Families at the 2106 PAME Conference Advocacy Day
Wed, 08/24/2016
The Partners Against Mortality in Epilepsy (PAME) 2016 Conference in Washington, D.C., offered a special opportunity for families and medical professionals to participate in an Advocacy Day on Capitol Hill. Family members visited their Senators and...
Safety in the kitchen
Mon, 08/22/2016
Generally speaking, these precautions are common sense and are based on proactively asking yourself, "What would happen if I had a seizure while doing this?” Of course, these precautions apply most if seizures are not well controlled. General...
Mon, 08/22/2016
Background In April 2013, Shawn Moe applied for a job as a Machinist Journeyman at Amtrak’s mechanical yard in Seattle, Washington. Amtrak provided a conditional offer of employment, but withdrew the offer after Moe reported a history of epilepsy...
Baby
Wed, 08/17/2016
History of the Ketogenic Diet in Infants For many decades, the idea of using the ketogenic diet for infants with epilepsy was discouraged. Concerns were raised in chapters and books about the diet that infants were highly likely to become...
Tue, 08/16/2016
The medication known as Potiga® or ezogabine in the United States and Trobalt® or retigabine in many other countries will not be commercially available after June 30, 2017.  Read more here: Potiga Prescribing Update Aug 2016.pdf...

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