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Patricia Shafer Presenting

Patricia Osborne Shafer, RN, MN welcomed attendees to the Epilepsy Pipeline Conference Family Day on June 7, 2014

Wednesday, June 18, 2014

The Epilepsy Pipeline Conference 2014 and Family Day were held in San Francisco, June 5th to 7th, 2014. What an amazing time meeting so many of you and hearing about exciting new approaches for epilepsy treatment and care! The energy and excitement was apparent throughout the entire meeting.

  • Two days of Pipeline Meetings presented the status of many therapies in development, new ideas being explored, and perspectives from the public and private sectors about barriers and opportunities in epilepsy research, as well as perspectives from people with epilepsy and their families.

  • Family Day was a one-day conference that highlighted the advances in seizure medications, surgery, devices, medical marijuana, dietary therapies, and changing thoughts about exercise and wellness. Many different perspectives were shared to help people become empowered, have hope for their future and find help.

The Epilepsy Pipeline – What is it?

  • The Epilepsy Pipeline aims to get new therapies to people with epilepsy “in a timeframe that matters.” We all know that research takes time. Without added resources and urgency, however, the time it takes to get new ideas developed and tested so that people can use them can be very long. The Epilepsy Foundation wants to change that.

  • The Pipeline Conference gives visibility to new therapies, sponsors and their development. It provides a picture of where we are and where we are going, as well as a way of tracking new ideas and progress.

  • Take a look at the Pipeline in more detail.

What impact is the Epilepsy Foundation having on developing new therapies?

Warren Lammert, chair of the Epilepsy Foundation’s Board of Directors, presented the following table at the conference. In a snapshot, you can see the enormous impact that the organization is having. Yet there is still so much to do!

We heard about many new therapies at the conference. Some are already being used to help people with epilepsy. Others are still being tested. Hopefully we will see a number of these in the near, or not too distant, future!

Type of Therapy

Pipeline

EF Funding

Drugs

49

25

Drug Delivery Systems

11

5

Dietary Supplement

1

1

Therapeutic Devices

9

8

Seizure Detection and Prediction

6

2

Diagnosis

12

7

Safety Devices

2

1

Marketed in 2014

14

4

Dormant (inactive)

19

7

TOTALS

123

60

Where can I learn more about the talks?

I’d like to extend a special thank you to everyone who helped make this conference come to life! I hope that every one of you who came to the conference or listened to it online walked away with new excitement, ideas and hope for the future of epilepsy care and treatment. We still have much to do, but with your help we can get there “in a time frame that matters.”

With best wishes,

Patty Osborne Shafer RN, MN
Community Manager and Associate Editor

Authored by: Patricia O. Shafer RN on 6/2014
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