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Temporal Lobe Epilepsy Group - A place where people with temporal lobe epilepsy can come and discuss shared experiences and feel less alone. This new group is certainly needed! Temporal lobe epilepsy (TLE) is a common form of epilepsy, especially among adults. There are many misperceptions about TLE, and many ways that TLE affects people’s lives that are not well understood. Contact Katfaierie, the group moderator, with any questions and join right in!
Women with Epilepsy - Crystal started this new group for women with epilepsy. Epilepsy affects women differently than men, and women may cope with epilepsy differently as well. Seizures may change at many life stages, from puberty to menopause, because female hormones and childbearing may have enormous effects on seizures for many women with epilepsy. Crystal wanted to start this group to have a place to talk about these issues and get to know others with the same problems. Come join this group to converse and find out information that can help you both medically and socially.
Wearable Seizure Detection – This group was started to explore the technical and commercial path to developing a practical, wearable seizure detection and alert system. The group will develop an understanding of intellectual property, prior art, and previous/current commercial efforts around this space. We’ll also explore how best to promote and incent activity to create such a device. Threads on business issues, as well as patient perspectives, would be valued and welcomed! Contact Warren, the group moderator, for more information and share your ideas!
| Title | Posted | |
|---|---|---|
| Catamenial Epilepsy: Finally a solution! | May 20, 2012 | |
| uberzwitter | ||
| Best pediatric neurologists in NC? | May 20, 2012 | |
| Ashleygordon82 | ||
| I think I just had a seizure??!!?? | May 20, 2012 | |
| msmith1997 | ||
| epilepsy and psychic abilites | May 20, 2012 | |
| lane | ||
| FREE counseling? (online, telephone, or in person) | May 20, 2012 | |
| rosanna1980 | ||
| PC Seizures, possibly nocturnal seizures, possible thyroid issues... | May 20, 2012 | |
| pewter | ||
| Georgia Neurologist | May 20, 2012 | |
| rosanna1980 | ||
| Afraid to have VNS. Anyone had it? | May 20, 2012 | |
| tcameron | ||
| Seizures linked to Anxiety? | May 20, 2012 | |
| MoSchneb | ||
| Is this a very bad neurogist please?? | May 20, 2012 | |
| patrish | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,618 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,241 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,073 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,442 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| Feeling | May 19, 2012 | |
| hross1110 | ||
| Absence seizures and school | May 18, 2012 | |
| mgarcia | ||
| Life with Epilepsy, and what I go through every day. | May 18, 2012 | |
| trentonbest | ||
| Some people are just complete A-holes.... | May 17, 2012 | |
| arsen77 | ||
| Train Yourself To Never Underestimate Yourself. | May 16, 2012 | |
| Colliflower14 | ||
| Has anyone else had rapid eye movement with seizures? | May 16, 2012 | |
| krigg | ||
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| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
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| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
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| side effects of phenobarb. | 3,215 | |
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| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
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| newborn seizure | 2,256 | |
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| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| I want to get better | May 15, 2012 | |
| EsmeraldaAguilar | ||
| Seizures under control | May 14, 2012 | |
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| girl4him | ||
| pregnancy and lamictal and mysoline | May 14, 2012 | |
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| Cole | May 12, 2012 | |
| MommaofMia3 | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
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| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
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| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
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