment last week with my naturopath went well. So well, in fact, that we actually went overtime. I was so psyched by my own motivation: this is the first time in ages that I've allowed myself to get this excited. (Getting married and having two kids...
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karenuu New - he is not possible to tour the drinking water surface area immediately
the practically all diving motion amateurs is only prepared to deal with inside the tropics shallow water, accompanies the diving using the human, guarantees the security, they typically only satisfy in appreciate the seabed amazing scenery. The US 10,000,000...
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karenuu New - cancer aux ces fonction d'affichage de cellules.
Fait le joint partiel avec la suspension stéro?de de cortex cérébral également pour avoir certain effet.
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karenuu |
cn-lig... New - The shoes are still left outside the cabins to be polished
As the craft glides through the freezing depths of the ocean, more than two miles below the surface, I stare out through the thick glass window into the abyss.
From the external lights of our vessel, I can see across the ancient terrain, which looks...
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Writin... Thoughts on vitamins
In the book "Epilepsy Explained" by Drs. Markus Reuber, Steven C. Schachter, Christian E. Elger, and Ulrich Altrup (2010), they mention that vitamin deficiencies can cause seizures, specifically B6. They do say that "people who eat a healthy, varied diet are...
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 anders... the life of a Keto mom
HI well Nicky was sick last nigth he had some seizures and he had to much fat in his tummy and in turn he threw up.. ugh when then happens his numbers are all off and he starts to cluster and then I have to give him his shots so he can stop seizing.. It...
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FACES Kaitlin's Story
This time last year I was lying in a hospital bed not really understanding how I wound up there. The past few weeks leading up to that had been a blur of doctors appointments, ambulance rides, and trying to keep down more pills than anyone’s stomach could...
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