Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYGroups on epilepsy.com are a great way to meet people with similar interests, share documents and have a virtual meeting place! Read on to hear about a few groups – then follow the links to join, or start your own group!
A new group created for everyone on epilepsy.com to get together and interact. I started this group with the idea in mind to bring us all together to share our experiences, laughter and thoughts. Consisting of categories ranging from serious to silly, all will tell us things about each other and help us get to know each other better. Visit the group and choose from a variety of categories to contribute. Or add your own category for us all to enjoy. Hope to see you there!
Look forward to meeting you at the Cabana!
Take care!
Spiz
Trying to find old friends? Old Timers Group!
The Old Timers group was developed by Colina, because members missed all their epilepsy.com friends! While the site changes offered more new features, people needed a place to gather while having their morning coffee. The Old Timers Group does just that – a place to catch up on their friend’s new blogs and forum posts, and respond in hopes of helping someone in a supportive way. While members come and go, Colina notes that epilepsy.com has been the gateway that brings so many people together.
Calling all old timers and new members alike! Stop by, chat and let us help you, as you help us.
Please contact Colina, the group moderator, with any questions!
Looking for others who have had surgery? Stuggling after Surgery
Mommy2Kyra started this group for all who have undergone surgery, in attempt to gain control of our seizures. Some people have been with complete physical and emotional control. Others weren't. There is a group of people feeling as though we are going in circles. And often feeling as though we are all alone. This is a place where those of us who are struggling can feel safe and free to share both our experiences and feelings. We are not alone. It can be a real support to share such deep and complex issues with those who have actually been there. Just letting it out, instead of holding it all inside, can be a wonderful relief. I am hopeful that those who are struggling to keep living feel free to enter. I have certainly been there...and struggle with those feelings everyday!
~Heather~
Please contact mommy2kyra, the group moderator, with any questions!
| Title | Posted | |
|---|---|---|
| Catamenial Epilepsy: Finally a solution! | May 20, 2012 | |
| uberzwitter | ||
| Best pediatric neurologists in NC? | May 20, 2012 | |
| Ashleygordon82 | ||
| I think I just had a seizure??!!?? | May 20, 2012 | |
| msmith1997 | ||
| epilepsy and psychic abilites | May 20, 2012 | |
| lane | ||
| FREE counseling? (online, telephone, or in person) | May 20, 2012 | |
| rosanna1980 | ||
| PC Seizures, possibly nocturnal seizures, possible thyroid issues... | May 20, 2012 | |
| pewter | ||
| Georgia Neurologist | May 20, 2012 | |
| rosanna1980 | ||
| Afraid to have VNS. Anyone had it? | May 20, 2012 | |
| tcameron | ||
| Seizures linked to Anxiety? | May 20, 2012 | |
| MoSchneb | ||
| Is this a very bad neurogist please?? | May 20, 2012 | |
| patrish | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,618 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,241 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,073 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,442 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| Feeling | May 19, 2012 | |
| hross1110 | ||
| Absence seizures and school | May 18, 2012 | |
| mgarcia | ||
| Life with Epilepsy, and what I go through every day. | May 18, 2012 | |
| trentonbest | ||
| Some people are just complete A-holes.... | May 17, 2012 | |
| arsen77 | ||
| Train Yourself To Never Underestimate Yourself. | May 16, 2012 | |
| Colliflower14 | ||
| Has anyone else had rapid eye movement with seizures? | May 16, 2012 | |
| krigg | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| I want to get better | May 15, 2012 | |
| EsmeraldaAguilar | ||
| Seizures under control | May 14, 2012 | |
| panteradee | ||
| Dizziness with topiramate/Diamox | May 14, 2012 | |
| girl4him | ||
| pregnancy and lamictal and mysoline | May 14, 2012 | |
| ckonstas | ||
| Cole | May 12, 2012 | |
| MommaofMia3 | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 561 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||
