How can talking to your doctor help reduce SUDEP risk?
"Over time doctors, and particularly epilepsy specialists, have come to realize that it is important to discuss SUDEP and other seizure risks with people with epilepsy, even though the conversation can be difficult. The discussion about SUDEP needs to be done at a time when people are ready to absorb this information. It is important to emphasize that the risk is low, but is not zero, and that people can reduce their own personal risk by taking their medication and aiming for seizure freedom."
— Jacqueline French, MD
"People with epilepsy can enhance the level of communication with their physician by being proactive in addressing these issues during outpatient visits."
— Philippe Ryvlin, MD, PhD, Professor Neurology, Lyon University, France
"The best action is to keep yourself informed about everything there is to know about your epilepsy. Work with your doctor to develop a treatment plan and stick to it."
— Joseph Sirven, MD, epilepsy.com Editor-in-chief and Professor of Neurology and Chairman of the Department of Neurology, Mayo Clinic, Arizona