Place Your Advertisement Here
All ad revenues support the mission of the Epilepsy Therapy Project
 
UPDATED: Fri, 12/21/2007 - 9:39am

  • Epilepsy First Aid
  • Seizure Medication
  • Videos
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project

Seizure Preparedness 101



Seizure preparedness is just what it sounds like – being prepared to manage seizures. Based on self-management concepts, seizure preparedness is designed to help people with epilepsy and their loved ones learn self-management skills, or what they need to manage their seizures and the way it affects their daily life. While the term 'self-management' is used at times, keep in mind that to work right, seizure management requires teamwork between members of your health care team, your family and you. Consider the roles of everyone involved…

  • The doctor and health care team brings the medical expertise to diagnose and treat seizures.
  • You (and your family) bring your voices and experiences – information you have helps the doctors make the right diagnosis, recommend tests or treatments, and refer you to other providers or resources that may help you.
  • You must live with the seizures, today and every day. How epilepsy affects you and your family will influence what recommendations your doctor makes and what choices you make.
  • Together, you must decide what your goals are and make a plan on how to reach these goals.
  • Then you and your family must get the information, learn the 'how to' skills, and find the right resources and supports to make it all work for you.

Being a good manager may also be influenced by confidence in your ability to manage seizures, satisfaction with your care, ability to communicate with the health care team, support from family and friends, your mood, and feeling ‘in control’ and working together to set realistic goals and plans.

We know that living with epilepsy is more than just knowing your type of seizures or what medicine to take. People must learn how to respond to seizures in a variety of circumstances and situations - and be prepared to handle whatever comes your way. Living with seizures also means learning how to handle the way that epilepsy affects your life including your social, emotional and physical well-being.

Seizure Preparedness starts by addressing seizures and seizure emergencies, treatments and safety. Written for the person with seizures or their parent, guardian or loved one, it takes a practical approach to managing seizures that emphasizes preparation, prevention, and teamwork. It is built in modules or sections that you can work through one by one, or jump in and go to the areas that are of greatest concern to you. As you move along, you'll find some sections that are still being fine-tuned and developed. Print sections to read, send to a friend, and know that epilepsy.com is here to help.

For more information:

Continue to Importance of Preparedness

Topic Editor: Steven C. Schachter, MD and Patricia O. Shafer, RN, MN.
Last Reviewed: 11/2/07


Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.

No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.


Turn the page on your treatment by starting your Epilepsy Diary today.

Keeping a daily record of your seizures can help you and your doctor better understand and treat your epilepsy.

Open my epiCom Diary


Title Posted
Seizures During Sleep  
Morning Sunshine
Food-Triggered Siezures  
uberzwitter
Positive Stories Only  
onemarvy
My story and some questions! Does anyone else have pains in there head?  
johnandkymberley
Seizure Alert Dogs  
bleedingheart
new and scared  
mamaofhapas
"Electric" Dreams  
karina1481
Phenobarbital, Babies & Developmental Delays  
BenjiMom
A Form of Epilepsy or the Onset of Madness??!  
Libby1
First seizure in young adulthood  
Etherealic87
View all Forums

Title Posted
Controlling Anxiety  
Alang
Confused about some terminology  
drowsydreamer
Top Ranked Hospital or Best Neurologist with Epilepsy Specialty in Southern California / Los Angeles / Pasadena  
bobfrank30
vns therapy side effects  
helenpe1
Anyone experience memory loss?  
tiff_25
How do you cope with memory loss?  
sportz_nut
Running out of Options  
KATHS2
Holy Cow, am I lost on what to do!!!  
IRTIM2
Fire fighter wanting to work with epilepsy  
mjc
Night Seizures  
Mommamelissa
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
Epilepsy and marijuana  
cjad234
Sexual Side Effects  
George R
How exactly do aura's feel  
WendyBendy
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
View all Forums

Title Posted
A horrible day with epilepsy  
MichaelK
Please help  
Tanikkab
View all Blogs

Title Posted
Sleep deprivation EEG  
freedbythewind
TYLENOL, AEDs & SEIZURES  
cmscribbles
Links of London jewelry  
tiffanyblog
A novice writer needs YOUR help!  
ACSutliff
Heck of a day  
4mygirl2
vaic t800 TV cell phone with camera  
agoodsellers
Ohhhhh Baby!  
1sassyhelper
29 years old, had seizures since I was 8.  
dkalra
Nckia e71 dual sim cards cell phone with NES game  
agoodsellers
A Memory upon the Stairs  
kjeldoran_king
View all Blogs

Title Page Views
Inspirational Quote - My Own Personal Inner Thoughts  
Butterflygrl
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
side effects of phenobarb.  
pksmom
Feeling Sick  
JBJ1984
How can you tell if a sleep seizure happens?  
epl_controller
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
View all Blogs

Title Posted
Trying to understand Epilepsy  
truecd
Sudden and Awful  
kel7
The Day My Family Nearly Died  
Brenno76
View all Stories

Title Posted
WHY???????????????????????  
marymm
Ugg Bailey Button Boots–Your Winter Footwear  
lovetiffany
Ceremony to welcome President Hu Jintao to the country, accompanied by up to 200 people Barack Obama Barack Obama  
nicky001
Ten best sale cell phones(one) in Otc:A2688 TV cell phone  
agoodseller
new roads to travel  
Marsha Cash
febrile seizures  
febrileseizures
6 months post brain surgery  
robin4902
James Rowell  
jamesrowell
Police Officer with Epilepsy  
Rob Jamieson
So Wonderful of Using a Video Baby Monitor  
buyairshoe
View all Stories

Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project