|
|
Epilepsia is the journal of the International League Against Epilepsy and one of the world’s leading, most authoritative sources for current clinical and research results on all aspects of epilepsy (http://www.epilepsia.com/)
This April 2005 issue of Epilepsia represents the start of a journalistic experiment, in which we publish lay abstracts of articles in the issue. We define a lay abstract as a summary written in language suitable for the public. Those involved in writing for journals, reading journals and paying for the research that is described in journals increasingly recognize that important work should be available to the public. The Internet provides the public with access to massive amounts of information, but much of it is not understandable to them and most of it is not subject to expert quality control. In its small way, Epilepsia hopes to address these limitations.
When a manuscript is accepted for Epilepsia, the authors are asked to submit a lay abstract. This process is itself a challenge. Many doctors and scientists have intrinsic difficulties with avoidance of technical terms and jargon. For example, few in the public understand the meaning of the phrases "lesion" or "in vitro hippocampal slice". In addition, researchers are trained to be highly focused, specific, conservative with extension of interpretations beyond the immediate data set, and to avoid speculation. These attributes are indeed key for successful scientific publications, but tend to leave the lay public bewildered. The public requires more global context-setting by way of introduction and greater degrees of help with drawing a conclusion. Initial experience suggests that lay abstracts require at least as much editorial input as do ordinary abstracts and articles.
We made a decision to include a lay abstract for every publication, based on the assumption that every piece of work, no matter how technical, would generate interest in some segment of the world's vast population. This approach is similar to that of the United States National Institutes of Health, which requires lay abstracts for its grants. After this first issue, all published articles will have lay abstracts, but the process was initiated in the middle of arranging this particular month’s issue. The journal Neurology, publishes lay summaries selectively, and in more depth than a one-paragraph abstract. The precise method used to make information available to the public probably is less important than the commitment to do so at all.
Lay abstracts will be available as part of the article on the Blackwell Synergy web site (http://www.blackwell-synergy.com). They will be available to PubMed and Medline at the discretion of those services. Abstracts also will be posted on the web site of the International League Against Epilepsy (http://www.ilae.org and http://www.epilepsia.com), representing the international voices of professionals who care for people with epilepsy, and of the organization that owns Epilepsia. We hope this experiment succeeds, and welcome your feedback.
Robert S. Fisher, M.D., Ph.D.
Immediate Past Editor-in-Chief, Epilepsia
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.
| Title | Posted | |
|---|---|---|
| New to all of this -- no idea how you guys manage | Jan 6, 2009 | |
| RitKid742 | ||
| "Post-ictal" confusion | Jan 6, 2009 | |
| RitKid742 | ||
| recently diagnosed with seizure disorder | Jan 6, 2009 | |
| kstons57 | ||
| help with 11 year old | Jan 6, 2009 | |
| johnnysmom | ||
| Random Muscle Twitches? | Jan 6, 2009 | |
| Starlight3 | ||
| Partial seizures - treatment both medical and alternative | Jan 6, 2009 | |
| sharongr | ||
| Blood Inside your ears during post surgery recovery period? | Jan 6, 2009 | |
| ahardway | ||
| Treatment for Simple Partial Seizures - medicine & alternative treatments | Jan 6, 2009 | |
| sharongr | ||
| Treatment for Simple Partial Seizures - medicine & alternative treatments | Jan 6, 2009 | |
| sharongr | ||
| Ethosuximide treatment | Jan 6, 2009 | |
| DawnMaries | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,369 | |
| epi_help | ||
| topamax and weight loss | 18,808 | |
| alexia mom | ||
| kepra | 18,646 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,476 | |
| pdl1 | ||
| Epilepsy and marijuana | 14,412 | |
| cjad234 | ||
| Sexual Side Effects | 12,670 | |
| George R | ||
| How exactly do aura's feel | 12,384 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 11,168 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 9,882 | |
| spiz | ||
| electrical shock in head? | 9,317 | |
| Maggie | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Travolta Family | Jan 6, 2009 | |
| phunn | ||
| John Travolta not an advocate? | Jan 6, 2009 | |
| mcsixofus | ||
| I am sticking around | Jan 6, 2009 | |
| mindyk | ||
| Eye twitches.... | Jan 6, 2009 | |
| Tarby | ||
| Ever Stop Randomly for a Second but You're Still Awake | Jan 6, 2009 | |
| Channing Seideman | ||
| I think my unborn baby is having in utero seizures. How can I be sure? | Jan 6, 2009 | |
| bontracy | ||
| were not crazy | Jan 6, 2009 | |
| ky | ||
| Pictures of Puppy | Jan 6, 2009 | |
| bookworm03 | ||
| Getting ready for August camp and the big move | Jan 6, 2009 | |
| ChandaGunn30 | ||
| Condolences to the Travolta family and so many others | Jan 6, 2009 | |
| epi_help | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 7,911 | |
| Butterflygrl | ||
| my partial complex seizures | 3,831 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,614 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,443 | |
| JudiS | ||
| side effects of phenobarb. | 2,946 | |
| pksmom | ||
| Feeling Sick | 2,763 | |
| JBJ1984 | ||
| Tegretol XR and ANXIETY meds | 2,715 | |
| Butterflygrl | ||
| How can you tell if a sleep seizure happens? | 2,611 | |
| epl_controller | ||
| Nonepileptic "Events" vs. "Seizures" | 2,524 | |
| teft | ||
| TYLENOL, AEDs & SEIZURES | 2,509 | |
| cmscribbles | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Hampton Roads VA | Jan 1, 2009 | |
| steelersfan | ||
| Paroxysmal hypnogenic dyskinesia | Dec 17, 2008 | |
| kat60 | ||
| young adults(not teens) 21-25 yr olds | Dec 17, 2008 | |
| majormana | ||
| Eastern NC Epileptics | Dec 14, 2008 | |
| CarolinaBrittany | ||
| dravets syndrome | Dec 14, 2008 | |
| colejames | ||
| 24 and trying | Dec 14, 2008 | |
| elassy | ||
| Anyone with Simple Partial Seizures | Dec 2, 2008 | |
| Erin99 | ||
| Epilesy support for winners | Nov 10, 2008 | |
| bethkashenberg | ||
| Lets hang out in Colorado | Nov 5, 2008 | |
| kylesmom08 | ||
| Benign Rolandic Epilepsy -- Is it really benign | Sep 13, 2008 | |
| LaraHj | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| hope | Jan 6, 2009 | |
| fgarcia | ||
| The story of my brave little boy ! | Jan 6, 2009 | |
| KuttersMom | ||
| unknown diagnosus | Jan 6, 2009 | |
| Lmamma | ||
| Cataplexy? | Jan 6, 2009 | |
| ky | ||
| Born with epilepsy | Jan 6, 2009 | |
| tmcole02 | ||
| 24 years with epilepsy | Jan 6, 2009 | |
| childofGod | ||
| Char | Jan 5, 2009 | |
| char75 | ||
| Jakey's Story | Jan 5, 2009 | |
| jennnel | ||
| Assaut from work. | Jan 5, 2009 | |
| ToDdO | ||
| A Photosensitive Girl | Jan 5, 2009 | |
| Niyati | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,051 | |
| kroiz | ||
| Seizure Cat helps unfold my seizure life! | 569 | |
| wenko | ||
| my story | 444 | |
| snoby | ||
| Always Have On Clean Underwear | 396 | |
| crashllama | ||
| Kelly's Life With Epilepsy | 383 | |
| kjcanada1979 | ||
| my brain has died a thousand deaths........... | 355 | |
| banffgirl | ||
| What My Seizures Are Like...... | 341 | |
| javaman | ||
| Crystal's story | 309 | |
| Crystal11 | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 300 | |
| karalyeva | ||
| How I found out I hade seizures | 283 | |
| HilaryWeinberg | ||
| View all Stories | ||
