The late onset, nocturnal
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Blog Index
 Gubs |
Kimand... |
R_Vand... |
2112 |
 poonewz |
 cpartlvr |
 Its Me |
 MeLy D. |
Lisake... |
Peanutz |
 Sanfor... |
trey2007 |
aprilb114 |
jaorande |
 Christ... |
naskp |
dietpills |
 hnubts... |
shags38 |
Vampir... |
 davidm... |
 lisalou |
 shubham |
pushed |
reader9 |
song bird |
 stacei... |
sharon516 |
mawmaw06 |
jaketh... |
Blog Activity
Gubs |
Gubs New - Any ideas?
I'm starting to think my late onset (at aged 39), nocturnal (plus around waking or going to sleeping) epilepsy has to do with sleep patterns.
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 Daniel... New - confessions of a blogaholic
seizures this week: plenty
laws broken today: 1
caffeine consumed: 2 units
Some days it is a lot to handle. Some weeks it is a lot to handle.
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Kimand... New - we have a question
They just put my son on debakote ER and Our question is can anyone please tell us about this medicine. He is doing good on it so far. His eyes are not rolling any more. Any info. would be helpful. Thank You.
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 CCrawford New - Tegretol & Lamictal & Depo
Wow do I feel much better. My neurologist stoped the Topamax and gave me Lamictal. THis works much better with my Tegretol. I'm not even having the auras. Although I do feel a little strange when I don't get enough sleep. I can definately feel sleep...
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 stephs... New - Car Crash - But Only Figuratively
OMG - it's been over a year since I've written in my blog. I wish I could say a lot has happened, a lot has changed... but meh...it's about the same. My arm shakes sometimes during the day - every once in a while at night. The nocturnal stuff's the most...
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R_Vand... New - How in the world can I....
I am thirty-one and have had Grand and pettet maul siezures for about eight years now. I have been diegnosed with post-tramatic epilepsy. I'm a chef and have been living with family and friends since I've been siezing but I feel like I have been a burden...
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jillsmom New - Jillian's Progress
Jillian feels much better today. She has stayed awake for a long time and played and laughed and smiled. She had low grade this am at 5. Everytime she has formula, she throws up. So gramma jean suggested trying a little applesauce with the pedialyte, which...
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2112 New - 2112
I am 47 yrs old. Ive had epilepsy since I was 12. Ive taken Dilatin, Infatab, tegratol, Lamectal, Zonegram ( which gave me kidney stones two months in a row), and now am taking Keppra XR. Everything was going fine until last Sat. I had a seizure at work. Luckily...
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 MichaelK New - Specimen for Study Part II - Stupidity of Doctors
I have been in this hospital for over two weeks. My doctor asked me "what do I really want from these tests?" I wanted to punch him for his raucaus stupididy. I want my life back, and have been sacrificing everything I can to get it.
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 pibbs84 New - Support Groups/Naples
I wanted to know if anyone ever put together a support group. I am meeting up with someone tomorrow and we are putting one together. I wanted to see if anyone had any ideas.
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Christ... New - Doctors and diets
So I am still on the hunt for a different doctor. My primary doctor recommended a neurologist. But I can't figure out where this doctor practices. I asked my primary doctors nurse and she just said oh I am not sure I just know it's somewhere in the city....
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jillsmom New - Jillian's Progress
Jillian had fever last evening and during the night. Her fever is gone this morning, but she doesn't seem to feel well yet. Dr. Chugani will see her this afternoon, so we will know more then. Thanks to all.
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poonewz |
cpartlvr |
Its Me New - Still Alone
I have been looking for someone to date and one day get married. My epilepsy had gotten in the way.
One of the first things I let a guy know is of my condition, just in case a seizure comes up in the mist of a date. I will not say it right away,...
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Daniel... New - spiderman
So I get my eeg tomorrow. I am a little nervous. Maybe it is because in comic books every time they get hooked up to a machine they come out with super powers. I vote Wolverine's if I get to choose. ;)
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MeLy D. New - Married to an Epileptic and feeling alone.
Hello to all! I am new to this site and am hoping someone will read my blog and give me some feed back.
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jillsmom New - Jillian's Progress
Tuesday morning and we are doing well. Jillian had one drain removed yesterday, and Dr. Sood said the other drain will be taken out this afternoon. We are very excited about this because it will be easier to move her. She is staying awake for longer periods...
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MichaelK New - A Specimen for Research
Here is my donation to science: the unforgiveness of my Epilepsy. A group of doctors told me that the results of my VEEG were inconclusive and so my doctor is going to present my case to a group of Epileptologists and neuroseurgons this week.
Has there...
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Lisake... New - I need an answer.
I am not epileptic, but my Husband is epileptic. We live in an apartment comunity that just installed flourecent lighting. My husband has not been feeling well since. My question is can flourecent lighting cause siezures or cause an epileptic to feel...
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Daniel... New - great expectations
Some things are paradoxes. Things you cannot wrap your mind around no matter how hard you may try. For me lately, the paradox with which I have been struggling is expectations.
I was told today that I am too hard on myself. At first I totally disagreed...
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Peanutz |
Sanfor... |
jillsmom New - Jillian's Progress
Ok everyone. We are out of the picu and onto the neurology floor. Not a private room but we are dealing with it. Jillian doesn't seem to be bothered so that is all that matters.
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Daniel... New - gerbera daisies
Well the wedding last night went off without a hitch. Happy! There was an incident with a two year old ring bearer but...
All in all it was beautiful. Glad I didn't give in to the fear or I would have missed the cheer of the night and a chance to get a daisy.
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 xavier... New - 2010...more of the same???
Hello Everyone,
2010 is a few months old now and hopefull the new year is treating you all well. I'm ready for spring. We had a cold and snowy winter this year which is quite odd for southwest Georgia, US.
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Daniel... New - headaches and tulle
Tonight I have a wedding. Icing and candles and frufru but I am excited to make it happen. Yet I have not only the mild headache that has not left since I upped my dosage but the nagging feeling of what if...
It is such a complicating thing. What if...but...
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jillsmom New - Jillian's Progress
Saturday morning and Jillian is doing well. She is very sleepy and somewhat fussy, but the doctor's agree she is doing well. We will be taking her to a regular floor soon ( out of ICU). I will give more details soon. Pray for continued healing.
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jillsmom New - Jillian's Progress
Ok, I have not updated like I should have. But here's the latest. Jill is in her second surgery right now. We just got an update from the OR nurse. She is doing well. Surgery will last 6 to 8 hours.
I will try to update again, but it is hard...
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trey2007 New - Son with seizures
Hello, my name is Pamela, I am new to this sight and am looking for any advice possible for my son.... He has been taking seizures since the age of 5 and 1/2 months, they started out as him rolling his eyes and dropping his head along with a grunting...
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Daniel... New - mexican food, hairspray, and the pendulum swing
Just started upping my meds last night and it all came screaming back to me. Does anyone else get cravings on topamax? The first month or so after an increase in dosage for me is like my very own pregnancy...I crave random foods at random times and all the...
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lisalou New - Tick tock tick tock
Tick tock. Tomorrow is Friday and for the last two weeks I have ended up in hospital on friday nights. Is it work? Tiredness? Stress? Just one of these things?
Tick tock. I am so nervous that I am just a time bomb walking around. I am trying to find...
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michel... New - michelle
i went to see my doctor about my meds and the side effects keppra has he told me to wait until my next visit why iam on phenobartal he told me to see a physcologist has that happen to you before . so i did and it has helped me how to cope with...
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Daniel... New - more drugs, no rock and roll
So I went to the neurologist today. She is upping my topamax by a total of 50 mg. Not much, but enough to make me a little bit crazy, little bit angry. Hopefully I don't throw my guitar at anyone like last time. We will see where this takes us...
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aprilb114 New - emilys epilepsy
emily is currently on epilim and its doing wonders for her. my 19 month old baby is doin great. her seizures are controlled so far. although her test and scan all came back with no reason as to why she has it, which is frustrating but good that ther are no...
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reader9 New - I need insurance!!
I just turned 23 and was taken off of my parents' insurance plan. I need to find my own, and am having a lot of trouble. I applied to Blue Cross Blue Shield, but was rejected because of my condition. We are looking up Humana, but apparently I have...
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Daniel... New - knocked over by a rabbit
I feel like I am a juggler, only I need three arms, because every time I get all of the balls rolling one flies caterwankus and I can't catch it.
Lately my seizures have gone mad on me, doing things that they have never done before. Oh, what to do. For...
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jillsmom New - Jillian's Progress
Jillian is in surgery right now. Please pray for all health staff and for Jillian. We are hanging in there.
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 sonicboom New - been a year and things have changed
goodness gracious i havnt written on here for over a year.. i dont know where the time goes, this of course is not helped by the fact that i spend a fair few extra hours every month unconcious or post ictal...
let me see...
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MichaelK New - Lack of common sense in some doctors.
Day 5 of my hospital stay. It is snowing heavily outside here in Tokyo. I am wearing a ECG and am forbidden from taking a shower and I have to log everything I do on a little sheet. The MRI results came in and the doctor thinks I have Left Temporal Lobe...
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Christ... |
jaorande New - Hi everyone
Hi, i am new to blogging but i know i have a lot to share. some might be fun, crazy or me being me. I have been diagnose with epilepsy for nine year and i am trying to beat it. i have my own method of keeping me seizure free and it works well for me. i...
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 kjcana... New - my epilepsy lately
WOW, IT HAS BEEN A LONG TIME SINCE I'VE BEEN ON HERE! I HAD BEEN DOING GREAT UP UNTIL JANUARY 27TH. I WAS AT WORK THEN ALL OF A SUDDEN MY CO-WORKERS WERE CARRYING ME TO A PRIVATE OFFICE WHERE I PROCEEDED TO HAVE A SEIZURE. THEY OF COURSE CALLED AN AMBULANCE...
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lisalou New - I have had another seizure!
I am recoveing from my Friday night which shoud have been ful of friends and fun but instead I spent the majority of the night at the Emergancy room!
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Christ... |
naskp New - Partial Seizures
My 10YR old son is suffering from partial seizures .WHATS THE BEST AVAILABLE TREATMENT ---
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dietpills |
hnubts... New - epilepsy - to share or not to share
I was talking with two friends today about a book, The Spirit Catches You and You Fall Down (http://my.epilepsy.com/node/4334). It's about a young girl with epilepsy and the struggle between culture and medicine. It was a good theoretical conversation about...
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shags38 New - Will 3D Television or movies trigger seizures?
There is much hype and concern about the effect of 3D viewing being a trigger to epileptic seizures - the concerns and the myths need to be dispelled, or proven.
This is the hottest topic globally amongst epilepsy sufferers causing often unwarranted...
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