The following advocacy organizations have come together to share their hope that these recommendations lead to increased disclosure rates and better standards of care. Collectively, we also believe more needs to be done to advance our understanding of SUDEP and its prevention.
When people with epilepsy and their caregivers are empowered with information to understand SUDEP, they can take action to reduce risk of harm. To respond to this urgency, raise awareness, and promote steps that can help prevent SUDEP, the Epilepsy Foundation’s SUDEP Institute issued an Epilepsy.com Special Report, "#AimForZero: Striving Toward a Future Free from Sudden Unexpected Death in Epilepsy."
#AimForZero encourages people with epilepsy to adopt four critical actions to reduce their risk of SUDEP:
Find social media messages to help raise awareness, resources for professionals, and more information on #AimForZero here.