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UPDATED: Wed, 09/03/2008 - 9:35am

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Your Voice, September 2008

by Patty Shafer, Resource Specialist

I hope everyone has had a relaxing and fun summer. The Community has continued to be a great place for sharing views and ‘giving and getting’ support from each other. In browsing around, I’ve taken the liberty of highlighting a few threads of interest.

What bothers people with epilepsy? Do words worsen stigma for people with seizures or has 'political correctness' gone too far? Two similar threads highlight people’s thoughts on this area. Check these out and add your own voice! If you don't have epilepsy, please add your thoughts too. It's always helpful to hear multiple thoughts on an area such as this.

Are you an artist? Do you like to share your voice or experiences through the arts? It can be a great way to express your views. I know we have many artists on this site and hope they share their work with us. Look at this recently created group and see what you can add!

Epilepsy Talk Radio comes to Epilepsy.com. Living with epilepsy can be very tough at times. While seizures may be part of the problem, mood disorders such as depression can occur and cause many more difficulties. If you missed our recent Epilepsy Talk Radio, you can listen to the archived session on Epilepsy and Its Treatment: Talking about Epilepsy and Suicidality.

I’ve added a thread in the Community for people to write in other topics and speakers they’d like to hear on our Blog Talk Radio. Please add your opinion!

I’d like to welcome all our new members – it’s been great meeting you around the site. To both new and regular users, I hope everyone takes time to enjoy the remaining days of summer, and let us all know how you’re doing!

Patty Shafer RN, MN
Resource Specialist

groups

Title Posted
has generic Keppra caused more seizures for anyone else?  
ronile67
uncontrolled drop seizures  
TSL1221
sleep deprivation EEG  
madhousemum
Seizures During Sleep Only??  
JulieBee1967
WHEN DOES A MEDICAL EXAMINER CLAIM SUDEP AS CAUSE OF DEATH?  
jeffreyreistad
drop seizures- ho wwould I know?  
aneetw
Suicidal thoughts & impulses??!!  
Dana1975
Landau Kleffnar syndrome  
aneetw
Question about Auras  
confuzzed
does this sound like simple partial seizure to you?  
LondonRob
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
Epilepsy and marijuana  
cjad234
Sexual Side Effects  
George R
How exactly do aura's feel  
WendyBendy
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
View all Forums

Title Posted
ohh bother  
LaurenG1211
To John Travolta  
crashllama
Dad  
kroiz
Simple partial seizures - deja-vu's  
Ashvura
Catamenial Epilepsy *Hormone-Induced*  
xolovelyox
Life lately...  
whofan
A Wookie looks at life 7  
wookie
HELP  
lssrez
I am sticking around  
mindyk
Eye twitches....  
Tarby
View all Blogs

Title Page Views
Inspirational Quote - My Own Personal Inner Thoughts  
Butterflygrl
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
side effects of phenobarb.  
pksmom
Feeling Sick  
JBJ1984
Tegretol XR and ANXIETY meds  
Butterflygrl
How can you tell if a sleep seizure happens?  
epl_controller
Nonepileptic "Events" vs. "Seizures"  
teft
TYLENOL, AEDs & SEIZURES  
cmscribbles
View all Blogs

Title Posted
Jakey's Story  
jennnel
Assaut from work.  
ToDdO
A Photosensitive Girl  
Niyati
Dealing with epilepsy  
Becka_77
My seizure saga  
tstrong
Isabella  
isabelloni
My Son  
dianak
Not Seized by My Seizures  
rwb1213
Help  
blonde1
Disheartening...  
joey77
View all Stories

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Have you or a family member ever had a seizure from:

video games
34% (14 votes)
a TV program
24% (10 votes)
flashing lights or patterns elsewhere
44% (18 votes)
no
37% (15 votes)
Total votes: 41

View results
View past poll results